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HIV Life >> I Just Tested Positive

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Joanthan
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What to do till MD appt.?
      #385 - 03/30/00 11:45 AM

I just leatned two days ago that I'm am HIV+. They referred me to a specialist, but that leaves me in limbo until then. What should I be doing NOW? Should the fact that more swoolen lymph glands are popping up each day be something I should be worried about? I can't help feeling anxious to find out my T-cell and viral load counts so I know where I am in the progression and the virus. Any wisdom?



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HLG
Unregistered

Re: What to do till MD appt.? new
      #387 - 03/30/00 11:46 AM

Hey Jonathan,
THe only thing to do is to call a local AIDS organization and make sure you are seeing a specialist who knows what he or she is doing. There are all levels of care and you want the state-of-the-art. You want the kind of doctor who is proactive and knows every trick in the book. Someone who has been doing this for at least 15 years and who has a full caseload of patients. So you can do something. Also read a lot and write down questions. You gotta be your own expert. When you see this specialist then you can read from your notes and see if you like his/her response. Look into what vitamins are recommended. You can start this. Think about whether you believe in early treatment or not. Decide which medicines you think you should be taking. Talk to treatment hotlines. Talk to other postive people and hear their experience. Don't wait for anything. You must be in charge of your own heatlth--don't leave it to anyone else!
Anyhow, that's the attitdue in New York.
HLG




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JNS
Unregistered

Re: What to do till MD appt.? new
      #388 - 03/30/00 11:46 AM

Thank you for your help. I've been researching vitamins and mineral supplements but can't find any simple suggestions on either variety or dosage. Any suggestions?



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RadioBoy
Unregistered

Re: What to do till MD appt.? new
      #3871 - 05/10/00 01:18 PM

The best thing to do is to realize that HIV is not what it was!!! Take care of yourself--eat well, get lots of rest, don't over exert yourself and try to learn all you can. Learning that you're positive is the best defense a person can have...because now you are armed with the knowledge that will make your life longer. Also think about a support group, and pickup some books and pamphlets. You are in this for the long haul, and it will probably be a roller coaster of emotions until things settle down. But they will, and you'll go on living. And new treatments will become available, and more options will be presented to you. Don't get crazy. And ask your doctor everything...
learn everything...and question everything too. Good luck to you. I'm thinking of you!



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drew1100
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Re: What to do till MD appt.? new
      #4818 - 06/03/00 01:16 AM

All I can tell you is what I have been told, I take a multivitamin twice daily and also take vitamin c




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