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Windwalker911
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Re: "The Lazarus Syndrome"
      03/05/02 09:57 PM

Peter, first I'd like to know what the story is for. Are you a journalist?
If I understand the "Lazurus" implication correctly, you are referring to people who are very ill 'rising from the dead' so to speak.
Well, here's my story. In February 2001, I tested negative for HIV and DID NOT have any sexual, needle or any other type of body fluid contact between that test and the date I was diagnosed as positive in August 2002. Prior to the Feb. test, I had tested every six months for several years...all with negative results. Don't let anyone tell you that seroconversion always happens within six months because this is not true in all cases, as it was not true in my case.
I went to the hsopital emergency room in August with a 104 degree fever, respiratory difficulties, and dramatically swolen lymph nodes. When my personal doc asked my permission to run another HIV test, I agreed, certain that it would be negative. I was admitted to the hospital with a diagnosis of pneumonia and was still there - and 26 pounds lighter - when my test came back positive. I was totally shocked, even more so when the doctor ran further tests and revealed that my T-cell count was 6 and my VL was 750,000. At that point, sputum cultures determined that my pneumonia was PCP, the OI that most often destroys AIDS patients. In essence, I was incredibly sick and found out that I not only was HIV+, but also had AIDS.
I was finally released from the hospital and struggled to continue working and caring for my children until October 2001, when my children and I moved to Virginia to stay with my parents. I knew I could no longer take care of myself or the kids and basically I came up here to die. I had already given up, planned my funeral (right down to the music)and was ready to go.
About a month after I got here, I found an infectious disease specialist. Trizivir, the med I was started on, was making me desperately anemic and I never knew until I started seeing this doc. She changed my meds, made some suggestions that I followed and monitored me every two weeks for the first two months, then every month.
At my last doctor visit in Feb, my T-cell count was 139 and my VL was undetectable. When the doc said those words, my first conscious thought was "I'm going to get to see my kids graduate". I cannot possibly find the words to describe what I felt or how a tremendous burden was lifted from me immediately.
I have gained up to 135 pounds (was 103 in October and 5'9"), I feel great most days and am returning to work in the near future. Once I decided to get busy living instead of staying so busy dying, life improved dramatically. Adhering to my med regimen and following the suggestions of my doc did some of the job, but I really believe that God made it happen. And it feels wonderful.
Hope this helps you.
Windwalker



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Entire thread
Subject Posted by Posted on
* "The Lazarus Syndrome" Peter 04/04/00 09:43 PM
. * Re: "The Lazarus Syndrome" Windwalker911   03/05/02 09:57 PM
. * Re: "The Lazarus Syndrome" J.P.   04/04/00 09:46 PM
. * Re: "The Lazarus Syndrome" nancilee   04/04/00 09:45 PM
. * Re: "The Lazarus Syndrome" JP.   04/04/00 09:44 PM

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