Advertisement
The Body: The Complete HIV/AIDS Resource
Follow Us Follow Us on Facebook Follow Us on Twitter Download Our App
Professionals >> Visit The Body PROThe Body en Espanol

HIV Life >> Living With HIV

Pages: 1
Anonymous
Unregistered

PML
      #46545 - 12/04/02 06:18 PM

Anyone out there dealt with, any positive feedback or helpful information. THe Doctors basically thought my husband was going to die within about two months when he was diagnosed in May (he's been pos for 12 years) They put him back on meds (he had taken a meds vacation) He has to use a walker to get around and he has speech problems BUT guess what he is alive and his last MRI result was normal.....Bad thing is there just doesn't seem to be much information of the helpful I'm going to live type out there
Any feedback>>>>




Post Extras: Remind Me!   Notify Moderator  
Anonymous
Unregistered

Re: PML new
      #46697 - 12/04/02 11:15 PM

There is some information on PML:
http://www.thebody.com/treat/neuro_pml.html

But the best thing to do is to get some support...find out more about his condition and how he can improve. And you should get some support for yourself! YOu are going through a lot!

For treatment information, call Project Inform:
They have a national HIV treatment line: 800-822-7422

to find out where you can get support
call the National AIDS Hotline:
800-342-2437 (24 hours a day, daily) and they can tell you what is the largest AIDS organization in your area. And you can also talk to them.

Good luck!



Post Extras: Remind Me!   Notify Moderator  
Anonymous
Unregistered

Re: PML new
      #46741 - 12/05/02 11:41 AM

If he can tolerate the HIV treatment, he should do fine. It's important that he stay on HIV medications...the medications will stop PML from progressing. He needs to take every dose and be really careful about this and he should do fine. You can help by being really supportive.



Post Extras: Remind Me!   Notify Moderator  
Anonymous
Unregistered

Re: PML new
      #50150 - 12/18/02 10:20 AM

I am glad your husband responed to the med and is still alive.I started 3 years ago with a combo of meds 8 twice a day, it got my 50 tcell up to 451 and I was (undectable within about 4 weeks). the meds made me fill like I was sick all the time, I had to take them for over two years.
about 6 months ago my dr. change me to 5 pills a day and they do not make me fell sick at all and right now my tc4 is 751, I was told that it would be very unlikely that I would ever have that high of tc4 count but they are coming up with new things over the years and I think that we can live for decades instead of years. Good luck and God bless us all.



Post Extras: Remind Me!   Notify Moderator  
Pages: 1


What's New at TheBody.com

Additional Information
0 registered and 1 anonymous users are browsing this forum.

Moderator:  TheBody, bogart, crabman, riverprincess 

Permissions
      You cannot start new topics
      You cannot reply to topics
      HTML is enabled
      UBBCode is enabled

Thread views: 1443

 
Jump to

Contact Us | Privacy Statement The Body

*
UBB.threads™ 6.2.3