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Don't Think You Can't Learn More About HIVBy Alive2 September 21, 2012 When I came to this site I wasn't as knowledgeable about much of anything involving HIV/AIDS; I wasn't sure what the numbers meant, much less how they affected my health. I was more worried and was just looking to be able to make some sense of what I was facing, and find out how much more I was going to fall apart. I hadn't realized yet that having HIV wasn't going to kill me as I thought it would. After all, when I was a younger man the whole issue wasn't if it would kill you, but how long you had to live with it before it eventually did. I felt I was facing imminent death at a much faster pace due to HIV. Sure seems like eons ago now that I'm more knowledgeable about the issue and how we can strive to live a long life with the help of our medications and the facts the doctors have through researchers and scientists. It took a long time to come to grips with my diagnosis, more so because of the fears through not having the answers to the many questions I had at the beginning. After many days turned into months I began to start to know enough information to become my own best advocate through questions to people here, and the many questions I posed to my doctors. Many of the people I met through this site were very helpful -- some more than others; some were just plain wrong on certain issues. But soon I realized those who were wrong were either misinformed or, like me, just didn't know. Although I learned through this site that sometimes you can count on some of the information on the Internet, meaning the direction the doctors on this site will advise us on; but our personal doctors are our best chance because we don't have to wait for an answer as long as we may for a question to be answered on TheBody.com, due to the high volume I'm sure the online experts face. Some of us may not have a doctor of our own and we turn to the site to get some kind of answer. There is no substitute for a personal doctor of your own, but I do trust these doctors here without question; they are very knowledgeable and honest. I'm glad I had enough determination to continue learning and doing what's best for myself, and in doing so, I hope to give an honest thought and opinion to those who have the desire to listen and want to get more out of their lives. Sure I still don't know everything I want to, but, I'm open to learning more too. And if God gives me time I will, and I too will pass on anything I learn -- provided it's truly correct and relevant to what's asked of me. Get email notifications every time this blog is updated.
Comment by: Scott
(Seattle)
Fri., Sep. 28, 2012 at 12:54 am UTC Guess I'm one of the just plain wrong- but I'm still here because I believe there are still questions to be asked of current treatment protocall.In MY opinion and experience HIV cannot be the only cause of AIDS but is a co-factor.When mainstream cuts off any further investigation and research money only goes to the science research that supports HIV=AIDS whose of us living with AIDS are done HARM which the medical profession is not supposed to allow!! All that is acomplished taking HIV meds is slowing a terminal illness-period. All the hype about turning AIDS to a chronic illness or extended life is THEORY. As a person DYING of AIDS I want all research options on the table not the POLITICALLY CORRECT flawed research that only funds science that accepts a theory HIV=AIDS as the basis for all research. Thank You and I'll be surprised if this comment is allowed but hope it is. Replies to this comment:
Comment by: alive2
(buffalo ny)
Fri., Oct. 5, 2012 at 12:53 pm UTC i was not trying to sound smug about hiv/aids. my reference was to some that think alternative medicines and just not taking medicines early enough were wrong for waiting. or those who choose to not protect themseles from contacting hiv/aids were completely wrong on their ideas. i have no issue with thinking outside the box in any research in all of medicine, because the day day the scientists and researchers accept failure we all fail everywhere, and not just those of us with hiv/aids. i respect everyone has an opinion, but, you misinterpreted my words. as for hiv being a co factor thats your thinking, mine is if there are any factors they should all be explored, not limiting to just controlling it. have a good day sir.
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The Knowledge I Didn't Want  Alive2 I'm a 44-year-old married male. I have a wife and four children; all but myself are HIV negative. Learning an alarming amount about medical issues and how to deal with them. How I'm trudging along is slow, but forever onward. Sometimes still, but not yet so forever. Learning about growing with HIV, both mentally and physically. Check out Alive2's posts on TheBody.com's Bulletin Boards Subscribe to Alive2's Blog:
Recent Posts:
May 3, 2013 - The Long and Ever-Troubled Road: A Blog Entry by Alive2
December 24, 2012 - Fighting Holiday Blues and Family Challenges: A Blog Entry by Alive2 October 23, 2012 - People Are More Terrifying Than HIV/AIDS: A Blog Entry by Alive2 September 21, 2012 - Don't Think You Can't Learn More About HIV: A Blog Entry by Alive2 August 3, 2012 - And Then I Found TheBody.com: A Blog Entry by Alive2 A Brief Disclaimer: The opinions expressed by TheBody.com's bloggers are entirely their own, and do not necessarily reflect the views of TheBody.com itself. |
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