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Avoiding Tired Old AIDS Queen Syndrome

June 25, 2013

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Unless you lived through that period, you simply cannot possibly imagine how pervasive AIDS was, or how hopeless things felt. And because I worked at CNN, it was literally impossible for me to escape the daily onslaught of stories. Sadly, the network eluded excellence on the subjects of HIV and AIDS, embracing a frequently irresponsible, overwrought style that regularly made me queasy. Yeah, I was there when one of our worst anchors went all bug-eyed for the camera, clutched her copy and exclaimed with hysterical urgency, "The AIDS virus has been found in tears!" I was also there in '95 when Olympic diver Greg Louganis revealed that he'd been HIV-positive during the '88 Seoul Olympic Games. To me, the story was: Here's an athlete under enormous pressure to compete and win (with the entire world watching) while simultaneously living with HIV and taking the first (and very toxic) AIDS drug, AZT. He suffered a concussion after hitting his head on the springboard during preliminary rounds, but went on to win the motherfucking gold medal anyway. CNN chose to frame the story differently: Greg Louganis cut his head and bled in the pool and we don't really know what that means, but we're just gonna go ahead and imply that he endangered everybody who got into the pool afterwards, you know, because he's got HIV. By this time, I'd really had enough, so I summoned the spunk to tell the supervising producer that we needed to change the way we were reporting the story because HIV is no match for thousands of gallons of chlorinated water. I reminded him that it was 1995, not 1985, so any doctor or scientist from the CDC could confirm that fact. He changed the story. Next shift, different producer, the story went right back to being all about the cut, the blood and that goddamned pool.

When I tested positive in 1993, the first thing I did was get the test again. Sometimes you just have to slap denial in the face, hard. Then I went to an infectious disease specialist who immediately prescribed AZT, the only approved antiretroviral drug for HIV at the time. I said no. Everyone I knew who took that drug was already dead or desperately ill (which makes the Greg Louganis story even more remarkable to me, frankly). The doctor said, "If you're not going to take this medication, then I don't even know why you came here." So, I never went back to see him. Instead, I volunteered at several AIDS service organizations and surrounded myself with all things HIV. Know your enemy. I became a peer counselor, a peer group facilitator, a safer sex educator, a workshop creator, and an expert on disclosing my status before sex -- and yes, I continued to have my fair share of sex. I chose, however, not to disclose my status at CNN. It wasn't safe to do so; that was my judgment call. (Side note: I am bewildered by people who won't shut up about liberal bias in the media. It's bullshit. Newspapers and newsrooms are filled with people from all corners of the political spectrum. For a period of time, I was supervised at CNN by a guy who voted for Pat Buchanan in the 1992 Republican presidential primary. Seriously. He didn't like the fact that I was gay and he certainly wouldn't have been okay with me having HIV.)

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I was gone from CNN by the end of the '90s. It was difficult to abandon a career in broadcast news -- something I'd wanted ever since I watched the first episode of The Mary Tyler Moore Show as a kid -- but I sincerely believe it would have killed me to stay in that business. You see, I progressed to AIDS in roughly four years. Why? Was it the stress of working in an environment with insane deadlines and crazy hours? Was my body simply unable to juggle the virus, a demanding career, a relationship and an intense schedule of volunteer commitments? Should I have taken the AZT? Did I wait too long to start combination therapy once the drug "cocktails" arrived? If HIV has taught me anything, it's that you can't change a second of the past. I've learned to live with my decisions and navigate the consequences as best I can. I've definitely fucked up a few times, but I've also made a bunch of smart choices.

So, I carved out a niche for myself in HIV/AIDS work and stayed busy writing dozens of articles, facilitating workshops and serving on committees and boards. I met thousands of people living with HIV and got emails from readers all over the world. I was asked to do more -- a blog, PowerPoint presentations, panel discussions, podcast interviews, TV appearances. I'm not even going to pretend that I didn't consider becoming a famous gay poz dude that would eventually end up chatting with Oprah, but I just didn't have the energy for it. I walked away from it all in 2008, choosing to focus on running a non-profit spirituality organization for gay and bi men for a while, and enjoying a sweet, three-year relationship with an adorable cub named Greg.

Now, somehow, it's 2013 -- thirty years since the first time I heard about AIDS and twenty years since my own infection with HIV. I made it to my 50s and reinvented myself more times than Madonna. I've lived long enough to see one of my HIV meds go generic, to read articles about "the graying of the epidemic," and to witness the release of an Oscar-nominated AIDS documentary called How to Survive a Plague (2012). Over the past few years I've read multiple blogs written by newly-infected gay guys half my age who are promoting a new adage about living with HIV: it's all good. I confess that I wince a little bit when those bright-eyed, self-assured bloggers advise everyone not to worry because it's all manageable now, the drugs are better and everyone with HIV is going to live an average lifespan. Surely it will be better for their generation. I genuinely hope so. I just can't forget that it's been pretty devastating for mine -- innumerable deaths, discrimination, stigma, and that first wave of drugs that kept a lot of us alive but ravaged and disfigured our bodies in all kinds of unexpected ways while simultaneously elevating our lipids and spiking our blood sugar. Some, (okay, many) of us probably have Post-traumatic stress disorder. Me? I desperately want to avoid becoming a Tired Old AIDS Queen who waves his arms and shouts, "Hey, you HIV kids! Get off my history!"

Here's the thing. Right now, to me personally, it feels like there's a huge paradigm shift happening around gay men and the virus. It's feeling more and more like testing positive is becoming an acceptable, inevitable rite of passage. Get it. Get over it. Get on with your life. If I could illustrate what I think is happening with a meme or JPG, it might look something like this:

HIV Positive t-shirt

This is one of my Facebook friends. At first I thought he was being ironic. Now, not so much.

So, finally, that brings me back around to this phenomenon of HIV-positive gay men tattooing biohazard symbols on their bodies. I think it's ... curious. And a little troubling. I mean, I LOVE tattoos, but I'm still wrestling with the fact that the symbol stands for toxicity, contamination and danger. As a means of communicating your HIV-positive status to someone else with HIV, I don't think a tattoo is a surefire shortcut. On the other hand, if it starts a conversation that gets everybody on the same page before sex, I'm all for it.

Now, if you'll excuse me, I really need to go find a biohazard-tattooed poz dude half my age and have some raucous ... um, intimacy. It might be the only cure for Tired Old AIDS Queen Syndrome.

This article originally appeared on David Salyer's blog, Any Major Dude Will Tell You.

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This article was provided by Any Major Dude Will Tell You.
 

Reader Comments:

Comment by: jon (North Carolina) Tue., Jul. 16, 2013 at 8:51 am EDT
Thanks for writing exactly what I think & feel at this juncture & stage of my life with HIV/AIDS. I know several in my age group -- 60-something -- who would probably write the same thing. It's almost as if we are so few still alive, who actually remember the REAL stories, that it sometimes becomes surreal. And no one wants to hear it any more. The scary part, I suspect we have not heard the last from this virus.
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