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queenjill
Unregistered

long term survivors?
      #66752 - 07/01/03 09:13 PM

My name is Jill. I am HIV positive 3 years now. My cd4 count is around 1250 vl 600. my doc says i may be a long term survivor. i have read that it is not uncommon to go without symptoms in first years of HIV. did anyone have such good counts at first and see a larger decrease in time -- or does this so called "set point" represent real long term possibilities? anyone with any feedback please reply.

i am 22 years old. infected by heterosexual contact with
someone in a high risk group. i have never used drugs , am not promiscuous, keep good diet, etc.



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Anonymous
Unregistered

Re: long term survivors? new
      #66832 - 07/02/03 11:57 AM

Find out why he considers you a long term survivor. It is common to go without symptoms for average of 10 years from getting infected. Is your doctor an experienced person--Does he or she see at least 50 HIV positive patients and has been doing so for at least 6 years? Otherwise who knows if he knows what he's talking about. I mean your CD4 count should still be high...you were just infected.



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Jackie_Blue
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Reged: 10/26/00
Posts: 2028
Re: long term survivors? new
      #66834 - 07/02/03 02:33 PM

In this case it's the viral load that is probably prompting your doctor to say that. I'm assuming that you aren't taking medication at this time. Positive 3 years and your viral load is only 600. That's great. Your body seems to be holding the virus in check. The current recommendations for starting meds are a viral load of 30,000 or a CD4 count of >350. Thank your lucky stars and keep doing whatever you're doing!



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queenjill1
Unregistered

Re: long term survivors? new
      #66966 - 07/04/03 06:30 PM

no i am not taking any medications - never have, and my doctor is an HIV specialist. would it be common for someone to be able to go 10 years though and still have high cd4 counts, low viral load and not be a long term progressor?



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Anonymous
Unregistered

Re: long term survivors? new
      #67089 - 07/06/03 02:15 PM

It;s possible. The average time to get symptoms is 10 years. Nowadays they don't wait for symptoms...it depends on your counts. But most people can wait a while before they begin meds. I know a long term NON progressor and he is positive TWENTY years and just began medications 2 years ago. But his counts stayed stable without medications for 12 or more years. That's a NONprogressor!! I know another guy not on medications and he's also positive 18 years...but seems to be able to keep the virus in check. But these people are pretty rare. And they are studying them in clinical trials to see what it is that they have that most people don't have!



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Anonymous
Unregistered

Re: long term survivors? new
      #92659 - 03/20/04 06:54 AM

Hello; my name is Janet from South Philadelphia. I am + for 14 years tomorrow.I feel great..... Anyone who wants to talk mail me.....

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