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This Positive Life: Life After Being Cured of HIV

An Interview With Timothy Brown

September 5, 2012

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Olivia Ford: Were you connected to a community at this time? Were you surrounded by other people who were living with HIV? Did you have support around that, and support when you were getting treatment?

Timothy Brown: I had friends who were HIV positive. And basically, as sex partners, I searched for people that were also HIV positive because I didn't want to be responsible for infecting anyone and continuing the cycle.

Actually, at the time when Kaposi [sarcoma] was big, a lot of people had it, I had actually looked for people that had noticeable signs of Kaposi, because I knew that they were positive. It was kind of weird. I was kind of into touching it.

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Olivia Ford: Really?

Timothy Brown: Yeah, yeah. That may sound strange.

Olivia Ford: No, it doesn't sound strange. Why do you think that is, though? Just as a connection, or just to see what the lesions feel like?

Timothy Brown: For the connection, yeah.

Olivia Ford: That doesn't sound strange at all. But when you were going through treatment, did you have people who were supporting you?

Timothy Brown: Definitely. Yeah. in 1996 I met this man named Michel Dessner -- he's out to the public so people know the name. I found out that he was positive as well, and we ended up being together for 13 years. That's my longest relationship, until now.

He was a big part of my support network. I wasn't really into groups. I didn't really like them. I think I was too shy. I'm not anymore.

Olivia Ford: How were you told, basically, that it seemed as if you were functionally cured of HIV? And what was your reaction? Was it a sudden moment? Were you told, in a way? Or did you know that this was something that was coming?

Timothy Brown: I think I asked about it because that had been like the major part of Gero Hütter's study. I was a guinea pig. I was, like, "OK, I might get cured."

I just heard recently that I was basically cured three months after my stem cell treatment. I can't remember how long after that I found out.

Basically, I knew that Gero Hütter was working on publishing a paper about the case through The New England Journal of Medicine. So I asked him about that. And it was rejected at first (Jeff Laurence gives a different account).

Gero told me that he refused to change the article, and just turned it in the way that he had already turned it in. I think he wrote back, "No," he's not going to do it, not going to make changes, because he thought it was perfect. And they eventually accepted it.

I don't think I kept up on that, but I don't think I really believed it until the article was published.

Olivia Ford: And how did you feel then?

Timothy Brown: Great. Well, I was more interested in my recovery. After the first transplant, I did very well. I went back to work. I kept going to the gym, and got in really good shape. I liked my body for the first time in my life. But after the second one, the second one didn't go as well. And I had a lot to do to recover from that. So I wasn't as concerned about the clinical things.

Olivia Ford: Fast forwarding through the period of time in which us, out in the world, knew you as "the Berlin patient," and then eventually you came out with your name, and you became a public person in the community. I'm wondering, have you ever experienced any negative responses or negative backlash from individuals in the community when you go out into the world? Does anyone ever react negatively to meeting someone who's been cured of what they live with?

Timothy Brown: Not really. The patients, they tend to love to meet me. I did have one scientist, who I thought was my friend -- he had treated me very well when I met him, and took care of me while I was there -- but afterwards, he wrote this really sensationalistic article, and also pretty much a very sensationalist blog. After he was criticized by other scientists. He defended it, saying that he had the right to do that. And that hurt me. I was hurt by that.

Olivia Ford: What's the best response you think you've ever gotten from someone out in the community when they meet you or when they hear who you are?

Timothy Brown: I was told yesterday by Rep. Nancy Pelosi that I am her boss, which was lovely. She is actually my rep in my district, that's our connection. And she's a very important person because she was Speaker of the House. Now she's the minority leader. But it was a very nice comment.

Another comment was from a Republican -- not my party. He said that, "People talk about preaching to the choir; you're the conductor." That was beautiful.

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This article was provided by TheBody.com.
 
See Also
Eliminating HIV/AIDS: How We'll Get to Zero
Can HIV Infection Be Cured?
More Research on a Cure for HIV/AIDS
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Reader Comments:

Comment by: scott (london ) Mon., Nov. 17, 2014 at 1:04 pm EST
Im gay and enjoy my life i have been tested about ten times always come back negative .. u have to protect yourself always use condoms ... sex is fun and loving but please eveyone out there be carefull .. and for all hiv people i hope medication improves in the years ahead ..
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Comment by: James (New jersey) Sun., May. 25, 2014 at 3:43 am EDT
Dr sebi proved in a us court of law in the 80's in a case filed against him by the us attorney general to have cured aids in 5 different people. He's also cured many other diseases including my favorite to cure herpes. Look it up. China is the only country to embrace his anti big pharma cures
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Comment by: nakahima w (uganda east africa) Fri., Dec. 28, 2012 at 4:23 am EST
finally it mighty be over but when will it reach Africa????????????????????????????????? Africa has suffered for long with this scourge of HIV can the research going on in the developed countries of the west be brought to Africa also
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Comment by: Am Grace (Africa, Namibia) Fri., Oct. 19, 2012 at 7:47 am EDT
Am on treatment for 3 years now. Changed from AZT to Tonofevir in January thise year, but am still lossining wait in my legs and arms and my vains are showing out like wires and these for a woman its so embarrassing. Plz help, thanks
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Comment by: Butch McKay (Ft. Walton Beach, FL) Tue., Oct. 16, 2012 at 12:47 pm EDT
Great interview Olivia. The highlight of the International AIDS Conference for me was getting not only to meet Tim, but to get to spend a little time with him and learn so much about his journey. He is truly an amazing man and remains so humble and grateful. He wants everyone cured and will work to make it happen. Thanks Tim, you are my hero. I pray you are successful in your quest for the cure. Bless you my friend.
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Comment by: pedro (amsterdam) Sun., Oct. 14, 2012 at 4:11 am EDT
I got to know one of the researchers of Timothy's case in Berlin. He was actually kinda jackass mocking at his sexuality most of the time during his talk... I really hope better things come to him. He is truly a hope, given that big pharma wants to compromise with a cure instead of highly profitable antiretrovirals, which only a few have access to...
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