HIV/AIDS Blog Central: Perspectives From the HIV/AIDS Community
Living With Memory Loss
By Lynda Arnold
May 19, 2014
Sometimes people ask me what's the worst part about having AIDS. Over the years my answer has changed dramatically depending which symptom I was facing or side effect from the medication was particularly cumbersome. Right now, however, the most debilitating in my mind is my horrific and progressive memory loss. I don't remember how long I truly have been battling this but I do know that in the past two years it has risen to a crisis in my mind. People try to make me feel better by paralleling my experience with theirs due to age or depression or menopause. It doesn't really help me. Most times it just makes me feel more distraught.
Memoirs of a Caregiver, Part 3
By Bob Leahy
May 19, 2014
I don't pretend that this story is at all unique. I tell it because I suspect it may be part of a growing trend -- HIVers assuming the role of caregivers where previously they thought of themselves as recipients of care. It's a bit of an adjustment.
Trying to Find the Ups, When All You See Are the Downs
By Teniecka Drake
May 19, 2014
Hello and first of all may I just say wow!!!! Okay, so your girl has been MIA for the ending of last year and the beginning of this year. Last year was kind of a whirlwind for me. For those of you who follow me you know I just had a baby last year. During this time my family was going through a kind of transition period. I usually can always find a positive out of something. Except for the ending of last year up to just recently I could not. Since my baby is fifteen months I cannot chalk this up to my hormones still being out of whack. I am going to take a slight detour off this subject and I will get right back to it.
Wait a Minute, Did I Take My Meds?
By Patrick Ingram
May 18, 2014
"Wait a minute did I take my meds?" This is a question I often ask even if my pill box, mobile application, or friend says I have. Anxiety, nervousness, fear, and due diligence keep me on track to continue to the best of my ability to take my medications faithfully. For me the process of taking my three medications everyday at 9 am is an experience both with and without emotion. Every time I swallow my pills, I am reminded that HIV is living inside me.
Thank You, Mr. Sterling
By Gary Bell
May 16, 2014
Strange title, eh? After all, why would I thank someone attributed to insensitive racial comments about African Americans in 2014? With an African American president, thousands of African Americans now listed among the elite, but elusive, top 1% (over a dozen of whom, by the way, actually work for Mr Sterling) don't we now live in, as many idealistic pundits and scholars call it, a 'post racial' society? Well, this blog is not intended to thank him for reminding us that racism is alive and well. I am thanking Donald Sterling for getting HIV back in the news.
The Painful Reality of Neuropathy
By Dave R.
May 14, 2014
Occasionally, everybody tingles, or has numb fingers or toes, or feels the nerve at the back of their leg twitch to give them shooting pain. They may be woken by restless legs that shudder without reason, or recoil if they touch something too hot or too cold, or conclude they've got a trapped nerve somewhere on their bodies. These are all perfectly normal but nothing prepares you for the effects of your nervous system going into major short-circuit mode!
The Dying White Male Patriarchy: On Donald Sterling
By Ben B.
May 13, 2014
Before I begin, I'd like to issue the disclaimer that I don't want ANYONE to think that racism is more acceptable to me than HIV-phobia/ignorance. At my core, my greatest wish is to have all human beings treated with equality/respect as a matter of fact, not favor.
Some "Me" Time
By Brian Ledford
May 7, 2014
To start off, I apologize for it taking so long for me to write another post. I have still yet to hear back from my doctor about the biopsies that were taken at my last appointment, and all this waiting has had me kind of in a funk. Whoever said "No news is good news" didn't know what the hell they were talking about. Not knowing is driving me crazy.
Artist Luke James Discusses the Importance of Health and Love
By Candace Y.A. Montague
May 6, 2014
Health messages can sometimes fall on deaf ears. But when an artist sends the message, it can add some serious bump to it and makes a better impression on an audience. At a recent event at The Park on Fourteenth, Grammy-nominated R&B artist Luke James performed songs about love. The event was a fundraiser for the Reed For Hope Foundation, a non-profit organization that raises funds for HIV/AIDS awareness. RFHF teamed up with OraSure Technologies to present selected events that spotlight the importance of knowing your HIV status and getting tested. When it was time to host an event in DC, RFHF founder and CEO Robi Reed tapped Mr. James to come perform some of his hits. After his performance, Luke humbly answered questions about health and HIV among young people in an exclusive interview.
The Real Casualties in the PrEP-Battle
By Aaron Laxton
May 6, 2014
I sit waiting at a coffee shop in the Central West End at the Washington University in St. Louis Medical School. This meeting, like most these days, are spent working on strategic planning for implementing PrEP (Pre-Exposure Prophylaxis), a one-pill-a-day drug regimen that has been shown to be up to 99% effective in preventing HIV infection. People slowly trickle into the working group and we start to address the task at hand. Who could benefit the most from access? Believe it or not, it is not those who are waging a moralistic attack on whether or not it should be used. For the most part, it is not even the people who will read this article or who are on social media. That is because the people who could benefit the most from PrEP are limited on resources. The young, black male who has sex with men or the Latino ages 13-24; that is who are falling casualty of this absurd power struggle.
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