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dementia - what are your experiences
#242170 - 09/21/08 07:32 AM
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lets talk about this late stage debilitating aspect of HIV
Can it be treated,
willl everybody get it
do the modern drugs help
early indicators.
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How Many Roads Must A Man Walk Down Before He Admits Hes lost
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well isn't this a surprise
an opportunity exists to talk about dementia...........not a word
didn't expect there would be.
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How Many Roads Must A Man Walk Down Before He Admits Hes lost
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OhTam
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Regular
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Reged: 02/03/06
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Posts: 33
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Loc: Ohio
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well smart ass maybe thats because some people are busy in real life and have not seen it yet . Are you out to start yet another argumentive post?
To answer your questions:
Can it be treated,
There is no cure for it, if caught in very early stages there are some somewhat experimental trials going on to see if there are some meds that may SLOW the progression. So basically the answer would be not really treatable as it will still get worse for some it may progress faster than others.
willl everybody get it - well does everyone get alzheimers? It is believed that most will experience it at some point
do the modern drugs help - see the first answer
most do not recognize that what is happening is actually the dementia progressing.
I usually sit back and read here,not reply much, but I will have to say I have been reading alot lately and it seems that you are out to cause a stir in one way or another. I honestly hope NO ONE else answers this post so that you will not receive the attention you are seeking and I hope they realize what you are doing and do not let you succeed, although I am pretty sure I KNOW one person that will reply LOL.
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if it weren't for all the trash in this world we wouldn't need garbage men!
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AIDS2HIV
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Legend
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Reged: 12/19/05
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Hi Cunt....
I will say, it's about time, what "Body" would be complete without a cunt? as for your info request.....You have clearly stated it is not needed here, so you are all on your own when it comes to actual help. But Tam is write, this isnt about anything genuine other than your genuine underlying motive to stir shit.......a.k.a forum Troll* You arent the first Troll, nor the best, nor the last. you many more qualified that have come & gone before you, from the AIDS infected Bloody CheeseBurger, to the "striipper douched my face and gave me HIV, that bitch*" threads*
the more I see out of you, I am inclined to believe you arent really one that comes here to gratify your own sickly twisted head, most likely the bored child of one of the new owners*
Also, in your other posts you made it clear that you nor anyone else needs to hear what other's who already been further down the road they will ineveitably face themselves, as you have clearly stated you know everything there is to know about this rosey, no longer life threatening disease.
You lead I have far bigger fish to fry than waste my time with someone with less mental compacity than I have, even after AIDS ate mine up. I've done more selflessly for my real life community, than most anyone on this boards have, most cant get passed something as simple as "fear" or even simpler "denial"
Offer still stands on the lab visit to put your money where you mouth is on your argument....lets see who is actually right* But I wont expect you to accept the offer, especially when your profile reads the truth about you getting an IQ test, and was found to be negative* That truely does show in your posts and behaviors
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love the cunt bit............perhaps the male ass being the equal in your environment. I see you have learned nothing about how to post on a public forum, again showing how disconnected your brain is from the rest of your body, remember the reason you are slating me, because I pointed out to another poster how ignorant they where at when someone wanted to share some happy times they where having.
I guess the isn't much to learn from you anyway, you seem more intent on spoiling this very good resource for people living with HIV.
Just keep on doing what you are doing, the rest of the community here will soon get to know what and who you are.
And to ohtam, no actually, I believe it is something for real disscussion here, something we should all be aware of, it seems there are many suffering here already and perhaps (in it's own thread) they can share and enlighten the rest of us about this seemingly very debilitating evolution of HIV.
Nobody is stiring anything and although a couple of people here keep pointing fingers at me I am not trying too.
there are too many big ego's here that really need to be brought under control, I just hope that it isn't some kind of side effect from HIV or the drugs, can't stand rude people.
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How Many Roads Must A Man Walk Down Before He Admits Hes lost
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there are too many big ego's here that really need to be brought under control, I just hope that it isn't some kind of side effect from HIV or the drugs, can't stand rude people.
We would have to start with yours, if you can control you ego, just a little then perhaps things will be a little easier to deal with for the rest of us.. Again my patience and time does not allow me to continue to point out your flaws, but all us need to find some common ground and move forward. However, as I have stated before I am not the one to take abuse, then that would make me a victim, it appears that you thrive on that, just saying. D
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AIDS2HIV
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Legend
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Reged: 12/19/05
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Quote:
love the cunt bit............perhaps the male ass being the equal in your environment. I see you have learned nothing about how to post on a public forum, again showing how disconnected your brain is from the rest of your body, remember the reason you are slating me, because I pointed out to another poster how ignorant they where at when someone wanted to share some happy times they where having.
I guess the isn't much to learn from you anyway, you seem more intent on spoiling this very good resource for people living with HIV.
Just keep on doing what you are doing, the rest of the community here will soon get to know what and who you are.
ummm, not to make you out to be the dumb new person, but......ANYONE can look at any of my posts here, and in all honesty, loved or hated, I'm one of the more respected, perhaps you should put your health where your mouth is, and come, "walk a mile in shoes"........
What do YOU know about a resource, you dont do anything with your HIV, cuz either you dont have any or you HIDE behind your HIV in fear of its capabilty. personally I find it funny and flattering, that I consume so much in you, from such a far distance, yet you try to portray how "well structured" your psyche is, compared to everyone elses.....what a fool you are*
This great resource you reference, was so great it had to sell out or die*. Mostly due in part to members like you. Over-Dramatized Grandiosity to say the least...when the realty is, there really isnt nothing grandiose about having HIV. I find it quite amusing to see those who side with you and your behavior, all share the same common denominator, you all hide from your HIV reality in real life (in one fashion or another,most commonly multiple fashions), in your community, in your families & friendships.......do your homework on me. I'm not hard to find, I dont hide at all. and I am fearless when it comes to letting anyone see what my stage of this disease is doing to me,my family, my community....something none of you on this "Happy happy joy joy" false sense of hope, could even muster the courage to do.
Soon as our new house is bought, it will be wired to stream Live video into classrooms so students,& adults as well, will be able to see the reality of AIDS related dementia. again.....something none of you would ever do with your illness.
There is a difference between those who login on the internet to justify saying they care and want make a difference, and those who actually get out there in their real community and do just that. Your High horse isnt nothing more than a shetland pony...
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ScotCharles
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Legend
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Reged: 05/06/05
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Loc: Los Angeles
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Well my dear, I think you have found one indicator of dementia which is inappropriate anger.
My diagnosis of Minor Motor Cognitive Dysfunction, a type of HIV Associated Dementia, came about because I noticed that the quality and quantity of my work was decreasing despite all my efforts to improve my performance. My first episode of the motor part of the dysfunction happenned in October 2006 when I lost strength on the left side of my body for three days. In February of the following year, I froze in mid-stride while running to a meeting. My neurologist at the time dismissed my symptoms as psychological as in "Now, now dear, you know it's all in your mind."
It took me another year and half of persistance before I was finally diagnosed by a competent AIDS experienced neurologist and told I had to seek a disability retirement.
Now that I am retired, I find that the absence of stress in my life has greatly reduced my symptoms. However, I have developed severe depression as a result of the effect of the virus on the mood centers in my brain.
I have not been very adherent at all to my meds since I started taking them in 1993. I have always found the side effects to be extremely unpleasant and because of that, and perhaps the effects of HIV in my brain, I have gone for long periods in which I did not take my meds.
My viral load has generally been less than 5,000; but, my viral load has gone as high as 500,000. My CD4 has never been less than 200.
My AIDS specialist tells me that CD4 and viral load are not correlated to the risk of onset of HIV Associated Dementia. The virus infects the brain early in the course of the disease and remains there protected by the blood brain barrier; but, held in check by the little bits of meds that pass through the barrier.
I find the symptoms of dementia to be interesting if at times spooky. I have visual and auditory hallucinations, which I used to say were evidence I was psychic. Now I know them for they are - the memories of dying brain cells gasping their last. The muscular weakness is controllable if I am aware of my body and know when to rest. Generally, I find that every half hour of effort requires two hours of rest. I cannot drive nor take a bus because of the muscular weakness and mental confusion; however, now I rely on the kindness of strangers to take me where I need to go.
Will everyone get dementia? Who knows. The best advice is adherence to your meds and learning not to think too much about what may happen in future.
ScotCharles
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Life is a river.
Carpe diem.
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quote ... Again my patience and time does not allow me to continue to point out your flaws...
so you think I was wrong to draw attention to SC's post about the numbers meaning nothing when the OP was trying to be upbeat, if that is a flaw as you call it - then there will be many more on here I'm sure. There is a right place for everything.
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How Many Roads Must A Man Walk Down Before He Admits Hes lost
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SC great post again and thanks for shareing, it isn't easy I'm sure, the observations and experience you posted is of great value to both me and I'm sure many others here, If you lived in my nieghberhood I would be more than happy to offer assistance in what ever way I could, but I'm sure you are not alone,
I'm sorry about the depression, not an easy thing to deal with, I hope and pray your situation will improve, your posting here is very valuable to everyone I think.
I assume you are now taking medication, is that helping ?
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How Many Roads Must A Man Walk Down Before He Admits Hes lost
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AIDS2HIV
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Legend
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Reged: 12/19/05
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I'm not who you quoted this time, but YES I do.....simply because I am most positive that WB wouldnt have even thought twice, if anything, may have took SC's insight as such...insight*
YOU have no more business telling anyone how to they should act, when you YOURSELF wont even be account for truth of your actions, and their intentions*....and YES, THAT is what started this cunt......not the person you blame, not the original poster, not I........YOU!!! you just couldnt leave well enough alone, without having to STIR something up* Shows what kind of person you really are....the fake, untrustworthy, so miserable in their own skin they have to make someone else feel miserable just to make themselves feel better, kind*
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AIDS2HIV - why don't you just quit now, your posts are getting more and more rediculous every time, you are not taking up any of my time, if anything I have sympathy or maybe pity for your efforts, I think you need to hit the big reset button and gather your thoughts as to exactly what you are trying to achieve. That is all I am going to post to you here until you decide to behave yourself
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How Many Roads Must A Man Walk Down Before He Admits Hes lost
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AIDS2HIV
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Legend
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Reged: 12/19/05
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and Cunt, here in this thread you have only proven yourself & your intentions........doing EXACTLY what you accused innocent people of doing........only this time YOU started the Topic, only to hijack it yourself with the goings of your last mess you made of a thread*....hypocritical to say the least, 2 faced for sure*....
wonder how the world views you now....
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and your on topic post on this thread was ?
just pointing out your missgivings
last reply to you until we can get some sense out of you
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How Many Roads Must A Man Walk Down Before He Admits Hes lost
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AIDS2HIV
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Legend
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Reged: 12/19/05
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hahaha...and the nerve to call ANYONE rediclous, especially in reference to their posts.......look over your own posts. You know if you took the time and effort to take your own personal inventory of your actions and judged yourself for them....you wouldnt have time to take someone else's, which no matter how Holier than thou you think you are, you have no right to take another's inventory*
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