September 28, 2013
Nashville, Tenn. -- ResearchMatch (RM), the country's first nationwide, non-profit research volunteer recruitment platform for all health conditions is launching an HIV sub-registry in collaboration with Program for Wellness Restoration (PoWeR), a national grassroots HIV advocacy and education organization.
RM has a simple goal -- to bring together two groups of people who are searching for each other: people who are trying to find research studies, and researchers who are looking for people to participate in their studies. It is a free, secure online registry that has been developed by major academic institutions across the country that want to engage others in the mission of today's ethical, expedited research that will hopefully make a real difference for people with HIV/AIDS in the future.
The Centers for Disease Control (CDC) estimates that 1,148,200 persons are living with HIV infection in the United States, including 207,600 (18.1%) who are unaware of their HIV status. Although great strides have been made in developing medications that treat HIV, research volunteers are needed for emerging HIV cure research studies that may lead to a functional HIV cure in the future. Presently, ResearchMatch.org is the only non-profit clinical trials registry that proactively connects potential volunteers and researchers.
"ResearchMatch.org will make a dramatic difference in accelerating HIV cure research by connecting researchers with volunteers who want to help but don't know how to get involved or where to turn. The hope is that many people will register to volunteer and that academic and research institutions will take advantage of this free service that promotes faster study enrollment," said Nelson Vergel, HIV activist/educator and director of PoWeR.
All volunteers who register with RM indicating HIV as one of their conditions will be informed of enrolling studies in their area and also be connected with investigators who register studies at sites in their area. New RM registered members will also be prompted to consider answering optional questions about their condition to enhance the precision and prescreening process for matching volunteers and research teams.
To register as a volunteer or a researcher, please visit researchmatch.org.
ResearchMatch is a national partnership created as a centralized, web-based recruitment registry, connecting individuals who are interested in participating in research with researchers nationwide. The site is a funded in part by the National Institutes of Health (NIH) and Clinical and Translational Science Award (CTSA) program grants. The CTSA program is led by the NIH's National Center for Advancing Translational Science (NCATS). The content of this website is solely the responsibility of ResearchMatch and Vanderbilt University and does not necessarily represent the official views of the NIH.
Program for Wellness Restoration (PoWeR) is a national non-profit all-volunteer organization that provides patient-friendly educational information to HIV-positive people and their healthcare providers about ways to improve HIV treatment response, side effects and quality of life. More information can be found at www.powerusa.org.