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Family and Friends >> My Loved One Has HIV/AIDS

Anonymous
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Two of our sons are posiitve
      03/30/00 03:31 PM

E-MAIL address is Onlis&metamall.com We are the parents of four
children, three sons and one daughter. We are from an upper
middle class enviroment. All four children graduated from
college. Three have doctrates in one form or another. Two of our
sons are HIV postive. Our oldest and our youngest. Our baby son
has had active AIDS since 1989. Our oldest son has a T-cell count
of 800. I am in the process gathering three different areas of
information. 1. I am writing about book about the struggles
patients, parents, extended families about how to get things
done. I have found that families, patients etc. have a difficult
time in getting all the facts--finding out the newest discoveries
and getting all of the options presented.(another son who is a
physician suggested that I write this book after we nearly lost
our baby son in 1994. I stood up in the hospital fired a whole
team of physicians who were later investigated by 20/20 show on
television. They had given my child 5 hours to live. The hospital
administrators told me I couldn't let these doctors go. BELIEVE
YOU ME---YOU CAN!!!!! Fortunately the hospital had a wonderful
nursing team who cheered me on.) We selected an entirely
different team of doctors. (This all within 3 hours.)
Fortunately, they were able to turn the world around and our son
has been well until January. PLEASE OUT THERE---SHARE YOUR
DIFFICULTIES WITH GETTING PROPER TREATMENT, PROPER RESPECT,
PROPER UNDERSTANDING!!!!SHARE YOUR WAYS OF APPROACHING THE CARE
OF SOMEONE YOU LOVE WHO HAS AIDS. THINK OF THE PARENTS, SIBLINGS
PATIENTS YOU WILL HELP. 2. Please send me stories about
experience with TPN. How long have you or your family member been
on TPN? What kind of TPN? American Standard or the new
formulation? We have had two success stories with TPN--The first
time in 1994 using the American standard and now our child is
back on a new formulation which gives more Amino Acids and less
glucose . He gained 10 pounds in 10 days!!!!! 3. As patients,
parents, siblings, and extended families how DID YOU COME OUT OF
THE CLOSET REGARDING YOUR DIAGNOSIS OF AIDS, OR YOUR FAMILY
MEMBER's DIAGNOSIS? Were you frightened? Did you fing people
uninformed? Did you find people ignorant and afraid? Did you find
people supportative. It took us quite a while to even digest the
sadness but we have never wavered from our children's side and
give them daily support. There is much more I want to know but
this is too lengthy I will be out of the office until Saturday
except in the morning. Remember: What I share in this book may
help people everywhere. Thank you --so much




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