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ADAP Waiting List Update: 1,125 People in 7 States as of August 9

August 10, 2012

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As of August 9, 2012, there are 1,125 individuals on ADAP waiting lists in seven states. With the recent receipt of the ADAP Emergency Relief Funding (ERF), many states report continued decreases in the number of individuals on their waiting list this week. Even with the receipt of the ERF, many states are still experiencing increased demand for their programs. For example, South Dakota instituted a waiting list on August 3, 2012; their previous waiting list was eliminated on August 25, 2010. Wyoming, which has a capped enrollment on their program, reports that they anticipate instituting a waiting list by the end of FY2012 (March 31, 2013). To see a list of states with access restrictions please visit NASTAD's website.

In July 2012, the Department of Health and Human Services (HHS) Secretary, Kathleen Sebelius, announced the release of $69 million in FY2012 emergency funding for ADAPs, including $35 million in new funding that President Obama announced on World AIDS Day (2011) and $40 million in continued emergency funding from FY2011. All applications were funded at the requested amount; 22 states applied for continuation funding and 15 states applied for the new funding from World's AIDS Day. The emergency funding has resulted in the reduction and elimination of some ADAP waiting lists and other cost-containment measures currently in place. And yet, ADAP enrollment is not static and other ADAPs continue to experience increased strain on their programs due to new enrollment of individuals based on increased efforts to identify new individuals living with HIV and re-engagement of individuals lost to care as part the National HIV/AIDS Strategy. ADAPs will continue to require additional funding to keep new waiting lists from being implemented. Two ADAPs currently anticipate the need to implement new cost-containment measures or a waiting list during the ADAP FY2012 grant year (began April 1, 2012).

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The House Appropriations Subcommittee on Labor, Health and Human Services, and Education passed a FY2013 Labor-HHS-Education Appropriations mark that is $6.8 billion less than FY2012 funding levels. ADAP received an increase of $67 million dollars for a total of $1 billion, which matches President Obama’s request. The House Subcommittee allocated $2.3 billion for the Ryan White Program, which is a cut of $47 million from FY2012 funding levels. Due to the increase in ADAP and this overall cut to the total Ryan White Program, actual cuts to the Ryan White Program will amount to approximately $114 million. The Senate version of the bill provides a $30 million increase for ADAP. House and Senate leaders have agreed to a six month Continuing Resolution (CR) that will fund the government through March 2013 at the Budget Control Act level, which will be approximately flat-funding from FY2012. Both chambers will vote on the CR when they return after the August recess.

ADAPs work with clients to ensure they receive medications through other programs while they are on waiting lists. To see information on pharmaceutical company co-payment assistance and patient assistance programs, please visit the Positively Aware website or the Fair Pricing Coalition's website.

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This article was provided by National Alliance of State and Territorial AIDS Directors. Visit NASTAD's website to find out more about their activities and publications.
 
See Also
2014 National ADAP Monitoring Project Annual Report (PDF)
ADAP Waiting List Update: 35 People in 1 State as of July 23
More on ADAP Restrictions and Waiting Lists

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