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zee
Unregistered

happy anniversary
      #63816 - 04/17/03 11:15 AM

today is the six months anniversary of my HIV diagnosis. i am almost more scared today than i was on the day i got the news --- all the realities of what an HIV+ diagnosis means are sinking in. I am 25, female, live in the U.S., i have no health insurance or physician and i don't know what my "numbers" are yet.... because i am a volunteer i do not get paid, just receive room and board in exchange for working for a nonprofit organization. is there a way i can get these CD4 & Tcell tests done without my HIV status being reported?
Is it possible to go to Canada and get anonymous testing and treatment?
I am trying my best to stay optimistic and healthy but I can't tell anyone here what's going on (I live in the place where I work, so it would be very awkward) and i feel totally alone.
thanks for taking the time to read this.
z



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Jackie_Blue
Legend

Reged: 10/26/00
Posts: 2028
Re: happy anniversary new
      #63900 - 04/18/03 08:16 AM

Canada has a national health system so you have to be a citizen in order to see a doctor.

Most states use a number system for reporting cases and some states only report AIDS cases not HIV infections.

People that know you won't being reading your name somewhere on some list, the reporting of infections is for statitical purposes.

The exchanging of health information is strongly regulated. On the form to release my medical information from my HMO, there are two places for me to sign. One for general medical information and one specifically for my HIV treatment information. If I don't sign the specific release of my HIV information, then it isn't released.

Not getting the medical attention you need because you are scared of being reported isn't a good reason to put this off.

Not having health insurance or money for a doctor is a much better reason, but there is help. Get in touch with your local Aids Service Organization. They are a great resource.

Ours not only helped us pay our bills when my husband was waiting to be approved for SSDI, found a pro bono lawyer for us when he wasn't approved, told us about a state program that would pay our monthly health insurance and they also have a clinc. Many of them do, some can help with doctor's bills, some can help with prescription costs. Many also run support groups.

NOTE TO ALL: About those clinics....anybody that might have changed medications and have unused & unopened prescriptions please donate them to your local ASO. These medications are too expensive to waste. Get them someplace where they can be put to good use.





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Carey
Unregistered

Re: happy anniversary new
      #63906 - 04/18/03 03:28 PM

Hi Zee: I agree with Jackie totally. You should realize that your life is in your control! You can survive this, but you MUST get your numbers! and find a terrific HIV specialist. if you have NO money you should go to the largest AIDS service organization in your area or travel to one if you feel more comfortable. And you should get a caseworker--someone at the AIDS organization who will help you get care. Too many women don't get the care they should get! Also read through this section http://www.thebody.com/features/women/ it has a lot of great stories abut women with HIV and some resources too. YOu can call women alive and talk to other women with HIV
800-554-4876 they are in California and have this hotline.

Also, you should know that in the United States...there are programs for people who don't make any money--or even make some money. AIDS Drug Assistance Programs throughout the states pay for drugs and there are free clinics where you can see a doctor. In the big cities there are a few AIDS clinics that are really great. If you qualify, Medicaid can also help and you may be entitled to housing as well...but the best thing is to find a caseworker! Good luck and let us know how it goes...



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