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ai77
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Reged: 04/12/06
Posts: 62
Loc: California
To clinical trial or not to clinical trial?
      04/30/06 01:46 PM

Hello! I hope you're all having a nice weekend. Thanks for helping me get over my mental hurdle last week. You made me realize that just because I've progressed to an AIDS diagnosis doesn't mean I'm on death's doorstep. I really thought being attacked by an OI any day was next on the list. Duh. It made me realize that I need to be more mentally vigilant against getting sucked into the negative thought vortex. Now I'm on Septra to protect against PCP until my CD4 goes back up.

I went to see the clinical trials nurse on Friday. She asked me to participate in a study with these arms:

1) Sustiva + Truvada
2) Sustiva + Epzicom
3) ATV + RTV + Truvada
4) ATV + RTV + Epzicom

There's a 25% chance I'd be assigned to any one of these arms. She said that these combinations of drugs are equally effective with similar chances of negative or toxic side effects. But Epzicom doesn't look so hot to me (thanks for that post, Eric).

Also, I've never heard of ATV or RTV. Do you know anything about them?

Another thing is that if I enroll in the study, it would be 3-4 weeks before I start taking meds. I'm not sure I'd want to wait so long to take the meds as my CD4 count dropped from 264 (11%) to 153 (% unknown) over the last 4 weeks. If I choose not to enroll, my doctor would start me on Sustiva + Truvada ASAP.

I really like the idea of helping science and getting free meds in the process, but just want to make sure I give myself the best chance of fighting this thing...

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Entire thread
Subject Posted by Posted on
* To clinical trial or not to clinical trial? ai77 04/30/06 01:46 PM
. * Re: To clinical trial or not to clinical trial? Survivor   04/30/06 02:20 PM
. * Re: To clinical trial or not to clinical trial? ai77   04/30/06 06:01 PM
. * Re: To clinical trial or not to clinical trial? Blixer   04/30/06 07:16 PM
. * Re: To clinical trial or not to clinical trial? Survivor   04/30/06 06:36 PM

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