|
|
Undetectable for 2+yrs
#23627 - 10/21/01 10:29 AM
|
Reply
|
Quote
|
|
|
Why am I alive after being + for at least 16 yrs? I've been off HIV meds for over 2 yrs. and its a wonderful feeling to not be murdered by stupidity as all my trusting friends were. Just like cattle, they did as they were told and died from the medications. Kind of like the recent scare of another treatable illness, they poisoned themselves. Not to say all don't need HIV meds, just that its taken 20 yrs. for the "experts" to finally admit "Don't treat too early- side effects are toxic". I told my Doc "I'd rather die of a lentivirus than a heart attack." Now I'm just a statistical freak of nature. I lost my guts-literally- to fear and panic, and now I suffer from a botched surgery from horrific ulcerated stomach and small intestines. No problem - they're gone, but the pain from eating is unbearable-so I don't eat much. I went right into menopause at the age of 36, just to return to a fertile state 5 yrs. later. When I ask the experts (in person) they say things like "Thank the godess" and "Uh, I guess you got good genes." The latter being said after a seminar on resistence mutations. I beg Drs. to take samples and study me, but what would they do for work if I have some mutation that could hold the key to living OFF HIV MEDS -for me. Why won't anyone examine me? I can't do genotyping because I'm refusing drugs. So I'm conducting my own study. HOW LONG CAN I LIVE WITHOUT HIV MEDS? Two yrs. & 5 mo., and I don't know who owns my genes. They've been frozen in labs, and if a clue is found, WHO OWNS IT? ME? I doubt it. After the POZ art. on women not infecting men, I recalled having researched the subject over a decade ago, and found that the risk is highest for uncircumsized men, and those with any open sores or VD. I recall the problem of getting macho men to use a condom, and said to myself, "If they tell men they can give the virus to women and not get it, why would they use condoms." So I kept quiet. I have lab results from '88 to back up my case but WHY DOESN"T ANYONE CONSIDER BLOOD PRODUCTS FROM MENSUS AS DANGEROUS AS A NEEDLE PRICK?
Post Extras:
|
|
|
|
so are you off all meds now?...doctors don't know that much about women with hiv. there are only a few people in the country who do..
Post Extras:
|
|
|
|
I take Valtrex- not for herpes but because a study many yrs. ago found that although acyclovir did not help CMV, the pts. did better and lived longer. If I'm getting a cold, I often find I forgot to take it. I did have a few mouth sores given to me by a friend who had a painful sore on his nose, and gave me a kiss on the cheek. Also, sailing and sunning gave me a few lip sores, but none for years now. I do take vitamins- special ones that are not hard as rocks, but soft ones that are very bioavailable. My T4's have been at 200, up from lower levels when I took the combo for 3 yrs. I was also falsely diagnosed by an arrogant Dr. with MAI (which I found I never had after a yr. of 7 antibiotics a day), plus Combivir and Viracept (without a functioning stomach). It was very humiliating to do my oral dissertation defense in front of Drs. who thought I had TB, since I was explaining my work with a needle in my arm. I had to leave the planned party to go get needless infusions (7 days a week for the first 2 months). Since I had had my stomach surgery, I'd lost 100 lbs., and Drs. panicked when my VL shot from 1000 to 3000. Isn't that alarming? So, now if I ever did need to take drugs, not only am I subject to resistence and mutations for nothing, but if I had unsafe sex with a PWA I could add all their drug mutations to the list. I have the world's record - 13 yrs. of safe sex- one negative partner and 100% of boring but safe sex. I finally fired the bastard Dr. who misdiagnosed me. My new Dr. told me I'd never had MAI. When I told him, "I'm going off the cocktail" he said "Go ahead and die if you want." He had the grace to admit I was right when my VL went down from 177 to 150 to <50. After all, I'm the one with all the personal experience and had angina. I did not want to die of a heart attack. Since the media brainwashed me that I was already as good as dead, I stated I preferred to die of AIDS. I also take painkillers and blood pressure med's for migraines.
Post Extras:
|
|
|
|
Well, the T4's were lost, but the Viral Load is still <50, and now its 2 and one half years exactly. What I do have is malnutrition, LOW CHOLESTEROL =120, so much for the pathertic food stamp program of NYC. Eat once a month and be so anemic one thinks of dropping dead in the street, and I have to wonder are these wonderful Drs. waiting for me to suggest Eyrthropoitin, or whatever injections one needs for anemia. Thanks alot to the City of NY's DASIS /AIDS programs. Go to Momentum and eat puke. I was there in '88, and it was lovely, with music, candles, tablecloths, excellent food and pantries, WITH AN EMPHASIS ON NOT HUMILIATING THE CLIENT. I tried to go last year, and refuse to go back, it was such a pain to go through for rotton food. Why do people who know your financial status even ask? They act like I'm not complying by not eating, but if one eats well, the money is gone by day 10. My fault.
Post Extras:
|
|
0 registered and 9 anonymous users are browsing this forum.
Moderator: TheBody, bogart, crabman, riverprincess, kicker
|
Permissions
You cannot start new topics
You cannot reply to topics
HTML is enabled
UBBCode is enabled
|
Thread views: 1797
|
|
|
|
|
|
UBB.threads™ 6.2.3
| |
Previous
Index
Next
Flat
Threaded
