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Reged: 11/24/06
Posts: 6
PML (progressive multifocal leukoencephalopathy)
      11/24/06 05:28 PM

Greetings! My name is Ron and I am living with HIV and PML. Myself and a fellow progressive multifocal leukoencephalopathy survivor wanted to test the viability and usefulness of an online support group for others affected by PML personally or with someone they love. Therefore, I started a Yahoo Group to facilitate this idea back in June of 2006. Our membership has grown steadily since then. It seems little is still known of this affliction, so at best this online community could lead to new ways of seeking treatment for some and at least a forum for finding inspiration and venting frustrations for others. It has been personally frustrating and isolating for me not being able to efficiently find others with stories to share regarding their experience with PML. I thought it might be helpful to initiate an informal group to alleviate some of this frustration. I ask that you take a moment to join this group TODAY! Please be kind and share anything that you feel willing to share, be it about affective medical treatments, recovery successes, relationship struggles, rejection, finding employment, whatever! Your story just may prove invaluable to another. Thanks very much for your time!

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* PML (progressive multifocal leukoencephalopathy) Ron31 11/24/06 05:28 PM

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