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mom2w
New User

Reged: 07/23/13
Posts: 13
Re: Update: Son has low red blood count
      08/02/13 06:45 PM

Thanks River and anotherday,

W was discharged Friday. His red count is apparently steady after his transfusions. His physician does feel like he had a reaction to the Dapsone.

At discharge his Dr. prescribed four other medications...but his wife has not e-mailed me the exact name of the drugs so just not sure what each one is targeting.

He did test positive for CMV. I'm sure one of the new meds or maybe two of them are for the CMV.

He is having his eyes checked tomorrow to rule out CMV retinitis.

I talked to him by phone, today ....his voice is stronger and he said he and wife were going out for a short while, shopping.
His wife, said his walking appears less shaky and his shows a slightly faster stride.

He told me he is not near "there yet"!

I told him the one thing I want to hear him say when I ask him "how he is feeling", is "Mom, I'm feeling really good".

He told me "cannot wait to say those exact words".

I'll post his progress as I know more.

______________________________________________
Brief history for "W".
Presenting labs July 15, 2013 and diagnosis were:

T-cell count 4.

Viral load 500,000.

He started his medications July 16, 2013.

Starting Meds:

Dapzone, 25mg. 2 tabs AM *******discontinued 7-31-2013 for possible negative reaction.

Sustiva 600mg.
Truvada
2 tabs PM.


Post Extras: Remind Me!     Notify Moderator

Entire thread
Subject Posted by Posted on
* Update: Son has low red blood count mom2w 07/31/13 09:24 PM
. * Re: Update: Son has low red blood count anotherday   08/01/13 12:10 AM
. * Re: Update: Son has low red blood count riverprincessModerator   08/01/13 07:43 PM
. * Re: Update: Son has low red blood count mom2w   08/02/13 06:45 PM
. * Re: Update: Son has low red blood count riverprincessModerator   08/02/13 07:02 PM
. * Re: Update: Son has low red blood count mom2w   08/02/13 11:40 PM
. * Re: Update: Son has low red blood count anotherday   08/03/13 12:16 AM

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