HIV, Neuropathy and More: Avoiding Becoming a Nervous Wreck
140 Ways to Hate ... Just One to Despair
September 16, 2012
One of the few advantages of getting old is knowing that you really don't have to put up with other people's crap anymore. That said, the first hate mail that hit my inbox shocked me more than I expected. I almost gave up blogging there and then; the hurt was both unexpected and unjust and I had to take several breaths and remind myself that this happens millions of times a day across the world. Then I wondered why people feel the need to vent their hatred on the Internet and what could be done about it.
Dem Bones, Dem Bones, Dem Dry Bones
August 31, 2012
You know whatever they say about 50 being the new 40 and 60 being the new 50, well that's all fine and dandy for the super-fit, senior gym bunny, but if you're HIV positive it can be a very different matter, or at least in my case! From my point of view, 50 was the new 60 and 60 was the new 70 and now every new birthday seems to increase in dog years.
They May Not Be Your Best Friends ... but Doctors Need Love Too! Part Two
July 10, 2012
People have to find the happy medium between passive respect for the doctor and yelling at him or her because you don't hear what you want to hear. We also all need to make adjustments in our approaches and learn to use the wealth of new information available in such a way that a consultation with a doctor becomes a constructive and rewarding process for both sides.
They May Not Be Your Best Friends ... but Doctors Need Love Too! Part One
July 3, 2012
I often find myself having conflicting feelings about doctors. I've got several specialists, who take care of various complaints both pre and post-HIV and a home doctor who deals with every-day ailments and tries to keep an eye on the big picture too. Sometimes I'm enormously grateful that I live in a country where that's possible and where I don't have to pay extra for any basic medical services. Other times, I seethe with frustration at mistakes, or wrong diagnoses, or misguided treatments.
Guinea Pigs, Crash Test Dummies and HIV/Neuropathy Treatment
June 14, 2012
It's hard to estimate the impact of the latest news to hit the neuropathy forums (what! we can't have trending stories too?) but anyone who has recently Googled the words HIV and Neuropathy has been confronted by dozens of links referring to the news that Lyrica (or pregabalin) is pretty much useless for treating neuropathic pain. It's not often that the internet neuropathy community (normally a mild-mannered, stoical, too-busy-dealing-with-symptoms folk) spreads a story so quickly across their websites, blogs, forums and chat rooms and when it happens, it's for a good reason!
Viral Politics, or How They'll Spin You Into Sin!
May 31, 2012
Poorer regions of the world have never been given so much money and support to combat the spread of HIV as during the last ten years, yet despite massive financial back-up for health initiatives, HIV prevalence and rates of infection are increasing in those areas and not shrinking! As a result, while the epidemic is weaker in terms of global statistics; it is expanding and intensifying in specific areas.
She Worked Hard for the Money: Donna Summer, 1948 - 2012
May 17, 2012
For those who partied in the '70s and '80s, the name Donna Summer evokes nostalgic memories of hot discos throbbing to the heat generated by 'I Feel Love', 'Love to Love You Baby', 'Hot Stuff' and Last Dance', to name but a few. This woman put sex and disco together and instigated a musical genre, which belonged to gays and was only later adopted by the world at large. She was the musical 'love-child' of Georgio Moroder and Pete Bellotte and was the voice that fronted a new techno-synth and electronic sound that was distinctly European in flavour and first broke there too in the early '70s. The icing on the 'Macarthur Park' cake went into meltdown however, when in 1983, La Summer opened her newly converted Christian mouth and made some remarks, which instantly alienated the gay community and thus her strongest fan base. Whether the things she said were misquoted or not, suspicions were aroused which refuse to go away.
"Dear Dave ...": The Virus Writes Back!
April 29, 2012
Are you surprised? Seriously! How can you be surprised? You knew all about me before we met and let me remind you ... you knew what to expect! How many friends had I killed, with you watching me do it and yet still determined to get into bed with me eventually? Oh please, don't tell me you never meant for this to happen! You pretty much knew how to avoid it, or am I wrong?
Crimes and Generations, or How We Throw Our Elders Out With the Bathwater
April 19, 2012
Societies across the world will be facing many challenging situations over the coming years but one of the greatest may well turn out to be one of the most shameful; the hidden and unrecognized, wide scale abuse of our elderly. What does it mean now and what will it mean in the future for many people in the HIV generations that have been saved from an early death but may be condemned to a miserable last few decades?
HIV, Neuropathy and More: Avoiding Becoming a Nervous Wreck
English but living since 1986 in Amsterdam, the Netherlands. HIV+ since 2004 and a neuropathy patient since 2007. I've seen quite a bit, done quite a bit and bought quite a few t-shirts if you know what I mean; but all that baggage makes me what I am today: a better person I believe, despite it all.
Arriving on TheBody.com, originally, was the end result of getting neuropathy as a side effect of the medication, or the virus, or both. I found it such a vague disease and discovered very little information that wasn't commercially tinged, or scientifically impenetrable, so I decided to create a daily Blog and a website where practical information, hints, tips and experiences for patients could be gathered together in one place.
However, I was also given the chance to write about other aspects of living with HIV and have now contributed more articles about those than about neuropathy. That said, neuropathy remains my 'core subject' although one which unfortunately dominates both my life and that of many other HIV-positive people.
I'm not a doctor or qualified medical expert, just someone with neuropathy and HIV who has spent the last few years researching the illness and trying to create information sources for people who want to know more.
Subscribe to Dave R.'s Blog:
September 2, 2014 - I'm Positive, I'm on Treatment, I'm Undetectable, So Get Off My Case! A Blog Entry by Dave R.
June 23, 2014 - When Push Comes to Shove ... How Far Would You Go to Eradicate HIV? A Blog Entry by Dave R.
May 14, 2014 - The Painful Reality of Neuropathy: A Blog Entry by Dave R.
March 3, 2014 - The Bug Chaser's Tale: An Interview -- A Blog Entry by Dave R.
January 22, 2014 - Please Don't Leave Me Because I Need You: An HIV Take on Separation Anxiety -- A Blog Entry by Dave R.
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