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Getting Involved in Your Well-Being
Part Two of Three in Project Inform's "After You've Tested Positive" Booklet

July 2015

Get Into Care as Soon as Possible

Getting into care can improve your quality of life even before you start treatment. This is because people with HIV often have other health issues that should be treated such as depression or high blood pressure. You and your doctor will need to assess your health and begin to plan for the future.

Many people develop a more assertive attitude about their well-being when they find out they have HIV. Making decisions about when and how to start HIV treatment isn't always easy. One positive step is to take part in your health care decisions. Another is communicating thoughtfully with your provider(s).

Some issues in your life may make it hard for you to see a doctor regularly, such as drug and/or alcohol use, unstable housing or lack of insurance or transportation. These can be addressed as you stay in care. Your doctor may be able to refer you to a case manager or social worker. (See "Lining Up Support.")

Main Points to Remember
  • Find a doctor soon to assess your current health needs.
  • Many support services can help with issues such as housing, lack of insurance or domestic violence.
  • Participating in health care decisions can help you make the most out of living well with HIV.

Helpful Resources

AAHIVM Directory (see ReferralLink on right)

GLMA Directory (click FIND A PROVIDER at top)

HIVMA Directory (click FIND AN HIV PROVIDER at top)

Ways to Improve Your Health

Develop a Relationship With Your Doctor(s)

Develop a Relationship With Your Doctor(s)

Many people simply do what they're told when it comes to their health. So actively working with your doctor may be a new experience. It may feel odd at first, and some doctors are unfamiliar with patients asking lots of questions or questioning their advice. Either way, relationships take effort on both sides. If you decide that your provider isn't right for you, it may be possible to switch to someone else.

People who help make their own health care decisions tend to have better overall health. You may find having good relationships with other medical staff, like a nurse practitioner or physician's assistant, can help. Talking to a pharmacist is another resource. You may also be able to get second opinions from other doctors your friends or family see.

Main Points to Remember
  • Developing a partnership with your doctor may take some time and practice.
  • Participating in decisions around your HIV care can lead you to better overall health.

Helpful Resources

Patient/Doctor Relationship

Your First Few Doctor Visits

Your First Few Doctor Visits

The first few visits after your diagnosis are important ones for you and your doctor. They are the foundation for what you learn about HIV and how you and your doctor will work together to treat it.

The first visit can be an emotional time. Many doctors are sensitive and caring, and respond well to your needs. However, they have time constraints and are there to provide medical care, not necessarily emotional support. Friends, family, support groups, social workers and therapists can help with emotional support.

If possible, you may want to interview doctors before you decide who you want to see. Make sure you're comfortable with your provider and seek other help if the relationship isn't working for you, though this is not always possible.

It's important to get a full exam and medical history. Be open and honest about what you know about your health. Some conditions such as diabetes and hepatitis C can complicate treating HIV, so talking about them helps to ensure your health.

Below is a list of common tests your doctor should run to assess your health.

health care professional and patient

For women:

Consider Other Issues in Your Life

Consider Other Issues In Your Life

Some health issues such as "street drug" abuse, alcohol abuse, domestic violence, mental health issues and homelessness can be very difficult to face on your own. Finding supportive people you trust can be an essential first step. Social services, support groups and supportive friends and family can be very helpful as you pursue bringing more health into your life.

Support groups for all types of issues (including HIV) can improve an individual's health. Being able to tell your story to people who understand can be very healing. They are rich with advice about how to deal with the issues you face. More support services are found near cities, but you can usually find case managers, social workers or peers who can help connect you with the right support no matter where you live.

Main Points to Remember
  • Dealing with HIV may give you the opportunity to change other aspects of your life.
  • Finding and talking to people who understand your situation can be healing and empowering.
  • Social services may be available that can support you making changes.

Previous: Understanding HIV | Next: Learning to Support Yourself
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