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HIV Life >> Women

Anonymous
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My story
      01/20/05 12:43 AM

My life, like many of yours, is fairly complicated. My husband was diagnosed as positive back when our daughter was just under a year old. It was a "rule out" sort of thing when he got sick and landed in the hospital. I was then diagnosed, and our daughter, thankfully, is free from the disease.

We are now nearly 11 years later. He's not worked in 10 years, so I have been sole provider for us. Lately, he's had more bad days than good, and it scares me. We keep our hopes up and try to deal the best we can.

Last year, my blood work was good enough where the doctor decided I could have a "drug holiday". Here we are a little over a year, and I'm still on "holiday". However, my latest blood work came back where my TCells dropped 200 points within 3 months, and I haven't had any colds or anything. Only thing was bothering me around that time was I got Bells Palsy, which could have been a trigger in the drop.

With that announcement, doc says he wants me to take Fuzeon, as well as the usuals, and even enter a trial they have going. I have lipodystophy in the abdomen, shoulders, upper arms and upper back. Lord knows I don't want it to worsen. Yay for meds.

After seeing my husband take Fuzeon, I feel so totally against even considering it, that I don't know what to do. My husband endured painful injection sites (he has no fat on his body) and the fact that he just got tired of sticking himself so much.

I have requested another blood workup, and some time to think about the Fuzeon as well as the trial.

I have done nothing but cry and dread the thought of doing this, it's so uncharacteristic of me. I am the one who is strong enough to not show my worry or feelings when it counts. But now, I'm a basket case and need distractions to keep my mind off things.

I don't have anyone in my life (other than the hubby) I can talk to about what I'm going through. I'm too scared to let people at work know I'm positive, because I don't want it to inhibit my advancement possibilities.

Unbelievably scared.

Thanks for taking the time to read this.

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Entire thread
Subject Posted by Posted on
* My story Anonymous 01/20/05 12:43 AM
. * Re: My story RIVERLADY   02/08/05 11:16 AM
. * Re: My story Anonymous   02/06/05 03:14 AM
. * Re: My story boston781   02/02/05 04:16 AM
. * Re: My story Anonymous   01/31/05 02:54 PM
. * Re: My story Roberto/Brazil   01/29/05 09:30 AM
. * Re: My story Anonymous   02/10/05 04:01 AM
. * Re: My story Anonymous   01/28/05 04:32 AM
. * Re: My story Anonymous   01/29/05 02:00 PM
. * Re: My story Anonymous   01/27/05 09:21 AM
. * Re: My story Anonymous   01/29/05 02:02 PM
. * Re: My story Anonymous   01/27/05 10:39 AM
. * Re: My story Anonymous   01/26/05 08:54 PM
. * Re: My story positively   01/23/05 08:58 PM
. * Re: My story Anonymous   01/24/05 06:57 AM
. * Re: My story fuzeonhelp   01/27/05 11:24 AM
. * Re: My story IzPoZ   01/28/05 01:01 AM
. * Re: My story Anonymous   02/04/05 10:49 AM
. * Re: My story Anonymous   01/28/05 01:47 AM
. * Re: My story IzPoZ   01/28/05 07:15 AM
. * Re: My story Anonymous   01/20/05 05:22 PM
. * Re: My story Anonymous   01/21/05 07:01 AM
. * Re: My story RIVERLADY   02/08/05 11:24 AM
. * Re: My story IzPoZ   02/09/05 12:40 AM
. * Re: My story Anonymous   01/24/05 07:07 PM
. * Re: My story Anonymous   01/23/05 01:13 PM
. * Re: My story Anonymous   01/20/05 09:03 AM

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