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Happy2bhere
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New to all this
      #9029 - 08/30/00 06:58 PM

I just found out about a month ago, feel good. Viral is like 200,000 with a CD? (I still don't know all the terms) of around 202. I know that's not great, but I just came out of my first night with the meds. Sick as adog, but no worse than a hangover. My doctor says just stick with it and in 5-7 days, all that will go away. Just wondered how others were doing.
I'm taking Vit B6 and B12, C and garlic. Any advice? I'm 26. female. Also, is it a good idea to get that flu shot when flu season comes around, I have in the past, but know I'm scared.
Thank you for any and all support!




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Anonymous
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Re: New to all this new
      #9031 - 08/30/00 09:20 PM

Hang in there, you'll be fine! A lot of people understand what you're going through...stay strong.
If you don't mind me asking, what and when was your exposure? and did you have any symptoms?



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Anonymous
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Re: New to all this new
      #9040 - 08/31/00 09:21 AM

There are studies to show that HIV robs the body of sulfur. In the body sulfur is part of certain amino acids. Cystine is one that is safe to consume. Whey protein is rich in cystine.

Anti-oxidants are very important. N-acetyl-cystine (NAC) plus selenium form glutathione peroxidase probably the best antioxidant.



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Anonymous
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Re: New to all this new
      #9041 - 08/31/00 09:26 AM

HIV Infection Results in a Massive Loss of Sulfur

WESTPORT, Mar 21 (Reuters Health) - Data from three studies of HIV-infected patients show that these patients lose a massive amount of sulfur. The loss can be life-threatening and may contribute to the wasting process.

Dr. Raoul Breitkreutz from Deutsches Krebsforschungszentrum, in Heidelberg, and colleagues conducted the studies in Germany. They determined that the mean sulfur loss was about 10 g per day, equivalent to "an alarming negative balance of approximately 2 kg of cysteine per year," as they report in the February 10th issue of AIDS Research and Human Retroviruses.

The researchers also determined that patients with HIV do not produce more sulfur than normal, so that the loss of sulfur could not be accounted for by excess production. Highly active antiretroviral therapy did not affect this loss.

"The accumulating consequences of a steady loss of sulfur may eventually give rise to the wasting process," Dr. Breitkreutz's team speculates. "It is reasonable to assume that this massive loss of sulfur must lead to a life-threatening condition sooner or later."

AIDS Res Hum Retroviruses 2000;16:203-209.



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Anonymous
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Re: New to all this new
      #9043 - 08/31/00 09:31 AM

http://www.thebody.com/poz/partner/05_00/lab_blab.html

LAB BLAB
Get High on Glutathione

Sean Strub comes up short when tested for an antioxidant that's essential to his immune function and liver health

By Judy Shabert, MD, as told to Lark Lands

This month, Judy Shabert, MD, MPH, RD, a researcher and clinical instructor of obstetrics and gynecology at Harvard University Medical School who specializes in the nutritional aspects of HIV disease, analyzes the glutathione blood levels of POZ founder Sean O. Strub.

Although Sean's overall test results continue to look good -- with CD4s at 400 and an undetectable viral load -- a newly marketed blood test shows that his shortage of a vital antioxidant may spell trouble. A major 1997 study by Stanford University researchers showed a significant correlation between low levels of glutathione and shorter lives for PWAs. The measure of glutathione in Sean's lymphocytes (white blood cells that include CD4s) registered on the low end (shown as GSH LEVEL 476) of normal (shown as REFERENCE RANGE).

This low-normal reading doesn't cut it, especially since the test also indicates (not pictured) that his cells are highly activated -- mounting a vigorous immune response to HIV and other viral or bacterial assaults. When lymphocytes activate, they produce oxidative stress -- free radicals and other cell-damaging molecules that must be removed by glutathione for the cells to continue functioning normally. Without sufficient glutathione, CD4 cells are crippled. Oxidative stress, an ever-present problem in HIVers, can also be created by a long list of stressors, including all kinds of drugs.

The more stressors you have, the more glutathione and other antioxidants you need. Yet in most HIVers, these nutrients are deficient because the body burns through them to power its immune response, repair and replace damaged and destroyed cells, and break down medications. Too few antioxidants means oxidative stress runs unchecked, causing reduced immune function and damage to other body cells and tissues. In particular, research shows that low levels of glutathione promote CD4-cell suicide (apoptosis). So Sean may be experiencing needless destruction of CD4 cells, compromising his ability to fight HIV.

In addition, glutathione is the main detoxifier used by the liver to break down anti-HIV meds, including the Crixivan (indinavir), d4T (Zerit) and delavirdine (Rescriptor) that Sean is taking. Inadequate glutathione can compromise that liver capacity. A deficiency may also worsen the damage to the mitochondria (energy factories inside cells) likely caused by nucleoside analogs (drugs like AZT). Mitochondria require large amounts of glutathione for proper function, so insufficient production combined with high demand could also increase nuke toxicity. The result of all this for Sean? A bigger risk of complications from his meds and a lesser chance for long-term use.

If Sean were HIV negative, I might accept his low-normal reading as adequate. But given his body's high demand for glutathione, I would advise that he increase his nutrient supplementation. Since glutathione should be created inside cells at the moment that it's needed, it's best to give the body the building blocks (rather than glutathione itself) and let it do the rest. The approach I often recommend includes: N-acetyl-cysteine (NAC,1,500 to 3,000 milligrams per day), vitamin B-6 (25 mg, three times per day), alpha-lipoic acid (600 mg per day), vitamin C (1,000 mg per day), and the amino acid glutamine (five to 10 grams per day; for those with wasting -- which can deplete glutamine stored in muscles -- up to 30 to 40 grams per day may be required to reverse the condition and replenish glutathione). Altogether, the lower dosages of these nutrients cost in the range of $50 to $80 per month.

By optimizing his glutathione level, Sean will help keep his CD4 cells alive and well, boost his liver's drug-metabolizing and toxin-eliminating capacities, and limit the free-radical damage to his body. Last but not least, since glutathione is key to the ability to exercise -- during a workout, almost a third of the muscle tissue's glutathione is rapidly depleted -- maintaining a surplus allows the body to replenish itself. Unfortunately this doesn't relate to Sean at the moment -- he's been slouching off on his exercise regimen. Let's hope this fitness issue of POZ turns that around.




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Happy2bhere
Unregistered

Re: New to all this new
      #9044 - 08/31/00 11:48 AM

I am guessing my exposure came from very poor judgement and a free life style in college. Trusting men when I should have been using my head. My boyfriend also led a rather free life. My doc says maybe 5-6 years ago? But you never can be sure. My current and I have been together 4 years my last test before that was 5 years ago. Who knows. I started having chronic yeast infections and on a whim said, well let's check this. In a way I'm glad I did, but also I'm not. My boyfriend is really down about it and I've been trying to lift his spirit with hope. Let's face it, the meds now are SOOO much better right? I know some who are HIV+ and have never even taken meds and have been fine for over 15 years. So I guess you never can tell. Thank you for your concern and thoughts!! :0)



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HSO Webmaster
Unregistered

Re: New to all this new
      #9047 - 08/31/00 12:44 PM

The August issue of HEAL Seattle Online features an overview of supplements by Dr. Marie Adams:
http://www.healseattle.org



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Anonymous
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Re: New to all this new
      #9049 - 08/31/00 02:05 PM

Why you should not listen to HEAL or ACTUP/SF
http://www.actupny.org/alert/denialists.html




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Happy2bhere
Unregistered

Re: New to all this (with the angry face) new
      #9059 - 08/31/00 05:36 PM

I went to the website you suggested. I don't understand what you are trying to do. Please explain, as I am a bear of little brain.



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Anonymous
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Re: New to all this (with the angry face) new
      #9064 - 08/31/00 07:07 PM

Well, try this one instead. It's part of ACTUP/SF website showing what they want to do to HIV/AIDS funding.

http://www.actupsf.com/nav/aids/aids.htm



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HSO Webmaster
Unregistered

Post deleted by thebody new
      #9065 - 08/31/00 07:10 PM



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Anonymous
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Re: New to all this (with the angry face) new
      #9090 - 09/01/00 08:33 AM

What happened to Sean Current? Why weren't the HIV denialist able to stop him from getting KS in his lungs? Why did he change his mind after years of listening to them? Why did he start using HAART? It's because he couldn't deny that he was suffocating from KS in his lungs. That's why.


"Don't Buy the HIV Lie"
By Bruce Mirken

Former HEAL members who believed that HIV is harmless learn that they were wrong -- the hard way

For a decade plus, HEAL (Health Education AIDS Liaison) has defied mainstream science with its persistent, strident claims that HIV is harmless. In a successful strategy to
win converts from San Francisco to South Africa, the group spreads its gospel that AIDS is caused by noninfectious, "lifestyle" factors such as recreational drugs and
anti-HIV meds and that the research establishment is, at best, foolish and, at worst, murderous for pushing such meds. But recently a handful of ex-members of this "AIDS
dissident" movement have been diagnosed with AIDS and say that their embrace of alternative theories put them and their lovers at risk. One even flatly calls HEAL "a cult."

Until January 1999, Sean Current was an ardent dissident, arranging speaking engagements for movement leader University of California at Berkeley biologist Peter
Duesberg as well as giving many talks himself advocating the group's "Don't buy the HIV lie." Because he had rarely used recreational drugs and took antiretrovirals only for
a five-week AZT stint in 1990, Current believed that he was not at risk for AIDS, despite having tested HIV positive. As a result, he and his lover Sebastien, who was HIV
negative when they met, did not always practice safer sex.

Two years ago, Current developed his first Kaposi's sarcoma lesion and certain fungal infections common in PWAs. "I knew what a [censored] KS lesion was, but where I was
coming from, I couldn't believe that's what it was," he says from his San Diego home. He turned to fellow dissidents, including Duesberg, for advice, and says that he was met
with dismissal, scorn, even hostility. Alex Russell, assistant editor of the British dissident journal Continuum, e-mailed Current: "There is no HIV. You are not HIV positive, nor
is your partner, nor is anyone worldwide. Give up your HIV status-identity and get a life."

For six months, his health got worse. Finally last October, seriously ill, he started a HAART (highly active antiretroviral therapy) combination. "That was an extremely difficult
decision," he recalls. "But after two weeks of HAART and chemo, my lesions had flattened out and I could breathe again. Now I feel much better."

Recently, Sebastien not only tested HIV positive but is suffering from some of the same symptoms. His only risk factor for AIDS was unprotected sex with Current -- no
recreational drugs or the like. "I brought Peter Duesberg into my home, my town, to speak," Current says with evident pain. "I had just met Sebastien and I introduced him to
Peter, and Sebastien became a believer. I have to live with that."

In Seattle, Current met 28-year-old Egan (who asked that his last name not be used to protect his family's anonymity). An "ultradissident" convert after testing positive in
March 1996, Egan got word of HEAL members dying -- one in Seattle, another in Dallas -- and others getting sick, and that's when his doubts began. "I wanted to clarify
what our position was," he recalls. "Was it that HIV definitely wasn't the cause of AIDS, or that HIV had never been proven to cause AIDS?" This seemingly minor distinction
was crucial, he argues, because "to me what separated us from the AIDS orthodoxy was our ability to be open-minded. But what I found was that our leadership was
entrenched in a dogma that it would not let go of." Disillusioned, Egan left HEAL. In 1998, he too began experiencing health problems, including a CD4 counts that plunged
below 200. After waiting 18 months, he went on HAART. "Within five weeks, I noticed a dramatic change for the better in my health and energy," Egan says. He continues to
do well, combining HAART with acupuncture and other complementary therapies.

Christine Maggiore, director of Alive and Well, a Los Angeles offshoot of HEAL, says she has spent the past decade HIV positive, drug free and healthy. She vehemently
denies that the movement is close-minded. Insisting that her views are "always open to discussion," she then quotes HEAL chapter and verse: "Sean's experience of illness
does not convince me that registering positive on a nonspecific test for proteins that may be associated with past exposure to a retrovirus with no cell-killing mechanisms is
the reason he now has Kaposi's sarcoma." Her group, Maggiore says, "is about the right to self-determination in health matters. It's not a belief system that a person adopts
as a matter of faith when they feel well."

Another ex-dissident (who requested anonymity because his San Francisco business clients don't know he has AIDS) says that he ignored his failing health until
Pneumocystis pneumonia nearly killed him, and even then he resisted treatment. He was, he says, "in complete denial, as you are when you're in a cult," and likens it to his
experience as a Scientologist long ago. His health, too, improved soon after he started on HAART. In a letter, Maggiore blasted him as "a troubled ex-straight guy who sought
any scheme or treatment he believed might undo his positive diagnosis, suffered with constant infections brought on by unprotected sex, ignored his health problems."

Neither Egan nor Current goes as far as this man in their criticism of HEAL dissidents, but both acknowledge that there's too much rigidity in both camps. "There are days
when I don't know if all that has happened to me is related to HIV and days when it's the only thing that makes sense. I don't have a loyalty to either side," he says, but adds,
"What I'm doing with standard treatments seems to be working."



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HSO Webmaster
Unregistered

Anecdotal Evidence new
      #9094 - 09/01/00 12:12 PM

Happy2BeHere, recognize that anecdotal evidence can always be provided to support any conclusion. Every time evidence is presented that runs contrary to the HIV/AIDS belief system, the "Sean Current" dog and pony show is trotted out to serve as "proof" that the HIV/AIDS hypothesis is correct.

Here's my advice: what you should be looking for is Phase 3 clinical trials which prove conclusively that the new treatments are benefitting patients. I don't want you to believe a word I say, but rather I want you to take a complete look at all the information available and make a decision based on your own reasoning and intuition



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HSO Webmaster
Unregistered

Re: New to all this (with the angry face) new
      #9099 - 09/01/00 02:30 PM

GREAT! Why shouldn't we pull the plug on AIDS fraud? Are you suggesting that fraud is a GOOD thing?

Webmaster, HEAL Seattle Online
http://www.healseattle.org



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Anonymous
Unregistered

Re: Anecdotal Evidence new
      #9103 - 09/01/00 04:27 PM

HSO,

Using only peer-reviewed journals can you show us any phase III clinical trials which prove conclusively that *any* treatments are benefitting patients? Thanks.



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