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HIV Life >> I Just Tested Positive

marriednkids
Newbie

Reged: 03/01/13
Posts: 2
Loc: Missouri
First time Caller.. Recent listener.. and of course positive..
      03/01/13 08:59 PM

Well 2/9/2013 I got a call from the state, saying they wanted to see me about some stuff that came out on a life insurance exam. They called on Friday at 4pm, and said they could not meet until Monday, but it was about a serious STD. After fretting, not sleeping, and researching, I had pretty much narrowed it down to they were going to bring me in and tell me I had HIV or Hepatitis. (Those are the only two I could find that the state contacts you about).. Nice of them to call on a Friday eh? So on 2/11/2013.. I found out..

Well turns out I am HIV positive. Pretty Scary; I have been married for 2.5 years; just had a beautiful baby girl 6 months ago; and have never strayed from my wife once.(Not in the 3.5 years we have been together either) I am 35 years old, and a little wilder in my younger days.. but never shot drugs, or switch hit (no offense to anyone). So never thought I could have gotten this disease; and really in the last couple weeks gotten much more educated it on it then ever.. But it does not discriminate..

You know I never really paid attention to the fight against the disease (Ignorance is bliss) , and the problems of this community, because I thought.. never me.. never me.. Well, here I am today as a member, and hope you guys/gals can help me through this, as it has already been pretty difficult..

I have told my wife and she is really at this point other than medical personnel and you guys that I plan on telling, due to the horrible social stigmata put on this disease. Maybe later in life, this will change; and I will have that strength. Thank God(And believe me I have hit my knees thanking him) that my wife was tested 3 times last years during pregnancy, and of course last week and she IS NEGATIVE and the BABY is Negative! I hope it stays that way, we of course are retesting in a few months, and abstaining from Sex until we get this all a little better under control.. This is all pretty amazing to me considering we had a decent sex life, and we had a failed pregnancy before the one that resulted in my little Angel. I pray again she stays negative at the next test.

Went to the Doctor on Wed to find the results of the wonderful 50 vials of blood the took (Well maybe it was 48). I am going to an infectiousness disease doctor that was recommended to me here in Kansas City.. I found out my Viral load was 71,000 and a CD4 count of 178 So, of course we want to start treatment ASAP. So they prescribed Atripla for me to start, and with my insurance it is 1900.00 a month. Crazy, someone is making good money on this!

I have been a small business owner for the past 4 years, and do pretty well 120-150k a year; before Uncle Sam takes 30% of it or more! But the 2k a month is something I am not sure we can handle; but we are going to try and work it out some how. I have one daughter, two step daughter, a three legged dog (yep!) and a beautiful wife to support.

So Why am I here? (I didn't just wander in here; of course)

Support and Answers! From those wiser than me!

So let me crack a few questions and see if you guys can help out...

I have a PPO (Individual/Family plan because of my self employment) They say the medicine is non-preferred, thus with insurance my medicine is 1900 a month. I have a 5000 dollar deductible/10000 family deductible.. Max out of pocket 12,000. Does anyone know once I hit those deductibles if they will be forced to pay for my medicine? (I am trying to get the manufacturer to help, but might be hard given my income)

2nd Question(Hope someone is still reading) :
If they will not cover the cost, which I am assuming they will not. Is it possible to travel to another country and buy this name brand drug at a cheaper cost? and what countries and cost? How much is name brand in Mexico? I have read about Viraday and buying online as well, I asked the Doctors nurse about this today, and about substituting; but she said they don't recommend this because of the way it metabolizes or something. Have you guys had positive was to overcome this with your doctor about trying it out? 500.00 a month sounds a lot better than say 1900 a month..

3rd question how are you all doing? Hope you are having a great day!

Its been a hard last few weeks, from living what I thought was my dream life.. 3 kids.. 3 legs of one dog.. no fence.. suburban neighborhood.. liked my job..love my wife.. working on pinewood derby cars for my girls and girlscouts.. to Poof.. CRAP STORM..

I was in a pretty good mood after telling my wife, and getting her support; and she has been a rock to help me out. Was a little shocked my numbers were so low, but have read quite a few encouraging posts about others who were lower and have rebounded.. I am not scare of dying, I believe in God. I am scared of my daughter not having a father around to be there.. love her..support her and tell her she is beautiful..

Then the 2nd wave of the shit storm came in.. Found out the medicine I need to stay alive cost 2000 a month.. The IRS called me and says I owe them 82k (Which I dont have, I struggle to make payroll a lot) due to an ex business partner.. and I am out of diet coke at the house .. This has really depressed the positiveness I was having about the situation. I am going to fight it and put one foot in front of the other, and march on.. I will tell the IRS about the situation and hopefully they will let me breathe for 6 months so I can get things sorted out, but not in this time of family crisis. (Anyone have experience with this?) I will find away to get medicine, and hope you guys can help with some answers above. and I WILL SOMEHOW KEEP LIVING AND LAUGHING...

Not sure if there are others out there who are married, I would be interested in having "Pen Pals"/Mutual Support or whatever and are in my situation with one partner positive. Or really welcome words of advice, wisdom, or jokes from anyone that will listen and talk..

There are a lot of brave people with this disease, I hope I can become one of them. Peace. Love. & Dreams as my girls always say. Look forward to hearing from you all and becoming an active member of the community.. I guess I got the membership card now.

So time to take my first Atripla. Pray the Side Effects aren't bad!.. Taking in one hour..

All this and I have to quit smoking (Got Chantix today)
And now I need to lose 100lbs (I have been needing to lose this anyway.) Currently 290lbs and 6ft..been pretty healthy until this.. though I know why I was getting Strep all the time now, and got my tonsils(First surgery ever!) Removed last year..

Post Extras: Remind Me!     Notify Moderator

Entire thread
Subject Posted by Posted on
* First time Caller.. Recent listener.. and of course positive.. marriednkids 03/01/13 08:59 PM
. * Re: First time Caller.. Recent listener.. and of course positive.. marriednkids   04/04/13 12:22 PM
. * Re: First time Caller.. Recent listener.. and of course positive.. kclost   04/25/13 08:30 AM
. * Re: First time Caller.. Recent listener.. and of course positive.. lilfshrmn   03/07/13 01:53 PM
. * Re: First time Caller.. Recent listener.. and of course positive.. kclost   03/05/13 04:16 PM
. * Re: First time Caller.. Recent listener.. and of course positive.. notinterested   03/03/13 03:52 PM
. * Re: First time Caller.. Recent listener.. and of course positive.. Furtail001   03/03/13 10:15 AM
. * Re: First time Caller.. Recent listener.. and of course positive.. riverprincessModerator   03/02/13 11:56 AM

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