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HIV Life >> Living With HIV

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norvasc
Newbie

Reged: 08/12/08
Posts: 7
long term non-progressors
      #241319 - 08/12/08 04:39 PM

I tested positive over 20 years ago. I attempted suiside at the time because at that time you were going to die a horrible death. I gave all my expensive personal stuff away, was terribly depressed. I have survived, I have no viral load, my blood has been sent to three high tech labs one in Boston, one in Winnipeg, can't remember the third lab but it was in the states too, the blood was genetically manipulated and no viral load was ever seen. My doctor wanted me to have another HIV test, I have been tested through out these years about eight times and all are positive, I refused. I am due for my blood to be tested again for T-cells and Viral load and the Cd4 count, and every time I need to go and do this I get a bit down. When tested positive I just became a registered nurse, and I work now and for many years in an intensive care unit where we still get patients not doing so well with aids. I don't say what my status is with anybody at work. Many doctors are still saying stuff like in the past, if you got hiv or aids, this or that will happen. Or because of your hiv or aids this is why this is happening. I do get very angry inside because this is not true for all people who get in contact with hiv or aids. We don't all get sick. Another friend of mine who is German and lives in Germany is the same as myself. Infected for a long time but no viral load. My own doctor does not know what to think about it, but says to me to be happy. I am for sure but.... I have since got my degree in nursing, I did not die and was not getting sick, so in year four my depression and dooms day gloom was lifting. I have been now in a 20 year relationship my lover at the time left me. I exercise and I feel great and just started martial arts which I love, I quit smoking, since I am healthy I started to live healthy. Sometime though with the media and other sources I feel like I am stigmatized. My partner and I have an open relationship, and when you do have the occational fling with somebody well, it can be akward, and you are made to feel you are part of the unclean, unfit etc. My partner new I was Hiv pos when we got together. He is healthy fit but does not know his status as he refuses to be HIV Aids tested. We have not alway practiced safe sex but he show no signs of any ill health. I was being taken care of quite a few years ago from now by an Aids researcher/specialist at a teaching hospital and on occation a resident would come to see me in his place, and then I would see this resident at my place of work another teaching hospital, I finally had to say to him, I only want to see you and not your residents as they see me at work and they ask silly question, one resident felt I should not be working, he looked after me for about a year longer and then he said to me, my doctor, you know, your not sick enough for me to care for you, you should get another doctor. Anyways that is my story. I still get down now and then, but I know that I am lucky, and I don't understand why more research is not done on people like myself. I get really compationate at times when I have a patient who is dying of aid and I sometimes feel guilty. Being a nurse and in an intensive care unit, I have had my share of people dying Aids or no Aids, but when they are gay and have aids it is sad, and difficult.

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cunta_stalwart
Grand Master

Reged: 06/27/08
Posts: 175
Re: long term non-progressors new
      #241327 - 08/13/08 12:55 AM

it would be my understanding from what you say that your body defeated HIV and has antibodies like it would any other disease it defeated, if you have no VL for HIV then you must no longer have an infection, your body defeated it.

How where you infected if you don't mind me asking, did the person involved survive (if you know)

Have you suffered from any other illnesses in your life, do you ever have indigestion problems.

sorry for the questions.

--------------------
How Many Roads Must A Man Walk Down Before He Admits Hes lost

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norvasc
Newbie

Reged: 08/12/08
Posts: 7
Re: long term non-progressors new
      #241332 - 08/13/08 08:41 AM

No I do not know who I got infected from, I was permiscuous. I think I got it at a Seatle bath house I was 25 years old. Early 80's. I always test positive. My VL is not detectable. I am not sure if my body defeated it or not, nobody seem to know. I don't have digestion problems other than the odd acid upset if I eat too much tomatoe based foods. I don't mind the questions.

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cunta_stalwart
Grand Master

Reged: 06/27/08
Posts: 175
Re: long term non-progressors new
      #241341 - 08/13/08 01:18 PM

very interesting subject

you should have spent most of your life in a lab to help the rest of us :-)

you lucky sob

--------------------
How Many Roads Must A Man Walk Down Before He Admits Hes lost

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norvasc
Newbie

Reged: 08/12/08
Posts: 7
Re: long term non-progressors new
      #241434 - 08/16/08 09:50 AM

Yes I am lucky, I came on here to see if there are others like myself. I came on here because I do have to go and get my blood tested again, which upsets me. I came on here looking for updated information.

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oldwoman
Guardian

Reged: 05/12/07
Posts: 435
Loc: Phila,Pa
Re: long term non-progressors new
      #241613 - 08/23/08 05:10 PM

I'm a little confused,are you saying you have no viral load as in they looked for HIV and found none or are you saying your viral load is undetectable which means(in most cases,depending on which lab the Dr uses)that you have a viral load of less than 50?
Terry

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norvasc
Newbie

Reged: 08/12/08
Posts: 7
Re: long term non-progressors new
      #241621 - 08/25/08 08:27 AM

Yes, the labs are less than 50 copies and then they state your undetectable. I have been pos for years and have had to change doctors for one reason or another. My T4 counts and CD4 counts have always been normal, so my doctor wanted to know more, and had my blood sent to three different labs at three different times, and other tests not usually done were performed and no viral copies could be found. Hope that helps oldwomen from an oldman

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