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ADAP Waiting List Update: 58 People in 4 States as of December 13

December 18, 2012

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NASTAD recently redesigned its assessment of access restrictions including resetting the baseline for cost containment measures to April 1, 2012. We believe this will allow us to present a more accurate picture of the current state of ADAPs across the country.

As of December 13, 2012, there are 58 individuals on ADAP waiting lists in four states. Georgia eliminated their waiting list in November. Florida is currently enrolling new clients into their program and does not have any individuals on their waiting list; however, they have not formally closed their waiting list. Louisiana saw a decrease of 39 individuals on their waiting list. Idaho and South Dakota added seven and three individuals, respectively, to their waiting lists.

The potential for new waiting lists developing this fiscal year (ending March 31, 2013) continues. Three states currently report having capped enrollments. One additional state anticipates capping enrollment and another anticipates instituting a wait list prior to the end of FY2012. To see a list of states with access restrictions please visit NASTAD's website.

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ADAP enrollment is not static and ADAPs continue to experience increased strain on their programs due to increased efforts to identify new individuals living with HIV leading to increased enrollment, as well as re-engagement of individuals lost to care. Even with the recent receipt of federal Emergency Relief Funding (ERF), some states were not able to eliminate their waiting lists entirely.

House and Senate leaders passed and the President signed a six month Continuing Resolution (CR) that funds the government through March 2013 at the Budget Control Act level. This CR does have a minimal increase of 0.6 percent from FY2012 which may provide a slight increase to overall ADAP funding. However, formula calculations associated with the Ryan White Program may result in fluctuations in ADAP funding for various jurisdictions. The current fiscal cliff negotiations and the possible sequestration impacts on ADAP are not known at this time.

In an effort to streamline and assist clients in need of medications, the Common Patient Assistance Program Application (CPAPA) was launched on September 12, 2012 and is now available on the NASTAD website and the HRSA website. This single common application allows uninsured individuals living with HIV and/or their providers/caregivers to use one application to apply for multiple patient assistance programs that together provide an entire course of antiretroviral therapy. To see additional information on pharmaceutical company patient assistance or co-payment assistance programs, please visit the Positively Aware website or the Fair Pricing Coalition's website.


ADAPs With Current or Anticipated Cost-Containment Measures, Including Waiting Lists, December 5, 2012
ADAPs With Current or Anticipated Cost-Containment Measures, Including Waiting Lists, December 5


Factors Leading to Consider or Implementation of Cost-Containment Measures: ADAPs reported the following factors contributing to consideration or implementation of cost containment measures:

  • Increased clients/demand due to neighboring state's cost-containment measures/waiting list (22 ADAPs)
  • Reduced or insufficient federal ADAP funding (19 ADAPs)
  • Increased HIV testing leading to higher client enrollment (17 ADAPs)
  • Escalating drug costs (16 ADAPs)
  • Reduced or insufficient state ADAP funding (14 ADAPs)
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This article was provided by National Alliance of State and Territorial AIDS Directors. Visit NASTAD's website to find out more about their activities and publications.
 
See Also
2012 National ADAP Monitoring Project Annual Report: Module One (PDF)
After Five Years, ADAP Waiting Lists Have Been Eliminated; Unmet Need and Funding Uncertainties Require Continued Commitment
More on ADAP Restrictions and Waiting Lists

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