|
|
I AM AT WITS END WITH PCP PREVENTION
#244737 - 02/21/09 01:54 PM
|
Reply
|
Quote
|
|
|
I have used Bactrim only to discover that I'm allergic to sulfabiotics; finding out the hard way was not fun. I switched to Dapsone and within a week I had hives again, at that point I decided to switch doctors because I was also dealing with a syphillis infection which I eventually had to take care of with the new doctor. So I was hopeful that maybe the hives were a result of the syphillis infection so I gave the dapsone another try. I took one pill (AS PRESCRIBED) and within a few hours I was covered in hives, I had a 104 degree fever, and a really high heart rate and I was really scared that I wouldn't recover. Maybe I was being dramatic, but it was a traumatic experience. Now I am on mepron. Mepron is the color of paint, it is pretty much the same consistency and it tastes horrible. Online information says that it's citrus flavored (bullshit, find me an orange or lemon that tastes like that crap). Anyway here I sit now writing partially covered in calamine lotion because once again I have hives. I feel like maybe the hives are stressed related but I don't know. I'm really concerned because my cd4 count is under the 100's, my friend told me not to be concerned about the numbers after his came back 500+. I just want to get healthy and I am putting forth the effort and the good energy. I am not on ART, but I will be starting soon. I just want to get healthy but it seems that ever since I started these antibiotics I have been in a less than favorable condition. Because I have not had any other symptoms to accompany the hives and because they are only on my arms as opposed to my entire body like with the bactrim and dapsone I feel like maybe I should just keep taking it and hope for the best, but I don't want to make things worse. As far as I know though mepron is the last stop on the pcp antibiotics train and I just don't want to be so quick to discontinue something that can improve my quality of life. but as of yet the quality of life is not being improved, I'm somewhat shallow (don't judge me LOL) and hives are just not the accesory I want. What do you think? I really don't know what to do
Post Extras:
|
|
|
|
I think you are a drama queen and need to chill out a bit .. and once you have done that, arrange to see your doctor again.
I suspect there is a lot more going on here than you are telling us. For starters, on top of dealing with the HIV, you have now gone and gotten yourself into the stupid position where you have syphilis, when you already had a CD4 count low enough for an AIDS diagnosis. In doing that you have single-handedly crashed your immune system / CD4 count to a point where you are now vulnerable to not only PCP, but every other opportunistic infection in the books .. yet you are worried that hives isn't a good accessory?!?!?
Someone needs to give you a good slap, sit you down and tell you to start getting a serious grip, ask you what is really important to you and then tell you to start getting your priorities sorted out.
You tell us that you just want to be well again - yet if you really feel like that, why have you have gone and done just about the most disastrous avoidable thing that you can possibly do for an immune system that is as depleted as yours? That isn't the act of someone who wants to be well again - unless they expect to get well with no effort or concessions made on their own part .. and that isn't ever going to happen.
There is nothing else I can responsibly say. You need to see your doctor, get your head sorted and start taking a bit of responsibility for your own health (because no-one else will if you don't) - that is all there is to say. I am sorry if this comes across as a bit harsh, but as far as I can see you need a serious dose of tough love here. Maybe someone else will give you the hugs and the soothing words, but I am just sat here shaking my head in total disbelief.
--------------------
There's probably no God. Now stop worrying and enjoy your life.
Post Extras:
|
|
|
|
Well tough love is fine but I don't need a jerk making judgements based on false assumptions. One I had HIV and syphillis as a coinfection not as separate incidences. I was with one man and we had one night of unprotected sex and now I am hiv-positive so SCREW YOU! I do want to be well I eat healthy, workout, and see my doctor regularly so don't you dare judge me. I did not ask for someone to get on there high horse and look down on me and you don't even know me (how dare you!). There is no other secret things to tell and if you were unclear of the situation you should have asked me before launching into your tirade. Now if there is anything else you would like to know please feel free to send me a message.
Have a good day
Edited by southerncharm (02/21/09 04:14 PM)
Post Extras:
|
|
|
|
So you are only just getting treatment for the syphilis now .. and your CD4 has crashed from close to 200 to below 100 in a matter of weeks, despite the fact that long-standing syphilis is now getting treatment? Find someone else to fool kiddo, cos it ain't washing. Have fun playing the drama queen and do call when you decide to get real.
PS: I suggest you get that paranoia checked out too, because no-one is looking down at you .. well they weren't, but they are now, arsewipe.
--------------------
There's probably no God. Now stop worrying and enjoy your life.
Post Extras:
|
|
|
|
You know what I was diagnosed with HIV in august. The first doctor did not want to treat me for the std until I got a lumbar puncture, and my new doctor said that it was not a necessity. My first CD4/viral load test was 94 and 18K. I don't understand what your problem is. If you want to be a jerk to someone there are plenty of people on line, but I am concerned with opinions from people who are generally concerned with others. Not everyone is diagnosed with HIV immediately. I didn't even know I had it until I had a staph infection 3 years after my intital infection. You are still making assumptions and you are wasting bandwith
Post Extras:
|
|
|
|
I am not making any assumptions - I am reading what you post and according to your own post a few weeks ago your CD4 was 194 (and even now that you have gone back and edited it - perhaps you forget that we can see which posts you are editing - your numbers still doesn't agree with what you have just told me). Maybe you should get your story straight .. and when you have done that, work on a believable one rather than cussing doctors out as quacks and trying to blame everything on them.
As for all this nonsense about not everyone being diagnosed immediately, I can only assume that your guilty embarrassment drives you to introduce that irrelevance to distract attention from how completely unbelievable your fabricated nonsense about your doctor refusing point-blank to treat either your AIDS or your syphilis for more than six months since your diagnosis .. because I certainly haven't even mentioned anything about that.
Anyway, I'm not wasting any more of my time with a a worthless, ignorant, attention-seeker like you. Have fun .. and with that I am done with The Body for good.
--------------------
There's probably no God. Now stop worrying and enjoy your life.
Post Extras:
|
|
|
|
I have never posted or edited anything of the sort, but now that you are done, hopefully someone can help me because I am really concerned.
If this mepron is causing me to react are there any other options for PCP prevention?
Post Extras:
|
|
|
|
The best place for you is with a doctor not on here, thanks for sharing with us your difficult times, nobody here can advise you on the conditions you describe except your doctor, let us know how you get on.
--------------------
How Many Roads Must A Man Walk Down Before He Admits Hes lost
Post Extras:
|
Previous
Index
Next
Flat
Threaded
