What? Adherence? What About It?
October 8, 2012
Being HIV positive is not fun, at least not for me. At some point, a person who is in my shoes starts thinking about the process of medications, doctors visits and everything in between that they have to do to keep themselves as healthy as possible. I believe that this is possibly one of the greatest stressors for people with any chronic illness.
I typically tend to go from well to having no energy throughout the day constantly. After awhile, it becomes tiring trying to keep up with everything. So I have contemplated stopping medications due to just an abundance of stress I experience on an off-and-on basis. Grant you, my cocktail worked great for me. I have remained undetectable for years and my cd4 count is in a good range. However, I wonder if all the medical problems I am experiencing are related to taking them, sort of as a long term effect. I don't know. That is purely my opinion not that it may be correct at all. Sometimes I wonder when is enough, enough. Maybe I am just stubborn and tired of following the same routine. I am used to change and I love it.
I am very aware of the challenges of not taking medicines especially when I have been through the wringer with a variety of health issues in the last few years. I have always had a strong belief in getting advice from someone who knows what it is like to be in your situation. I was curious on the opinions that would come forth once I asked my question on Facebook.
All these lovely individuals are absolutely right. My medication is a lifeline and I really loathe the thought of getting worse. I love the idea but I cant do that I suppose. My life is too beautiful to just go out like that. Way too beautiful, besides I have worked too hard in my life to turn back now. It is great to know I am not alone in this fight. Sometimes having a reminder that others understand is the reward you need just to be kind to yourself and do what is right for YOU.
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Comment by: Marie
Fri., Jun. 14, 2013 at 1:37 pm EDT
Thank you for your blog. I have missed hearing my words come from another woman's mouth. All but one of my positive female friends is gone, & I appreciate everything you say here. I know exactly what you're talking about. :-)
Comment by: Virtueouswoman4u
Thu., Jan. 3, 2013 at 11:51 pm EST
I am newly diagnosed with HIV,I found out the morning of my fiancÚ's memorial services. In 7 days my world as I had know it ,had completely crumpled. My fiancÚ was killed in a truck accident and while boxing up his things at his brothers house, I found a note book and pamphlet talking about living with HIV, so the next morning I got up and went to be tested. It came back positive, later on that night I had to speak at his memorial, it was one of the hardest things I have ever done, holding in my anger, my disgusts, my hurt that the person who told me they loved me, they would always have my best interest at heart, had lied to me and now I had to play the role of the grieving fiancÚ. All I wanted to do was scream to all our family and friends, this guy was a jerk, he lied, he deceived, he had no regard for me or our girls( my daughters and granddaughter) and now he has left me here to deal with this alone!
Comment by: Bafedile
(South East Asia)
Sat., Oct. 13, 2012 at 2:40 am EDT
I stopped my medication the reason was obesity and my breast growing huge, my viral load took a ridiculous hike, my CD 4 count hit rock bottom, I had terrible shingles and I was given few months before I progressed to AIDS. I changed my cocktail since my body developed resistance. My advice is, don't ever leave your meds, that's your licence to life..
Comment by: PozYogi
Thu., Oct. 11, 2012 at 8:47 pm EDT
Hi, I hear your plea. I would like to recommend you try yoga (if you haven't). I have been poz since 1997. And I'm in great shape, no side effects, never get sick, and have lost of energy. I have two kids (7 & %), so energy is extremely important. And I contribute all this to yoga. It not only helps my body to deal with the meds I've been taking for almost 10yrs but the way it helps to keep my mind in the present, and connect with my body is what has helped most. Stay on course. Peace.
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