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SMARS
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Reged: 10/05/11
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HIV Status on Death Certificate
#260854 - 02/02/12 10:35 AM
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I was told by the Health Professional here in the US that they have to put my HIV status on the death certificate. Considering the religion, culture, family and how I have been keeping this confidential between me and the only one person that I trust, I was really surprised to hear that. This is devastating for me. I am hoping there is something that can be done before I do something drastic like move to a different state or country where I would die and no one would have my records. This is going to be the last piece of paper from this life and I would hate for it to be this way. Ideally, I would like to see that I have died from cancer or Lymphoma which is the case. As far as the final prep of the body, it is our faith that a family member that I trust and aware of my situation that will wash me before bearer anyway. I don't see how I am risking anyone's life by wanting to keep this confidential. Can you please let me know if anyone has any suggestion on how I can prevent this from happening?
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riverprincess
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Reged: 12/25/11
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Loc: Jersey Shore
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My first thought is why are you worrying about your death? You should be focusing on living your life. With that said I believe that your certificate is kept as any private document. It's not public record and I doubt anyone would take the time to try to search it out. But to talk about moving to different state or whatever , that will bring more attention to you than anything else. Stop pannicking over something that is far down the road and live for today. Hasn't your religion taught you that .
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SMARS
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Thank you for taking the time to share your thoughts. My post was specific about the death certificate and HIV status. I didn’t share other information because it wasn’t relative to what I was asking. If you MUST know, I have spent several months in the hospital fighting cancer. I finally accepted my faith with the doctor’s support that I should try to live my remaining a few days without chemo, tubes and attachment. I believe in God and only God can take my life. One MUST also accept reality and accept what was written for him. I know my days are numbered and I am happy to be out of the hospital with the ones I love.
As far as the certificate, you are wrong. Every state has their own rules and it isn’t a private matter or at least it isn’t unless you fight for it unfortunately. Not everyone goes through the same thing and I wish this world was different and open minded about this matter. I lived in different part of the world and I have seen how people get treated. I am fortunate to be back in the US and this is the last thing I expected when I was told that the world is going to know about my HIV status including my own family. I believe is a private matter and I should be able to make that choice and who should know.
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AIDS2HIV
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Legend
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Reged: 12/19/05
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HELLO???? AFTER YOUR DEAD, YOU ARENT GONNA DEAL WITH OTHERS OPINION.....
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riverprincess
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Well I am truly sorry about your battle with cancer . Your family and friends should realize that it's not the Hiv that is causing you the problems. And they should assume that when you life here ends it will be due to the cancer. I really don't see how your certificate can give the cause as aids when it isn't . But bottom line my friend, is it really worth worry about. Do you want to spend you last year or whatever worrying about others thoughts.The focus should be on the love and life that you've had. I had 2 dear friends write their good-by letters to their family and friends. And it was soo special for those that heard it and for the one writing it. Just something for you to think about. Stay in touch if you want. I'll keep you in my prayers .
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I'm very sorry about your situation. I pray for your recovery. For me, I don't care what the document says or what people think of me after I'm gone. Life is tough and I believe when I go, I'll be going to a much better place. I'll miss my loved ones and I know they will miss me but after I'm gone, i won't care what anyone thinks about me, finds out about me etc... I did my time and tried my best, That's all I care about. Take care of yourself. Peace.
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I am sorry you must stress about this. Perhaps it would make you feel better leaving a letter to that person in the event that you cannot have the status removed. You could acknowledge it. That may make you feel better? Just dont leave it in a place where it will be found in your life. That said... what I'm reading sounds like it's up to the doctor and coroner as to what is listed on the death certificate, and usually they do not list HIV. I can't find clear regulations on this online anywhere.
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alive2
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when i go, it wouldnt matter what people say or do. i keep my personal information personal but when i leave this world it wont matter to me cause the body is nothing without life. if people make something about it when im gone so be it, it will only show those left behind why i kept my information private. do as you must but to worry what people will think, thats not something you should worry about.
Edited by alive2 (03/03/12 05:13 AM)
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Cruhaven
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Reged: 11/22/11
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Unless it is sealed by a Court order, all death certificates are public and anyone can view them. They are not protected.
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