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HIV Life >> I Just Tested Positive

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toolatelola
Newbie

Reged: 02/18/11
Posts: 3
a not so happy new year. diagnosed 1-4-11.
      #254426 - 02/18/11 01:06 PM

hello good people. I have been using this site from the beginning but have been mostly gathering info.....thought I would throw my story out there. I could use the support of some new friends.
I am a straight 42 yo woman who was diagnosed with HIV on 1/4/11.
I live in the San Francisco Bay Area.
I suffered a terrible seroconversion illness that started about the middle of sept 2010, I was hospitalized for 8 days and was sick
nearly 2 months. I have never been so sick in my life.
I tested negative while I was in the hospital and was convinced I was okay. I tested again when a man I had been with for 6 months told me a girl he had been with had tested positive.
That test came back positive. gulp.
As of now, my cd4 count is 640, my viral load is 22,000 and my cd4% is 35%.
Not bad I suppose. Would still rather not have HIV, right?
My clinic told me about a clinical trial in San Francisco. It is an observation only study
and I joined it last week, this study has been going since 1996. It is at SF General Hospital.....the very same spot that so many people suffered from AIDS back in the 80's. My clinic is on ward 84. Pretty heavy irony for such a newbie.
I am finding irony at every turn these days.....anyone else??
Ok....well, hope to hear from some of you!!
xo.



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leahbeth
Member

Reged: 02/02/11
Posts: 11
Loc: Canada
Re: a not so happy new year. diagnosed 1-4-11. new
      #254474 - 02/21/11 05:06 PM

Hi there,
I thought Ide be the 1st to reply, seeing as it looks like so many people will view but won't say Hi..So I'm saying Hi and sorry to hear, but glad you are on top of things. I'm a 36 yr old straight female, that caught the virus from my ex partner as well. Ive had it for awhile now, not knowing I had it untill my partner passed away in 09 of OI. He wasnt on meds and had had it for about 10yrs and he didn't take care of himself though. Anyways thats a bit of my story..it's nice to have this place to vent and get things off your chest and relate with other people..It can feel pretty lonely sometimes with this virus.
I just started meds about a week ago, my cd4 count was pretty low..so far the only side effect is some nausea. I'm still waiting for my genotype results to see what kind of hiv I have and what my resistance is, if any, then my doctor can tweek the meds if need be.
Glad to see you're educating yourself and reaching out as well, I think thats the best anyone can do. We just have to take care of ourselves and we will be fine:-))

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toolatelola
Newbie

Reged: 02/18/11
Posts: 3
Re: a not so happy new year. diagnosed 1-4-11. new
      #254480 - 02/22/11 05:35 AM

Oh HI Leahbeth! I was starting to feel like a big dork with my big fat zero response rating,like I said something wrong.I am sure there is some secret hiv etiquette that I dont know yet. like a secret handshake or something.
SOOOOO..... Thank you for saying hello!! Posting here is kind of difficult, this whole thing is such a roller coaster, some days I just feel too sad to say anything at all. and even at my best lately, I feel pretty un-interesting. So of course when nobody responded, I figured it was because I was being very boring.
I am very sorry to hear of your ordeal. Sounds painful and scary.
and how are you doing with your meds?? nausea can be pretty terrible. Hope it goes away soon. I may be starting meds in a couple weeks myself. It is a big decision for me since my #'s are still okay, from what I am learning, it is good to keep them up if you can.
I am having my genotyping and resistance testing done now, I should have results on March 2nd. I was asked to do a medication clinical trial and I am thinking about it. in fact, going in for a second appt with them on the 2nd...I know very little about such things but the pharmacist at my clinic is very knowledgeable and is actually going into the city with me to next appt....she is fascinated by the trial and used to work with these people. I am in very good hands. I love my clinic.
I hope you feel supported in this journey. The clinic people are my new best friends. LOL.


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leahbeth
Member

Reged: 02/02/11
Posts: 11
Loc: Canada
Re: a not so happy new year. diagnosed 1-4-11. new
      #254489 - 02/22/11 11:58 AM

Hi, lol..I know exactly what you mean with the zero response . I was feelin the same way..lol..maybe your right, there's some kind of hiv language we don't know yet..lol
Well thats cool to be part of a study like that, I wonder how to get involved for myself, I'de be interested in that too. Yes having some good docs on your side is really good. I have a good specialist and a good support agency, but I'm worried now because we are moving and unsure of what they have to offer where i'm moving to.
I also recently applied for disability income, waiting to hear if that goes through, I hope so..
Wanted to ask, what part of the world do you live in?
I'm in british columbia canada..

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bartlebyAdministrator
Admin

Reged: 01/19/10
Posts: 660
Re: a not so happy new year. diagnosed 1-4-11. new
      #254500 - 02/23/11 02:37 PM

hello toolatelola and welcome to the body. you didn't say anything wrong and, as far as i know, there's no secret handshake. your numbers are pretty good. let's hope they get better. let us know what you start on and how you tolerate it.

--------------------
Bartleby at The Body
Bulletin Board Administrator

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toolatelola
Newbie

Reged: 02/18/11
Posts: 3
Re: a not so happy new year. diagnosed 1-4-11. new
      #254507 - 02/23/11 05:36 PM

Hi!
I tried to respond yesterday but for some reason the system wouldnt let me send.....and it seems these days I give up easy on stuff like stupid old dumb computers. lol.
My clinic is good at treating me like I am uber-responsible. It is a ploy to get me to follow up on ALL of my stuff. Its working! lol.
That seems pretty scary to move to a new place at the very beginning...I would get all signed up with some new good clinic people before I moved a muscle.....that might feel comforting to you, to have a safety net in place. OMG listen to me, Ms. fly-by-the-seat-of-my-pants giving advice about planning ahead! LOL.
I am sure you know exactly what you need to do. I don't know if I could do it without my clinic people.
Exciting that we have a third on here!! even if it is the moderator taking pity on us. lol.
I hope my numbers go up too. I will definatly let all two of you know how that goes. It will probably be 3 weeks until I start.
Next wednesday is my appt, I will get another cd4 and viral load count, even though my last one was less than a month ago....they are doing the blood work for their trial. also, i will find out about my resistantance and the genotype stuff. I dont totally understand it all yet but I am weirdly excited to see results. I mean I understand why they do the tests and the basics......
Canada,huh? wow.....guess getting together for lunch is out I am near San Francisco. Its lovely here and I am sure" they" have their finger on the pulse of all this HIV stuff.
Gosh, I went on and on. Well, hope your nausea has let up a bit.....and I hope your spirits are up. Seems, no matter where you start with this, there is enormous hope for everyone. I really believe it that we are going to be ok as long as we stay on our game.
xo.

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Brittney
Regular

Reged: 01/27/11
Posts: 26
Loc: Minneapolis, MN
Re: a not so happy new year. diagnosed 1-4-11. new
      #254508 - 02/23/11 06:34 PM

Welcome to the body...i would have responded but i have not been on here in a few days and i normally welcome all new people...I am a 21 year old straight woman who found out on January 27, 2011 that I am positive and have for sure been through exactly what you are feeling...a little about me is i contracted it from a past partner that knew he had it but did not disclose nor mention anything about it when we had our little "talk"...i guess i felt to ashamed to actually take him into the doctor to get a definate answer before we started having sex unprotected. but i cant change things now and its what i do with my life now that proves my ability to move on with this in a more positive format. I live in the Minneapolis, MN area and even though it may be extremly cold up here I have found, what I think, is the best clinic around this area who have been working with me the best they can with offering support groups and even this website...but there are some great people on here and dont worry about how many reponses you get just know that the ones who do are willing to be here for you through every thing we are going through it as well...good luck and keep in touch!

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