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Anonymous
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i was diagnosed with KS ....
      #559 - 03/30/00 02:52 PM

I was diagnosed with KS in 1985, but was cleared in 1988, using
AZT and interferon. Since then, my only problems have been minor,
with most being side effects of the medication. To fight wasting,
I started hormone shots in 7/94. I've always have had a good
body, but my arms and shoulders seem to have a definition now,
that I wasn't quite prepared for. Strangers stop me on the
streets to comment. It's weard! Anyway, I'm doing extremely well,
and sometimes I feel bad that others with AIDS cannot do as well.
Are there others out there like me, into their second decade of
full blown AIDS, and still doing great? I write a column for an
Atlanta newsletter for the AIDS Survival Project, called Survival
News. The column there is called Positive Attitude. My nephew is
going to add the column soon on his home page which can be
reached at http://mason.gmu.edu/~jstanle!, if anyone is
interested. He will call it "Long Term Surviving". I quit work
last year, due to fatigue and cardio/myopathy, which is probably
a side effect of the interferon. I stay as busy as the fatigue
allows as a full time activist here in Atlanta. I do work for the
AIDS Survival Project and the local Ryan White Council.
Sometimes, it runs me down, but it feels good to see that I can
actually have an affect. Anyway, that's the short version of my
story. I can be reached at dstanley@america.net. Don't try to
sell me anything, as my cash flow is negative, even on
disability, but I am interested in how others are successful.




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