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HIV Life >> Women

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jkint
Newbie

Reged: 05/21/09
Posts: 2
re: lipodystrophy
      #274179 - 10/07/13 01:49 PM

Looking for other females that have lipodystrophy and are on meds to talk to regarding how they are dealing with it. I was diagnosed in Dec 2012 and am on Serostim and hating it. The side effects are awful but it does work.


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riverprincessModerator
Moderator

Reged: 12/25/11
Posts: 1764
Loc: Jersey Shore
Re: re: lipodystrophy new
      #274184 - 10/09/13 07:48 PM

I have battled with Lipodystrophy for years and even Lipotrophy which I feel is even worse. And I had a total hysterectomy in feb that is causing even more changes. And I am definitly not happy with it. It has made me go through awhole other epesode of self acceptance . Some days I'm ok with it , it doesn't seem so bad but then those other days ! ! ! ! Girl I don't even want to try pants on. It's not easy finding pants for sinny legs, no butt and a belly. I call it the basrrel on stilts syndrome.

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riverprincessModerator
Moderator

Reged: 12/25/11
Posts: 1764
Loc: Jersey Shore
Re: re: lipodystrophy new
      #274875 - 01/21/14 08:49 AM

I was placed on serostim years ago but was taken off due to losing weight instead of gaining. But I also wasn't told to talk to a dietician to learn out toeat with this md. All the best to you .

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jlkint
Newbie

Reged: 09/30/14
Posts: 2
Re: re: lipodystrophy new
      #278244 - 09/30/14 04:55 PM

Hi,
Sorry I never responded back to you ( its only been 8 months!!) Im still here with my "even worse" lipodystrophy. I had to stop the Serostim injections because my ankles became cankles!! Now, I am 9 months pregnant looking again and I want to go back on the Egrifta ( shots everyday) but apparently it is on a National backorder. They have run out of it...This SUCKS.... I find if I eat less than 1000 calories a day, I feel better but it still doesn't help with this huge belly.
How are you doing?


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riverprincessModerator
Moderator

Reged: 12/25/11
Posts: 1764
Loc: Jersey Shore
Re: re: lipodystrophy new
      #278258 - 10/01/14 10:18 AM

I totally understand how you feel. Have you discussed this issue with your Hiv dr? It is only certain meds that cause the lipo. For me it was the truvada. Once I changed meds it seemed to stop but the body fat did not return on my arms and legs. As for the belly I find that certain foods tend to make it appear worse. So I go to the gym and focus my excercise to strengthen my legs and arms. Walk as much as you can. And through out the day use exercise moves in your daily chores. But you know being pregnate is going to be a belly. It may change after you give birth. Stay in touch and let me know how things go. Be thinking and praying for you.

--------------------
Look up to the Heavens for the answers to Lifes questions .

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