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HIV Life >> Women


Brain turning to Jelly
      09/19/02 04:51 AM

Hi Everyone,
I have been HIV+ for 13 years. Been on Meds for the last 4 years. About 2 years ago I started having issues with Concentration loss, Fatigue, memory loss (short term)
Now, I am at the point of getting lost going to the Supermarket I have gone to for 30 years. (this happened once) And All my organizational and Multi-functional skills are out the window. I also have speech slurring, trouble finding words, feel funky after thinking too hard...
My CD4's are good, and Viral load Undetectable.
My Doc has switched my meds, and I am on Ridalin, which in most adults helps with Fatigue. This seems to be a new issue to the Docs, and they are now doing Drug studies to see if they can fix the problem.
The only thing they tell me is that HIV in the brain can run Rampant even if its under control in the body as the Fluids (ie blood) in the brain vs blood in the body are seperate. They did a spinal tap, which there are not CD4 tests really accurate for Spinal fluid/brain fluid, which did not reveal anything. And MRI and CAT Scans are all normal. Been to Neuro-Psych testing as well.
Thing is I am on Long term Disability from work, and had to apply for SSDI and they are nimrods as they do not have guide lines for this type of HIV/AIDS issue.
I am not alone, I know that. But is anyone else here having these issues? It sorta crept up on me.
I can deal with the Lipo, and the Diarhea. But Loosing my mind is not on my to do list!!!
Thanks, love you all!

Post Extras: Remind Me!     Notify Moderator

Entire thread
Subject Posted by Posted on
* Brain turning to Jelly -hez 09/19/02 04:51 AM
. * Re: beware of jackieblue. susanIn NYC   09/21/02 04:21 AM
. * Re: thanks for the warning Anonymous   09/27/02 04:44 PM
. * Re: Brain turning to Jelly Jackie_Blue   09/19/02 11:16 AM
. * Re: Brain turning to Jelly susaninNYC   09/21/02 04:23 AM
. * Re: Brain turning to Jelly Anonymous   09/21/02 02:52 PM
. * Re: Brain turning to Jelly Jackie_Blue   09/22/02 12:51 PM
. * Re: Excuse me susanin NYC   09/22/02 06:17 PM
. * Re: Excuse me Jackie_Blue   09/23/02 10:21 AM
. * Re: Brain turning to Jelly -hez   09/19/02 02:38 PM
. * Re: Brain turning to Jelly Jackie_Blue   09/20/02 11:25 AM

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