Three Decades of HIV/AIDS, Part Two
Ignorance, Fear and Hysteria (1985-1990) and Activism (1990-1995)
By Bob Frascino, M.D.
June 30, 2011
Lyndon LaRouche sponsored a California ballot initiative calling for AIDS quarantines. Fear became woven into the subtext of American pop culture. Fatal Attraction, a film that screamed "screw around and it will come back to kill you" was a box office hit. In a nod to the dangers of sex, the producers of the James Bond movies decided the super-spy would bed only one woman per picture.
In 1986 Surgeon General C. Everett Koop issued a message to every U.S. household.
His call to action recommending that sex education begin at the earliest grade possible backfired and outraged his conservative base. The report stated "It is time to put self-defeating attitudes aside and recognize that we are fighting a disease, not people." He was the very first government official to tackle the problem. Unfortunately most Americans were not ready to face this reality head on.
In 1987, six years after the discovery of HIV/AIDS, President Reagan finally uttered the word "AIDS" for the first time in public. The FDA approved AZT, the first AIDS drug, at a cost of more than $10,000 per year, making it the most expensive drug in history. Also in 1987, Liberace died.
And AIDS activism was born as Larry Kramer founded ACT UP (AIDS Coalition to Unleash Power).
Meanwhile three young brothers, all hemophiliacs infected with HIV, returned to school after being banned for a year. Shortly thereafter their home was burned to the ground by arsonists. 1987 must also be remembered as the year the Helms Amendment was passed by Congress. It prohibited federal dollars for most AIDS-education efforts, effectively blocking almost all effective HIV prevention for many years.
By 1988 there were 82,764 AIDS cases with 46,344 AIDS deaths. Among them Wayland Flowers.
Robert Mapplethorpe and Amanda Blake succumbed to AIDS the following year.
By 1991 AIDS cases had skyrocketed to 161,073 with 100,813 lives prematurely snuffed out. These included Keith Haring, Halston and Ryan White.
Hysteria, fear and ignorance were now rampant. It took fearless leaders in the entertainment industry, such as Elizabeth Taylor and Elton John, using their celebrity to get out important messages, such as "you can't get it from kissing." The purveyors of pop culture were beginning to understand that where governmental policy (or indifference) had failed, powerful messages in the media could succeed.
Steve and I have a larger-than-life portrait of Liz adorning one of the guest rooms in our home. It's personally signed by Ms. Taylor and is a constant reminder to us of her courage and compassion. (Sure, we could have arranged for a portrait of Elton, but let's face it, Liz is way more glamorous, right?)
Comment by: michael
Thu., Aug. 11, 2011 at 4:37 am UTC
three decades of hiv/AIDS and we get a blog with a collection of pics......are we plateauing on our friends list request on facebook or something? very little difference in attitude in today's society. for every person educated about the disease, a dozen more are born who will be taught otherwise. it's nice, doc, that you come home to someone who understands. sadly, that is a tiny, tiny spec in this world. even in terms of scientific advancement, it seems that the new btripla is more of a slight step backwards than forward. after years after the introduction of atripla, they come up with btripla that is slightly subpar to atripla and if btripla fails, it pretty much ruins the effectiveness of many pill options.....3 decades...and the cost to be on treatment is still beyond reach to most people......sad....
Comment by: Brad J.
Tue., Aug. 9, 2011 at 10:12 pm UTC
Comment by: David K.
Fri., Aug. 5, 2011 at 4:19 pm UTC
Currently the United States is not doing enough to screen individuals for HIV/Aids. I was diagnosed with HIV/ Aids and cryptococis in 2009 by the VA hospital in OKC. Between 2003-2009 I visited the VA hospitals numerous times showing signs of my immune system failing and not once had any of the VA Doctors followed the standard of care of asking about risk factors of HIV nor did they ask whether I wanted to have an HIV test until finally when I had Cryptococis Menengitus I was tested. Recently I've heard that everyone who goes to the VA are asked whether they do want to be tested. Who knows how long that will be enforced. While filing my claim with the VA, I was disrespected by the VA Regional Attorney and the attorney had also interfered with my claim of course nearly 10 months later my claim was denied. Im not through with my claim, District Court Bound! The Government needs to be held responsible for those who they failed to test and catch the virus early so no harm will come to them. I urge others who have been not diagnosed early to file claims as well.
Replies to this comment:
Comment by: Brad
Tue., Aug. 9, 2011 at 10:14 pm UTC
The VA ID Clinic in Atlanta is FANTASTIC! FYI!
Comment by: Lance
Sat., Jul. 23, 2011 at 9:26 pm UTC
Thanks so much for your blogs. I am neg. and head over heals in love with my "Pos.charged" and look forward to every one of them. PS...I think it is time to grow that "Stash" back mister.
Comment by: Michael D.
Mon., Jul. 4, 2011 at 9:52 pm UTC
Thanks for this. It shows how far we have come. Seeing that picture of Ryan White in his hospital bed brought a tear.
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Life, Love, Sex, HIV and Other Unscheduled Events
Bob Frascino, M.D., was President and Founder of The Robert James Frascino AIDS Foundation. He had been an outspoken, popular expert in TheBody.com's "Ask the Experts" forums on safe sex and fatigue/anemia since 2000. Once a Fellow of the American Academy of Allergy, Asthma, and Immunology, and the American Academy of Pediatrics, Dr. Frascino served as Associate Clinical Professor of Medicine, Division of Immunology, Rheumatology, and Allergy, at Stanford University Medical Center from 1983 until 2001. He was a member of the American Academy of HIV Medicine and had also been a distinguished member of the executive boards of numerous state and regional associations.
We're inexpressibly saddened to share the news that Dr. Frascino passed away unexpectedly on Saturday, Sept. 17, 2011. Click here to read more and to share your thoughts.
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October 19, 2011 - The Ultimate Unscheduled Event: A Blog Entry by Steven M. Natterstad, M.D.
September 23, 2011 - HIV Guidelines: Some Evolve; Some Don't. What's Up with That? Part Two -- A Blog Entry by Bob Frascino, M.D.
August 25, 2011 - HIV Guidelines: Some Evolve; Some Don't. What's Up With That? Part One: A Blog Entry by Bob Frascino, M.D.
July 27, 2011 - Three Decades of HIV/AIDS, Part Three: A Blog Entry by Bob Frascino, M.D.
June 30, 2011 - Three Decades of HIV/AIDS, Part Two: A Blog Entry by Bob Frascino, M.D.
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