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HIV Life >> I Just Tested Positive

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Reged: 09/14/09
Posts: 2
When to Worry?
      #247550 - 09/14/09 08:03 PM

I am 25 yrs old, living in Los Angeles, diagnosed May 20th. Have since gotten two CD4's of 630. My question is, when should I be worried about a sniffle, a weight change, or anything really. It is hard not to freak out about anything that might seem health-related even when my doctor tells me I should not. What are your experiences? Is it all just paranoia?

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Reged: 07/08/09
Posts: 27
Re: When to Worry? new
      #247555 - 09/14/09 11:54 PM

I think your body reacts normally until you get below a cd4 of 200 or so. Current practice is to start meds when your cd4 is 350 or lower. You should be ok and understandably cautious but your cd4 is good.

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Reged: 06/01/06
Posts: 256
Loc: Gauteng, South Africa
Re: When to Worry? new
      #247578 - 09/16/09 09:51 AM

you can have a normal life, you can maintain your weight and all that you are worried about, excersice, eat healthy foods or try at least, Stay away from social drugs as it will affect your immune system also alcohol shouldn't be done excessively. When I was diagnosed I weighed 136 lb I gained muscle by training and eating healthy even while on meds I weigh currently 160 lb, it is in your hands to make a difference to your health and lifestyle.

"Live for today, because what you do today is what you use to make your future"

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Reged: 11/26/03
Posts: 1
Loc: Canada
Re: When to Worry? new
      #247599 - 09/17/09 09:28 PM

I was diagnosed in 1993 and my count at that time was 360... In answer to all of your questions ; is all paranoia. But if you understand that, all those thoughts that unexpectedly shoot into the forefront of your being at every sniffle or cough or ache or sudden lack of recall, or whatever, will quickly dissipate into the ether of your "ridiculous file"... Of course, it's hard to do at first.

However, whether you try to do this or not, rest assured, you will grow tired of alarming yourself over and over again.

So next time you sneeze, and you think "HOly crap! Is this it?" Wait a second... Look around pinch yourself and say "Nope. Im still here, but I wish I'd used a kleenex."

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Reged: 01/29/09
Posts: 25
Re: When to Worry? new
      #247602 - 09/17/09 10:49 PM

Listen to your doctor - DON"T WORRY!!

Your paranoia is nothing more than fear of the unknown. As a long--term survivor (21 years and counting) of HIV, I can honestly say that if you do what you need to do, to care for yourself - eat healthy foods, avoid alcohol, caffeine and sugar, get plenty of rest and exercise regularly, you should be able to live a long, healthy and prosperous life. Be sure to maintain a good mental state of mind/being - it helps get you through the tough spots.

When you start HIV meds, take them faithfully; the regimens are much easier today than when I was diagnosed in 1988; some once per day and others twice per day. And there are many more viable alternatives today -- THANK GOD!! Your treatment provider can help you determine what meds will best support you, and when to start them. (Incidentally, current thought is to start meds around the 500-ct. of CD4 cells.)

Check out Nelson Vergel's and Michael Mooney's book "Built to Survive". It's full of information and helpful tips to promote your well-being. Above all, educate yourself about successfully living
with HIV.

And be sure of your treatment provider and his/her capabilities. If you ever have any questions, ask them. If you should ever question your provider's treatment, get a second opinion, or find another treatment provider. I left L.A. because of my treatment providers (yes, I had multiple doctors) - they gave me 6 months to live. My current doctor in TN figured out in about 6 days what was causing my downward spiraling health; my docs in L. A. completely missed it for nearly 4 years. And it wasn't related to HIV or AIDS!! I'm back to living, not just existing.

HIV is a manageable, long-term, chronic disease/illness; people aren't dying from HIV/AIDS related illnesses, these days (unless they don't do what they need to do to care for themselves.) These, days those living with HIV are expected to live fully productive lives well into their 60s, 70s and 80s. Who knows what tomorrow will bring!!

Worrying/paranoia serves no purpose, other than to create more fear and anxiety -- so don't bother doing it!! Get and know the facts that will help you live your best life you can ever imagine!!

If you care to drop me a line, feel free to do so here, or at my email

Be well!

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