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HIV Life >> I Just Tested Positive

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madisongurl
Newbie

Reged: 01/28/09
Posts: 9
Still in shock & worried about specialist meeting
      #244228 - 01/28/09 10:38 PM

Last thursday my ob/gyn called me in to discuss my test results ( I Took everything because we were planning on having a child). Everything came back fine except HIV turned positive. This doesn't make sense, and I pray my boyfriend is negative (but he's in shock and won't go to get the test).
My doctor called again today to say the 2nd round of blood tests came back. She didn't understand the numbers too well, and my specialist appointment isn't until the 6th of February. She told me everything is coming back fine Cd4 normal, but Cd8 elevated. No other problems. Does anyone know what this indicates?

Also, I may have Lyme disease which I would have contacted back in September that would also elevate cd8 cells could this possibly give false positive hiv test?

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Jackie__Blue
Legend

Reged: 01/20/07
Posts: 1186
Re: Still in shock & worried about specialist meeting new
      #244232 - 01/28/09 11:07 PM

I can imagine the shock this is to you. For now you need to focus on yourself. You are going to have a lot of emotions. Work through them. Things will look up. Education is key. The more you know, the more you can advocate for your own healthcare. It also makes the whole thing a little less scary.

When you think of a question. Write it down. When you see your specialist take that list. It's a bit unnerving especially the first time, at least it was for me so having things written down will help.

I don't know what, if any, effect Lyme disease would have on your test. That's the first question to put on your list.

I'm sorry that your boyfriend is having a rough reaction to this. It is a difficult time. Sometimes life is. All you can do is provide him with the facts and urge him, as you see fit, to get tested. A good thing to remember right now is that it is less common for a man to become infected from a woman. I will say, forgive my cynicism, that I wonder if his reluctance to test may have more to do with a guilty conscience. I'm assuming you have had unprotected sex with him. Did the two of you test together before giving up condoms?

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sick_of_fuckwits
Master

Reged: 01/26/09
Posts: 145
Re: Still in shock & worried about specialist meeting new
      #244234 - 01/29/09 04:42 AM

madisongurl

I am a little confused as to whether or not you have actually had two positive HIV tests, or whether you have simply had one set of bloods drawn and the results have come back in stages .. or whether you had one positive and a second which seemed normal.

If you have only had one positive HIV test, then that certainly isn't a definite positive and would need to be confirmed with a second test.

If you have had two tests, it seems reasonable to assume that one will have been an Elisa test and the other a Western blot test - so I will answer on the basis of that assumption, but it may be worth checking to see if that is correct. If the result hasn't been confirmed by at least those two tests, then it still isn't a definite positive.

The Elisa test alone can be inconclusive / deceptive and result in a false positives triggered by other conditions (such as lyme disease, lupus and syphilis). This is because it is designed to be overly sensitive, so that people who are HIV-positive aren't mistakenly told that they aren't, and this in turn is why a second confirmatory HIV test is always required for a positive HIV diagnosis.

If however you get a second positive result with a Western blot test - which uses a different method of testing - then that would generally be regarded as conclusive and it would, irrespective of the possible presence of lyme disease, be extraordinarily rare (something like a 1 in 25,000 chance) for that double positive to be false. It isn't however impossible, so what you probably need to do is ask whether or not a viral load (HIV RNA PCR) test was performed on your blood - if it was and that was able to find a measurable amount of HIV in your blood sample, then I am afraid that there would be no room for even a remote doubt about the result.

If a viral load test hasn't yet been performed, then I am sure your specialist will do it.

I am not going to speculate about why your boyfriend is reluctant to test - there are any number of reasons why people don't want to take a test, or want to take the test in their own good time, so it would be unfair of me if I were to plant any one idea in your mind.

For now the important thing is that you focus your attention on yourself and your health - be strong and, if you are HIV-positive, rest assured that the fact that your CD4 result is normal means that you still have the best possible prognosis.

As Esmerelda quite rightly says, now is the time for the education that will make this whole thing a lot less scary.

HUGS

--------------------
There's probably no God. Now stop worrying and enjoy your life.

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madisongurl
Newbie

Reged: 01/28/09
Posts: 9
Re: Still in shock & worried about specialist meeting new
      #244243 - 01/29/09 07:24 PM

Thank you both for your responses. The more I read and learn the better this is to deal with.

I'm not putting blame on myself or my boyfriend as it could be either of us who was infected first, and without him getting a test - which I can understand he's scared to do - there isn't much in a way of knowing right now. But, I'm not really concerned with how and who, but what we are going to do, and I am very happy to say that he is VERY supportive - more so than I thought he would be. If this were the other way around, I'm not so sure I could be so supportive as I'd be scared; but he's not - he even went out and bought our first box of condoms! We've been together 5 years and never used one before - now we will always.

Unfortunately, we may have learned our lesson too late. As far as the tests go, I took one HIV test and the doctor had the Elisa and a western blot done on that. That is when she called me into the office last week At that appointment she took lots more blood, I was in shock and didn't ask any questions. She called me the other day with the results, but she doesn't understand them as she doesn't work with HIV or infectious disease.

She was only able to tell me I have no STD, no TB, and most of the tests were normal the only one she said looked different was CD8 which was elevated. She did not tell me if a 2nd HIV test was taken though.

I do know that Lyme disease also does and Elisa and western blot - so we're still holding out that maybe it was a mistake and I am now Lyme positive. (I got bit by a tick late last year and took the test right away - which often times will be negative if you take it too soon for the antibodies to start building up in your system). So, we're crossing our fingers, but we are also aware that it may be I am HIV+ and no mistake was made. Lucky for me my boyfriend and my parents and brother are all VERY SUPPORTIVE, I have a family that loves me and that is making this bearable, because before I told any of them I just wanted to lay in bed and die...

Well, next Friday is the 6th of February and I'll report more after that appointment with the specialist.

Thank you for your support as well. Whether or not the specialist says I am or am not positive I would like to get to know you all. This has opened my eyes to a "problem" I was ignoring - being a middle class white girl what did it have to do with me? Sadly that's how a lot of my friends think too, and we won't be telling any of our friends our HIV status. That's going to remain a personal thing to family and us only.

On a side note, I found out today that my aunt had this happen to her - where they told her she tested positive and then when she went to the specialist they said she did not have HIV - so now my family is hoping it's something in our blood!

today was a good day, I didn't even think about being HIV positive and I HAVE NOT CRIED. Hope it gets better from here.

Edited by madisongurl (01/29/09 07:30 PM)

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sick_of_fuckwits
Master

Reged: 01/26/09
Posts: 145
Re: Still in shock & worried about specialist meeting new
      #244248 - 01/30/09 03:20 AM

Quote:

I'm not putting blame on myself or my boyfriend as it could be either of us who was infected first, and without him getting a test - which I can understand he's scared to do - there isn't much in a way of knowing right now. But, I'm not really concerned with how and who, but what we are going to do, and I am very happy to say that he is VERY supportive - more so than I thought he would be.




madisongurl

With that one statement you show that you are already setting yourself up in the right frame of mind. Wallowing in grief, anger and blame is utterly futile and wasteful, and in no way an essential step on the road accepting your status. The people who can instinctively bypass, or quickly learn to let go of, those emotions - and instead move on to focus on the positives and the constructive of making the best of the future - are invariably the ones who will succeed in making the best possible future for themselves.

Good for you and good luck.

R x

--------------------
There's probably no God. Now stop worrying and enjoy your life.

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madisongurl
Newbie

Reged: 01/28/09
Posts: 9
Re: Still in shock & worried about specialist meeting new
      #244433 - 02/09/09 07:04 PM

I'm still very confused now~ The specialist is not going to see me until APRIL now!!! The nurse called and said the doctor looked at the blood test results and that my VL is "good or wait EXCELLENT" and there is no need to see the doctor.

So, I still have no answers on the LYME possibility or anything and noone to be able to speak to until April *crossing my fingers the specialist sees me then*

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hopefulone
Master

Reged: 12/05/08
Posts: 130
Loc: NY, NY
Re: Still in shock & worried about specialist meeting new
      #244437 - 02/09/09 07:52 PM

just a thought...i found out i was positive december 5, 2008....i have had bloodwork done 3 times since then and december 5 would be a 4th time....i am going to have blood work done next week....the doctor is working to get a picture of the infection...of course for me i was likely infected around july 2008....

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sick_of_fuckwits
Master

Reged: 01/26/09
Posts: 145
Re: Still in shock & worried about specialist meeting new
      #244452 - 02/10/09 03:14 AM

Sorry to say this, but ...

If you have had a viral load test and they are still talking in terms of you being HIV-positive, then - unless they have actually told you that your viral load is so excellent that it is undetectable - I think it may be time to start accepting that you can rule out any remote possibility of lyme disease causing a double false-positive.

HUGS

--------------------
There's probably no God. Now stop worrying and enjoy your life.

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