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Augustus
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Reged: 07/14/07
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Posts: 4
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Loc: California near MICKEY MOUSE
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Started TRUVADA and VIRAMUNE last night at 6pm
#228693 - 07/14/07 06:13 PM
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This is my first experience with fighting my HIV infection that I was diagnosed with on July 1 2005. So far, everything seems normal, even a wee bit better than normal as I feel a great weight lifting. I have agonized over starting meds for 2 years, and now it seems like "why did I wait so long". My tcell count started at 550ish, spiked into the 600s one time and has hovered around 400 since then. Last test in Mid-June 2007 was 341 with 17,000ish viral load.
Interested in chatting with anyone about experience with these meds, recently started or whatever. That fear I had is lifting, but .. I am certain there are many unanswered questions that will be surfacing soon....
Peace, and BE WELL :)
j
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whyme
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Regular
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Reged: 06/03/07
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Posts: 27
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I am not one of the nuts however I am awaiting my results which I know will be POZ I need to connect with some who have gone through this. I need advise on breaking it family members, how do you go to the dentist things like that. I am older [should know better] but I am not rational now. I won't bother you with the details but I don't see how I am going to get much support around my area. I short I need help
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sunflower
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Grand Master
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Reged: 08/31/06
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Posts: 159
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Loc: AK
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Whyme - All of us here understand that stress - how to tell people - and reading through these forums people have taken a lot of different approaches to it - some are out there with everyone - let them know first thing; others take a more reserved approach telling those they feel safest with and on a need to know basis, and others don't tell anyone. You will figure out over time what is best for you. There is no "right" answer - only what works best for you. My experience has been that I needed some time to get comfortable with it myself before telling others - I took the time to read and become informed so that I could help those I told deal with it. At first I only told my closest couple friends and a couple people in my family. There are still some in my family I haven't told - we don't have the kind of relationship that they need to know. So far noone I have told has been anything but there for me. It took me over a year to tell my children (22 and 24 at the time).
I told my dentist when I went in after finding out - they are professionals - they may have other patients who are also positive. Mine has been very caring asking me every visit how my numbers are and what meds I am on. I was Very nervous to tell them but it was ok.
I'm not sure how other people do it - but when i tell people - I wait until I can tell them without wanting them to save me or make it ok for me - that way I can be candid and allow them their feelings, which can be scary for them. I offer what I know about the disease and tell them they can ask me any questions. I stay matter-of-fact and give them the space they need to accept it, get familiar with it - remember that it is a shock to them and that they may react one way but come around after they have had a chance to ponder the situation and get over their fears (for you and themselves).
I hope you find this helpful - again, you will find your own way to tell people, take your time and learn about the virus. AND maybe you won't even have to go through all this - maybe your test will come back Negative. Best of luck to you - warm wishes for a great day.
--------------------
Focus on your potential.
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Whyme.
Your risk was giving unprotected oral. There have only been an handful a cases of transmission in this way in the last 25 years and those had extenduating circumstances. Salvia has been proven to inhibit the virus.
Transmssion is estimated at only 1 in 10,000 times with someone that is HIV+.
Also long term studies have shown that when serodiscordant couples use condoms for intercourse, but not for protected sex. Guess what? The negative partner stays negative.
You may be sure that you will test postive, but the facts are that you have overwhelming odds of testing negative.
Since you have such a low risk, it might less stressful for you if you stop trying to figure out how to tell people you have HIV and how it will change your life.
I doubt HIV is going to change your life.
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Augustus
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Newbie
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Reged: 07/14/07
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Posts: 4
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Loc: California near MICKEY MOUSE
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Day 6 and My doc instructed me to temporarily stop the Viramune. I developed a fever of 102.7 average for two days. Liver test was done, awaiting a docs interpretation of that. Took Truvada ONLY last night per a docs instructions. I feel so much more normal without the Viramune.
It's hard to deal with all this, but we must. telling family, is a personal choice. I told mine, and while I don't regret telling them, they are of no supportive value to me whatsoever. I am stronger than any of them emotionally. I"ve certainly gone through enough, and this is just part of that. I hope the treatment is resumed, but I cannot deal with the sweats and fevers from the viramune.
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tcocoa
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Regular
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Reged: 07/19/07
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I too have been HIV+ for 10 years w/o any illness or infections(thank you, god) and I started meds in 1997 and I only took them because I was pregnant with my last child and i didin't want her to have this dreadful disease(she is negative!!) i stopped taking meds in 1999 and my tcell count and viral load did real good for about 7 years and then my tcell started going south and my viral load started going north!! But I have never had a viral load over 6,000.(lucky for me) I started on viramune and truvada and I was scared to start those meds but so far so good!!! My viral load is undetectable, my tcell is slowly creeping back up, not as fast as I wish they would(smile) but if i can stay undetecable then my body has a very good chance of building some tcells. Waht you want is to try and stay off the PI's as long as you can because they cause so many other problems and who needs that when we have to carry the baggage that we do with being HIV+. anyway i hope you stick with this regiment and just give it time to work on your system. did i also tell you i am A FT nursing school student and I work at the hospital in the radiology dept. so there is life after all of this:) tcell count three months ago was 299(up from 239 last year in sept) my vl undectable!!! Yay!!!
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