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Calling HIV Negative Gay Men: This Is Your Time

June 21, 2011

Mark S. King

Mark S. King

This is directed to HIV negative gay men. Listen carefully. This is your time.

I've lived with HIV more than half my life, and people often praise me far more than I deserve, simply for surviving. They use words like brave and courageous.

You know what takes courage? Getting an HIV test every few months. You, waiting nervously while your most personal sexual choices are literally being tested, waiting to find out if you've been good -- or if you're going to pay for a single lapse in judgment by testing positive, when the look on the faces of your friends will say you should have known better.

I have no idea what that must be like. I took the test over 25 years ago. The positive result was traumatic, no doubt about it, and I soldiered on during some awfully frightening times. But I have a significant psychological advantage over my HIV negative friends: I only took that damn test once.

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During all these years, I've acted irresponsibly at times or taken chances I hadn't intended. But there has been no further judgment from a blood test. That reckoning was faced long ago.

But you -- whether you have been sexually active for a year or a decade -- have very likely faced some tough choices and behaved wisely. You keep doing the right thing.

This is your time. The word courageous is for you.

If you don't define yourself, in large part, by the fact you are HIV negative, start now. It is your accomplishment. It says you are taking care. And it says you are eligible to participate in vaccine trials or mentor someone else trying to remain negative.

There is ongoing research now that is focused on HIV negative men like you. Exciting new studies are investigating drugs to prevent infection after something risky has occurred, while other studies have shown promise for a drug regimen that might block infection before it happens.

And right now there are vaccine trials waiting for men like you to help find the ultimate weapon against HIV. They need volunteers, badly.

This is your time. This research is about you. This call to action is for you.

I can already hear the rumblings on both sides of the viral divide. People are so quick to take offense, so afraid of being misunderstood, of being labeled or blamed or ostracized.

Calling HIV Negative Gay Men: This Is Your Time

My fellow positive brothers are so bruised by stigma that it can be hard for them to lift you up. They've been rejected by you. They don't like hearing "maybe we should just be friends" and they don't like seeing "UB2" in your online profile. They might be positive as a result of one heated mistake, or due to sexual assault, or by trusting (or loving) the wrong person -- and they deeply resent feeling judged.

Maybe they think your negative status is the result of pure luck, or that you don't like anal intercourse, or you're lying.

Meanwhile, your sacrifices go unrecognized. You've seen some positive friends take early disability, hang out at the gym and get help with the rent. They receive so much support and empathy that it must feel like there isn't much left for you. Every year we all swarm the streets for the AIDS Walk, and you can't help but wonder if your parade will ever arrive.

These grievances and resentments give me a headache. It doesn't matter much to me who is most injured. How infinite is our compassion for one another? I don't care anymore who gets what. What matters most is who does what.

This is your time. This truce, this call to a higher purpose, is for you.

You are fully human, like everyone else, my friend. You are courageous, afraid, selfish and compassionate. You make difficult choices and you make mistakes. And we need you so very badly.

Thank God for you. This is your time.

(This piece was written as part of the GA Voice commemoration of 30 years of HIV/AIDS. I was honored to contribute to their special issue. -- Mark)

Send Mark an e-mail.

Read more of My Fabulous Disease, Mark S. King's blog, at TheBody.com.

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Visit Mark's live blog at www.MyFabulousDisease.com.



This article was provided by MyFabulousDisease.com. Visit Mark's live blog.
 
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Reader Comments:

Comment by: David P (College Park, MD) Sun., Jun. 26, 2011 at 4:06 pm EDT
More tragically for HIV-negative Gay men, the story of their persistence over the last 26 years of testing has been subordinated to their use as the control group when analyzing the behaviors of newly diagnosed HIV-positive Gay men. Our disease-focused public health and academic sectors have remained so focused on resolving "what's wrong with Gay men to cause them to get infected with HIV?" that they have forgotten to determine "what's working right for sexually-active HIV-negative Gay men that keeps them uninfected after two decades of screwing in an epidemic?" After almost 29 years of living with HIV, I am eager to help shine some light on the successes of HIV-negative Queermen--not to brand HIVers as "failures," but to unveil the truth of what's working to keep those men HIV-free.
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Comment by: Open Arms (Michigan) Thu., Jun. 23, 2011 at 1:09 pm EDT
Excellently put!
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Comment by: Jerry (Los Angeles) Wed., Jun. 22, 2011 at 11:00 pm EDT
I am negative and get my test every 3 to 4 months and for the past 6 months have fallen in love with my positive partner. Who as you said was simply taken advantage of. I tried to get involved with the vaccine trials, but when I called they were looking for guys who were very “slutty” in a since, and it really made me feel like I would not be a good candidate once I went through their trial questions. I told them how much at risk I was for perhaps catching the virus with my positively charged partner, but since I was only having sex with him that did not make me a good candidate for the trial. I wonder if that is why they are having trouble finding people to help out. I know my partner is undetectable and there is still a chance that I could get HIV if we were to bareback. I must say though the longer we have been together the less and less we use condoms. Foolish perhaps, but we do the best we can with what we have to work with. Thanks for the blog…The void between pos and neg. guys must be closed. I know that I would still fall into the stigma of neg. guys and pos guys if I would not have met the love of my life.
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Comment by: Harvett (East Cleveland, OH) Wed., Jun. 22, 2011 at 6:48 pm EDT

As a heterosexual woman, I say thank you! That was so beautifully written.
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