My Fabulous Disease
The Inspiring Advocates of the 2013 U.S. Conference on AIDS
At the recent 2013 United States Conference on AIDS (USCA) in New Orleans, the word "stigma" wafted through the event, in workshops and throughout the exhibit hall, like an annoying new pop song you couldn't stop humming.
The Stigma Project. The Mr. Friendly campaign. The CDC "Let's Stop HIV Together" media campaign. My own POZ Magazine stigma cover story issue ("The Sound of Stigma"), an indictment of gay community and the antipathy between positive and negative, sat in stacks at the POZ booth. Panel discussions and workshops were held on identifying stigma, combating it, living with it. If Lady GaGa would only record an anthem about it, she could finally knock Katy Perry off the charts.
But there's good reason for it. As Peter Staley (How to Survive a Plague) said in a session of people living with HIV, "One of the biggest generational shifts that I find most depressing is that most of the stigma we deal with now comes from within communities."
The generational differences Peter Staley spoke of is also a curious new bend in the culture of HIV. Once upon a time, our communal experience of AIDS, at least as gay men, was much the same. Our lives were bound in the sameness of death, despair, and then, hope. But since then our generations have separated, with younger gay men less traumatized or fearful about the virus, and (too many) older gay men judging them for behaviors and mistakes we ourselves made in our youth. This too is a subject ripe for conversation, with writers like the irritatingly young Tyler Curry broaching the topic, and public forums springing up to address the matter of post-traumatic stress among "the AIDS generation," which I suppose means me.
To some, conferences like USCA represent "AIDS, Inc.," or a waste of resources that feels self-congratulatory and a poor excuse for plane flights and rubber chicken plenary lunches. I disagree. If the pharmaceutical industry, highly visible and paying much of the tab at events like these, wants to underwrite sessions while promoting their key messages and products, they can be my guest. Conference attendess are sharp enough to take what they need and leave the rest, and the pure energy and support between those doing the work is worth the cost in my mind.
As Paul Kawata, of the National Minority AIDS Council, the producers of the event, said to me, "If we can inspire people to devote one more year to fighting this epidemic, I feel like we've won."
Thanks for watching, and please be well.
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Mark S. King has been an active AIDS activist, writer and community organization leader since the early 1980s in Los Angeles. He has been an outspoken advocate for prevention education and for issues important to those living with HIV.
Diagnosed in 1985, Mark has held positions with the Los Angeles Shanti Foundation, AID Atlanta and AIDS Survival Project, and is an award-winning writer. He continues his volunteer work as an AIDS educator and speaker for conferences and events.
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Mark King Looks Back at the AIDS Epidemic's Darkest Hour in the U.S. (May 14, 2008)
This Month in HIV: Crystal Methamphetamine and HIV (August 2007)
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