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Know Where to Look: Consider the Source When Searching for Information

September/October 2011

If you've just discovered that you're HIV-positive, you might turn to the Internet for help. But if you don't know where to look or whom to trust, you could find yourself confused -- and misinformed. Remember, just because you found something online doesn't make it true or accurate. Always consider the source! Here are some online sources you can trust:

General AIDS Information

Operated by NAM, a community-based organization in the United Kingdom, NAM offers informational booklets and more than 100 factsheets. NAM's publications are evidence-based and reviewed by two international medical panels and one panel of people living with HIV.

An easy to navigate and understand website that allows you to quickly find answers to questions about the basics of HIV and AIDS, available treatments, and other resources.

AIDS InfoNet
The InfoNet originated as a resource in both English and Spanish for residents of New Mexico, but has become an international resource of information on HIV/AIDS.

The Body
This comprehensive website provides up-to-date information on current events, treatment issues, and profiles of people living with HIV/AIDS.

Provides HIV treatment information for healthcare professionals and people living with HIV.

AIDS Treatment Data Network (ATDN)
HIV and hepatitis treatment education and information, as well as advocacy, case management support and counseling, and other services in both English and Spanish.
phone: 800-734-7104

Positively Aware
The website of Positively Aware magazine. Features exclusive online-only content not found in the print version of the magazine, as well links to the digital edition of the publication and a weekly email newsletter, PA E-News.

PoWeR -- Program for Wellness Restoration
This comprehensive website offers links to patient-friendly information about ways to improve HIV treatment response, side effects, and quality of life. The organization also advocates for ethical and compassionate research protocols in the areas of HIV treatment, HIV cure, aging, side effect management, and complementary therapies.

Project Inform
Treatment information and action alerts are available via the Internet, hotline and/or snail mail.
205 13th Street, #2001
San Francisco, CA 94103
phone: 800-822-7422

Government Sponsored
The federal government's AIDS website is a gateway to federal domestic HIV/AIDS information and resources, including prevention, testing, treatment, and research programs, policies, and other resources.

Current HIV treatment guidelines established by the U.S. Dept. of Health and Human Services (DHHS), as well as information on clinical trials.
P.O. Box 6303, Rockville, MD 20849
phone: 800-HIV-0440 (448-0440)

CDC (Centers for Disease Control and Prevention)
Counselors are available 24 hours a day, seven days a week, to answer questions about personal health issues, including HIV/AIDS and other STDs. You can also register to receive regular e-mail updates.
English: 800-342-AIDS (342-2437)
Spanish: 800-344-SIDA (344-7432)

African Americans

Black AIDS Institute
Weekly news updates and treatment information specific to African Americans and other people of color.
phone: 213-353-3610
1833 W. 8th St., Suite 200
Los Angeles, CA. 90057

The HIV awareness campaign of BET.
phone: 866-RAP-IT-UP (727-4887)


Sisterhood Mobilized for AIDS/HIV Research and Treatment (SMART)
Provides treatment and prevention education and support for all women living with HIV/AIDS.
1751 Park Ave., New York, NY 10035
phone: 212-633-2500 ext. 601

The Well Project
An initiative developed and administered by women living with and affected by HIV.

Women Alive
A treatment focused, non-profit organization designed for and run by women living with HIV/AIDS.
1566 Burnside Avenue,
Los Angeles, CA 90019
phone: 800-554-4876

Gay Men

Gay Men's Health Crisis (GMHC)
A volunteer-supported and community-based organization located in New York City providing treatment education and information, peer counseling and support. GMHC is also heavily involved in activism and advocacy regarding social and policy issues specific to the general health of gay men and lesbians. The agency also publishes Treatment Issues, a quarterly publication.
446 W. 33rd St.
New York, NY 10001-2601
phone: 800-AIDS-NYC (243-7692)
To quote their website, "a field guide to gay men's health with all the gay, sexy, and healthy you can take. Physical, sexual, mental, and emotional health, plus resources around communication, intimacy, and spirituality."


The Osborne Association's AIDS in Prison Project
The Osborne Association operates a broad range of treatment, educational, and vocational services for people involved with the adult criminal and juvenile justice systems, including prisoners and former prisoners, their children, and other family members.
809 Westchester Ave.
Bronx, NY 10455
phone: 718-378-7022

Project UNSHACKLE and the HIV/AIDS Prevention Justice Alliance are two groups that grew out of CHAMP, the Community HIV/AIDS Mobilization Project. Prison issues are a primary concern.
The HIV Prevention Justice Alliance is now hosted by the AIDS Foundation of Chicago.
Project UNSHACKLE is now hosted by VOCAL.

Other Websites

Adult AIDS Clinical Trials Group
The largest HIV clinical trials organization, AACTG plays a major role in defining the standards of care for treatment of HIV infection and opportunistic diseases related to HIV/AIDS around the world.

The AIDS Treatment Activists Coalition
A national coalition of AIDS activists working together to end the epidemic by advancing research on HIV/AIDS.

The Fair Pricing Coalition
A national coalition of activists working on pricing issues for HIV and HCV drugs.

The Henry J. Kaiser Family Foundation
Statistics, fact sheets, daily updates, webcasts.

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This article was provided by Positively Aware. It is a part of the publication Positively Aware. Visit Positively Aware's website to find out more about the publication.
See Also
Day One With HIV: Finding Out Your Status, in Your Own Words's HIV/AIDS Resource Center for the Newly Diagnosed
More "Just Diagnosed" Info

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