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HIV/AIDS Blog Central

My Fabulous Disease

I'm Gonna Wipe That AIDS Right Off of My Face


A Video Blog

By Mark S. King

July 26, 2011

Several years ago, I disclosed to someone that I was HIV positive before I agreed to his invitation for a date. "Yeah, I know," he casually replied, and then he looked a little embarrassed, as if he shouldn't have said it. And I knew exactly why. He had recognized my HIV status because of the appearance of my face.

I was crestfallen, and felt something close to shame, certainly embarrassment. Why is it that I can produce this blog, proudly march with HIV POSITIVE on my t-shirt in gay parades, and even write a book about coming of age during the dawn of AIDS -- but being viewed as positive because of my face upsets me so much?


Episode 36: I'm Gonna Wipe That AIDS Right Off of My Face

When I choose to disclose, privately or publicly, it's on my terms. I choose how and when to tell you. I want you to know.

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Facial wasting (known as lipoatrophy) takes that choice away. It's as if the disease is intruding, is taking the upper hand somehow, and worse, taking away my decision about when and to whom I disclose my status. And as much as I want to claim "Most Out Poz Guy Ever," I don't like wearing HIV across my face.

Most of us know "the look." It's the telltale gullies and sunken cheeks associated with longtime HIV infection or (more likely) medications. Many of my friends and colleagues in this struggle suffer from it, and they may either be comfortable with it, proud of it as a badge of honor, or simply resigned to it. I salute us all, whether our features tells our HIV story or not. But meanwhile, I'll do what I can to wipe that shit off my face.

A few years ago I visited Dr. Gerald Pierone in Vero Beach, Florida (regarded as the leading expert in fillers and one of the Ask the Experts team at TheBody.com), and I documented that first visit and my facial filler treatments in a video blog, Treating My Facial Wasting. In that video I focused on my own attitudes -- Was I ashamed? Trying to look younger? Simply vain? -- and on the procedure process itself. Nearly a year later I revisited Dr. Pierone and got another treatment and documented it in my video blog, A Facial Wasting Update.

In this video episode of My Fabulous Disease, I revisit Dr. Pierone for a new treatment with the facial filler products Sculptra and Radiesse. While I'm there, I learn enough about Artefill, the only FDA-approved permanent facial filler, to make me strongly consider the product the next time my face needs fluffing.

This video also focuses on very specific information about the actual costs of facial filler treatment. Both Sculptra and Radiesse have patient assistance programs that significantly reduce the cost of the medication, but you still need to pay the physician to do the procedure, and that price can vary. Tip: don't allow any street corner vendor (or gym or even doctor office) to inject stuff into your face. Do some research and above all, find a physician who has done this many, many times (over 500 would be great). Be a smart shopper and empowered patient and ask about their experience level first.

I hope you find the video helpful and that you aren't too afraid of needles!

In the meantime, my friends, please be well.

Mark

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Visit Mark's live blog at www.MyFabulousDisease.com.

See Also
An HIVer's Guide to Metabolic Complications
TheBody.com's Lipoatrophy Resource Center
Ask a Question About Facial Wasting at The Body's "Ask the Experts" Forums
More Personal Accounts of Facial Wasting (Lipoatrophy)

 

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VIDEO BLOG:
My Fabulous Disease


Mark S. King has been an active AIDS activist, writer and community organization leader since the early 1980s in Los Angeles. He has been an outspoken advocate for prevention education and for issues important to those living with HIV.

Diagnosed in 1985, Mark has held positions with the Los Angeles Shanti Foundation, AID Atlanta and AIDS Survival Project, and is an award-winning writer. He continues his volunteer work as an AIDS educator and speaker for conferences and events.

Speaking engagements: Mark King is available to speak to groups. Contact Mark about speaking at your organization or event!


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A Place Like This by Mark King

View an excerpt of Mark's book

To read PDF, click here


Interviews With Mark:

Mark King Looks Back at the AIDS Epidemic's Darkest Hour in the U.S. (May 14, 2008)

This Month in HIV: Crystal Methamphetamine and HIV (August 2007)


Articles by Mark:

Meth Burial (May 2008)

Outliving My Father (May 22, 2001)
Mark recounts how years of caring for friends dying of AIDS prepared him for taking care of his dying father
From The Advocate

AIDS Always Benefits from What We Don't Talk About (April 2001)


For the rest of Mark's articles, click here.


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The opinions expressed by TheBody.com's bloggers are entirely their own, and do not necessarily reflect the views of TheBody.com itself.

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