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When Disclosure Is Dangerous: Remembering Cicely Bolden

October 10, 2012

When Disclosure Is Dangerous: Remembering Cicely Bolden

Cicely Bolden is a name I won't soon forget. She allegedly disclosed her HIV status after having sex with a man. He responded by getting a knife and stabbing her to death.

When I heard the news of Cicely's death, I was going to write a simple piece about what a stark illustration this provided of the dangers of disclosure, as well as the close connection between HIV and violence against women.

But things have gotten more complicated in the past few days.

Murder is gruesome enough. But the heartbreak is in the details. Like how Cicely's young children came home to find their mother slaughtered. Like how the man who murdered Cicely demonstrated a profound misunderstanding of life, death, and HIV by allegedly explaining, "She killed me, so I killed her." Like the fact that Cicely found the courage to disclose where a lot of people can't, and instead of getting support or the opportunity to respond to questions about her personal situation or the chance to learn more about how to navigate a life with HIV, she died. And instead of her death opening up discussions on stigma and violence and health, we're now talking about whether she deserved it.


A Shameful Debate

The headline of an article in The Stir asks the cringe-inducing question, "Man Accused of Killing Girlfriend After She Told Him She Had HIV -- Do You Blame Him?" The author states that Cicely didn't deserve to die. But with that nicety aside, the author undermines the claim by using a lot of space to attack Cicely:

She betrayed him, she lied to him, and she put him in danger. Had she told him before they had sex, had she laid out the facts about being in a relationship with someone who's HIV positive, had they dealt with the disease together, instead of separately, maybe the day wouldn't have ended in death. It was unequivocally a reckless and selfish mistake.

Then there's the response I got to a tweet I sent out. I wrote, "Here's how disclosure can be unsafe: Man in US kills girlfriend after she reveals she has #HIV" and included a link to a news piece. Someone tweeted back, "very misleading Tweet!" followed by "Wait! she didn't reveal to him prior to having sex unprotected. Disclosure can be safe if you do it open and honestly."

Others on Twitter have been even more upfront with their prejudice, posting, "She deserved it!!"

These are examples of the issue being framed about whether Cicely's death was deserved. Was it Cicely's fault she was killed?

This is not the question we should be asking.

Here are some of the problems with making the issue about whether a woman deserves to die for disclosing her HIV after sex.


Disclosure Is Complicated and Never Fully Safe

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There is no protocol for disclosure that is guaranteed to avert violence. I wish it were as simple as following a three-step procedure. Step one, step two, step three -- open and honest disclosure completed, safe and sound! But the stigma surrounding HIV makes disclosure an emotionally fraught process. Even in the best of circumstances -- a very courageous person discloses to someone trusted in a comfortable space -- it's still terrifying. There is intense vulnerability involved in disclosure. And the fallout can be traumatic. For many, disclosure can lead to rejection and loss of friends and family. It can lead to the loss of economic support. It can lead to breaches of confidentiality, where a private disclosure is shared with others without the discloser's consent. It can lead to children being abused or taken from the home. And for women with HIV, many of whom have lived histories of violence, disclosure brings particular dangers from male partners. It can lead to verbal and emotional assaults. It can lead to physical and sexual violence. Women have been beaten, attacked with weapons, and raped after disclosing their HIV.

The potential negative ramifications of disclosure are wide and serious. Women who experience multiple layers of stigma may face more challenges. A Black woman with HIV like Cicely Bolden faces sexism, racism, and HIV-related stigma. In a study of women with HIV who face intersectional stigmas, women identified as African Caribbean described the ongoing stress brought on by experiences of racism: "I can go on for days with the racism. Everything just builds up." They articulated their high risk for violence: "Women with HIV often end up in abusive relationships, suffer from violence. People don't want to talk about that. There's no program specific to women with HIV in violent relationships." And they explained how "discrimination is everywhere once they know you have HIV." When women encounter stigma every day, and their energy is going into coping with this, and their sense of self-worth is reduced, disclosure becomes even more difficult.

Cicely Bolden likely had to work up a ton of courage to disclose her HIV. Even if her disclosure wasn't perfect, it should not be wholly dismissed or condemned. She didn't have to say anything. And let's say that she had disclosed prior to sexual involvement with the man who killed her. Would that have safeguarded her? Not necessarily. Her partner might still have subjected her to various kinds of violence. He might have hit her, insulted her, threatened her, blackmailed her, made her feel worthless, attacked her with a weapon. We just don't know. And when we remember that this man was willing to kill a woman, it seems even more ludicrous to suggest that she should have been able to prevent him from committing violence against her.


It Is Never Her Fault

I don't know why I have to explain once more that violence against women is not justifiable.

Oh, right. Because we live in a patriarchal society. Men have more power and women are devalued.

Fine, I'll say it again: Violence against women is not justifiable. Violence against women is rampant and embedded in our society, and we uphold a culture of violence when we suggest that a woman had it coming.

A woman dressed sexily does not have it coming. A married woman does not have it coming. A woman in a bar does not have it coming. A partying teenager does not have it coming. A sex worker does not have it coming. A woman walking down the street does not have it coming. A Black woman does not have it coming; a woman with HIV does not have it coming. Cicely Bolden did not have it coming.

There exists an abhorrent tendency in society to try to pin the blame for the violence on the women who suffer it. She must have done something. She must have asked for it. If she hadn't done that, it wouldn't have happened. Stop blaming the victim! Why do we ask what she could have done differently? Why don't we ask what he should have done differently?  What could the murderer of Cicely Bolden have done to prevent her death? Well ... he could have not killed her! He could have not responded with violence. He could have decided not to walk to the kitchen and pick up a knife and stab her. He could have asked questions about HIV. He could have asked about living with HIV. He could even have asked Cicely why she didn't tell him about her status before they had sex. He could have been upset, he could have been angry, he could have been confused. But he didn't have to become violent.

Women in general are vulnerable to violence. But HIV and violence against women have a tight relationship. Violence can lead to HIV. HIV can lead to violence. Having HIV makes women even more vulnerable. Apparently it's easy to blame a woman for the violence she experiences; when a woman lives with multiple layers of stigma, it's even easier; and when one of those layers is HIV, it's a breeze. But that's wrong. It is never her fault.


The Risks and Responsibility Are Shared (but Often Relationships Are Unequal)

"She killed me, so I killed her." Allegedly this is what the man who killed Cicely Bolden told police. But guess what! She didn't kill him. Obviously information about HIV is lacking here. So let's look at some, courtesy of the Canadian HIV/AIDS Legal Network.

  • The estimated per-act risk of transmission from an HIV-positive women to a male sexual partner through vaginal sex is 1 transmission in every 2500 sexual encounters.
  • When an HIV-positive women's viral load (i.e., the level of the virus in the body) is low, the risk of HIV transmission to her male sexual partners drops to 1.3 expected transmissions in 10 000 sexual encounters.4
  • When a condom is used, the per-act risk of transmission from an HIV-positive women to a male sexual partner through vaginal sex is at most 1 in 12 500 sexual encounters.

Here are some basics to glean: Biologically, the receptive partner is at more risk for HIV than the insertive partner. So generally a woman is more at risk of contracting HIV from a man than a man is of contracting HIV from a woman. This isn't to say that men have a low risk of getting HIV. But consider this: When a person with HIV is taking medication, the risk of transmission is greatly reduced because the viral load is lessened. And even better, when a condom is used, the risk is really, really low!

I don't know if Cicely was getting HIV treatment or even had access to it. I don't know what her viral load was. But I know that men often have the power to determine condom use and that if a condom had been used, there wouldn't need to be much worry about whether HIV had been transmitted. We should all take responsibility for our sexual health as much as we can and try not to make assumptions about the health of our partners. I certainly want prospective partners to disclose their sexual health to me honestly (and to be responsible about protecting their sexual health and getting tested regularly). But I know I can't rely solely on words, because words don't prevent the transmission of infection.


Educated, Not Panicked

Rates of HIV among Black women are high and increasing, and in some areas HIV is even a leading cause of death for Black women. In the United States, the rate of new infections for Black women is fifteen times that of white women and more than three times that of Latinas. In Canada, the rate of new infections for Black women is seven times that of the rest of the population. As a post on a new Facebook page called Cicely: Our Daughter so forcefully put it,

Black women are being allowed to die while the general public, in the words of Vito Russo, is "being panicked -- not educated, panicked -- into believing that we deserve to die."

So was it Cicely's fault she was killed? People are being panicked into asking this question. It's the wrong one.

Let's change the direction of the debate with better, more educative questions.

Why is HIV disclosure difficult and what do we need to do to change that?
Why are women subject to so much violence and what do we need to do to change that?
Why are Black women particularly hard hit by HIV and what do we need to do to change that?
Why is sexual health education falling short and what do we need to do to change that?

I would have loved to hear what Cicely thought of these questions. Let's reframe the discussion so we don't lose another Cicely Bolden.

-- Erin



This article was provided by Positive Women's Network BC.
 
See Also
TheBody.com's Just Diagnosed Resource Center
Telling Others You're HIV Positive
More News and Articles on HIV Disclosure

Reader Comments:

Comment by: sun (ga) Tue., Oct. 16, 2012 at 3:58 am EDT
why are you not adding the fact this woman cicely seduced this man knowing she is infected with a life altering disease HIV"A GUN"loaded then she used the gun and shot to kill on purpose.then she disclosed,no she tormented that man out of hatred she do not fear our Creator if she did she would not have done that to that weak man who became that lady victim,ok then she was stopped by him from spreading it to the next only GOD knows how many men,she was a straight predator and she was not goig to stop she said to him "you aint the first and wont be the last.now he couldve been like her and spread it to others but he couldnt he reacted to her actions.if we had a war goin on you could send cicely to the enemy so she can kill them slowly.now we all know the law of nature you recieve what you give good or bad.I just know if Cicely gave you Erin HIV or YOUR SON or anyone you love you would be taking of that blindfold to what that evil lady did to Larry and lord knows whom else their probably afraid of people knowing now they are possibly sick.Adultrey is wrong and so we must forgive ,but how can you forget something so painful as your health declining from a person who like Satan delibrately focused on destroying you.God works in mysterious ways ,if it took one act of sin to KILL the next act of sin to protect a innocent who GOD will use to uplift his glory for mankind then so be it.My sincere prayers go out to Larrys wife and children I truly pray Cicely children do not take after there moms mental and let God truly guide and protect them because they may be her blood but they belong to GOD Cicely was a vessel God chose to get them in this world and i know they got to love there mom but i pray GOD bless them with wisdom and healing.I pray Larry test negative and i know he did take the bait satan set for him but GOD made a way for King David who killed and as other Kings in the bible did,and God favored them then and now ,I pray Laryy ask for forgiveness n sin no more amen
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Comment by: marissa (Canada) Mon., Feb. 11, 2013 at 1:32 am EST
Your partner is not responsible for you not using protction. It was his body and his responsibility. In a sexual encounter each partner is responsible for his own body. The only cas where this does not apply is in the case of rape. It is not that hard to use a condom. They are $10 at the gas station.


Comment by: Nick (Charleston, SC) Fri., Oct. 12, 2012 at 5:29 am EDT
Should people with HIV/AIDS be punished for allegedly infecting another individual intentionally? The answer isn't clear cut. I work in healthcare and have worked in infectious disease. The problem is that fear & ignorance still persist within the healthcare community & this has great impact on the rest of society.

However,when a newly diagnosed female asked me how should I disclose. My response has been you have to feel out the individual your interested in and if he/she seems to want a serious relationship you have a responsibilty to tell them,keep it as a friendship or move on.

Because having sex with someone + then revealing your status = prison time or death.

I've advised young women not to burn someone just because they've been burned or try to infect others in hope they'll stay together because they both have it.

Yes, you will definitely be rejected by people;however, the fear of being alone doesn't give you the right to make decisions pertaining to other people's lives.
I rec'd AIDS & a kid as a parting gift of rape & sodomy. Telling you how I got it doesn't cure me but for some reason some people feel better about themselves. It's like saying your dumb & deserve it & you could've prevented this. Telling your status is like marketing you have to know your target group. When it came to testing the group 2 men wanted to marry me one stayed for 3yrs. & ran to GA w/o telling me. The 2nd still FB or txt he love's me(our dance)& I say ditto. Another's response was "we can still have sex?" One guy told me while watching 'Eyes Wide Shut'that if I had AIDS like the character that he would never touch me so I squashed that. Irony he has herpes & was trying 2 share (found his Valtrex)& said everyone has Herpes.
I always have The Talk which consist of family planning,condom usage,& asking if he has had or is currently being treated 4 an STD opening the door for both of us 2 come clean.
Please be wise & learn from the mistakes of others & your own.
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Comment by: Chris (ABQ, NM) Thu., Oct. 11, 2012 at 4:07 pm EDT
Erin,
You are absolutely right. I've seen the negative things said about Cicely, and I don't understand why. She's the victim in all this. I don't understand how anyone could be siding with the murderer in this case.
Loved your article, I'm sorry it had to be written.
-Chris
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Comment by: luci (ga) Tue., Oct. 16, 2012 at 4:19 am EDT
Chris all ive got to say is since you can not see anything wrong with cicely knowingly giving HIV in her evil mind to Larry,may you meet someone who does the exact same game that evil lady pulled on Larry on you Chris and trust me you are going to experience this action in your lifetime ,then we will see if you can see then im sure dying slowly knowing someone hurt you on purpose,you,ll realize what Larry went through killing that seductive demon fornicating agent of satan,what you think God took her to heaven knowingly giving another human being a death sentence and laughing stating "your not the first and will not be the last".babe wake up


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