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Reged: 02/20/07
Posts: 39
      #224664 - 02/20/07 05:18 PM

i was recently diagnosed and am still waiting for bloodwork I got the test because of fatigue issues i have been having. most other stuff had been eliminated and I knew I was at risk=/

I am going to ask the specialist about fmla when i see her. I have been blowing all my vac time and using every possible excuse to leave workwhen I felt real crappy the last yr. has anyone w/o a high viral load had fatigue issues? If it is my viral load and i go on meds have any of you gotten over fatigue problems. When it comes it's like I was hit by a bus I get slow, have trouble concentrating, irritable, feel clumsy and jsut want to aly down but am not really sleepy jsut real real tired. most of the time I am good in the morning and it sets in in the afternoon. Some days are good all day. Some i wake up feeling crappy. I assume I get tired easy because my body is busy fighting a virus? have otehrs had fatigue issues before diagnosis and treatment that were alleviated with treatment?

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Reged: 12/05/06
Posts: 97
Loc: Victoria, Australia
Re: fatigue new
      #224669 - 02/20/07 09:14 PM

Hi, welcome to TheBody.

I recently put up a similar question. The advice I got was that the symptoms seem to vary from person to person, and that the fatigue could be caused by a number of things including depression or aneamia. The most important message though was to get the cause diagnosed. I'm waiting for my next quarterly visit in April then will talk to the specialist about it. I would think that once the cause is diagnosed, then I'll find out if I can get over it.

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Reged: 08/31/06
Posts: 159
Loc: AK
Re: fatigue new
      #224676 - 02/21/07 02:49 AM

I, too, am so tired...I have started a new job and can barely get out of bed...I just want to sleep most days. It is nearly painful to be up and working. By the end of the day, I am exhausted and often don't sleep well. I am going to my HIV Dr. tomorrow to discuss. I have not had signs of anemia at earlier labs and am not sure of my hormone levels....that may be the next tests. Last time I brought it up, my doctor didn't have any real advice but now it is impacting my life and I need some input. I am not myself.
I will let you know if I find out anything new. Best of luck to you.

Focus on your potential.

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Reged: 01/25/05
Posts: 398
Loc: FTL, Florida
Re: fatigue new
      #224679 - 02/21/07 12:19 PM

Definitely do discuss this with your doctor. It would be best to find out what is causing the fatigue and help fix it. As James pointed out, it could be anything causing the fatigue, from depression, to anemia, or another cause.

Take care, and try not to wait too long. I don't understand why people wait so long to talk to their doctor when something is happening with them. Isn't that what the doctor is paid for? To help you when something is wrong?

The reason angels can fly is that they take themselves so lightly. ~ Chesterton G. K.

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Reged: 05/06/05
Posts: 924
Loc: Los Angeles
Re: fatigue new
      #224687 - 02/21/07 03:39 PM

I suppose you know by now that FMLA is unpaid leave of up to twelve weeks in any given twelve month period. Your employer will likely try to get rid of you because of your use of FMLA. It is important that you fully disclose your HIV status to your employer so that the next stage in this process is possible, namely asking fro a reasonable accomodation because of you disabled status. HIV/AIDS is a long recognized disabling condition and you have rights under the Americans with Disability Act. However, you must assert your rights at or before the time that your employer begins to make a case for terminating you for poor performance.

Fatigue is a major issue with a lot of people with AIDS and a reasonable accomodation because of AIDS related fatigue is easily worked out. For one, a late start time or a flexible schedule such that you can work when you feel most able. You still have to accomplish the core functions of your position to keep your current job, but just what those functions are is open to debate.

Open, honest communication is necessary to make this process work; but if your employer will not accede to reasonable accomodation you should seek legal counsel. Your local AIDS service center can help you through this process which is an educational journey as much for your employer as for you.

Most importantly, you must be seen as making an effort to do your job and not as a slacker for the process to work.

Good luck, I have been battling to keep my job for years as a person with AIDS. Fatigue, confusion brought on by the meds, neuropathy, doctor's visits, hospital stays, depression, anger, and just plain feeling like crap most of the time make work difficult for most of us with AIDS.

Unfortunately, the current disability guidelines make it nearly impossible to go out on long term disability, unless you are profoundly ill or in contemplation of imminent death. The most you may be able to work out is short term state disability, with a greatly diminished income, but a guaranteed job when you come off short term disability.

I have such bad neuropathy in my feet that walking is nearly impossible most days. My employer was against the idea of my using a wheelchair, mainly because as I found out my being in a wheelchair would require them to install automatic doors, widen certain doors, and change my office configuration such that I could work in a wheelchair. So far, I'm able to hobble around with a cane, but in a year as this neuropathy progresses, I will likely be in a wheelchair. My employer will just have to suck it up.

I strive to be an exemplary employee so that I am seen as heroic rather than a whingeing slacker. (Whinge is a British term for a whining, cringing handwringer.)

Good luck. In the early nineties, I had to sue under the ADA because I was denied a lease renewal when my landlord discovered I had HIV. Got enough money to buy my first house with that bit of business.


Life is a river.
Carpe diem.

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Reged: 02/20/07
Posts: 39
Re: fatigue new
      #225455 - 03/03/07 04:14 AM

Well, i am being told it was sickness related to conversion. I have felt like myself the last few days so probably won't need to avail myself of fmla. i am grateful to be diagnosed so early ion the infection so I can stay on top of this. I don't need medication atm my body may of been real ill but it was kicking virus ass at least for now . All my counts rebounded to normal and the viral load wasnt detected. Now, I just have to take care of myself and finish getting around what has been a life changing event for me. Maybe it can turn into a life affirming one and i can drop a few bad habits/attitudes. Ty v very much for the responses i was terrified when i made the post.

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Reged: 10/27/06
Posts: 11
Loc: Dallas, TX
Re: fatigue new
      #225553 - 03/04/07 04:09 PM

I am undergoing fatigue as well. I had to switch hours at work to the weekend shift just to alleviate it. Sometimes it gets bad but sometimes I just move on. I am not on meds so I don't know if meds help with the fatigue but I have read books and online that fatigue is just a part of it. Hang in there. You are not alone.

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Reged: 03/04/07
Posts: 3
Re: fatigue new
      #225563 - 03/04/07 08:54 PM

Hi - I was diagnosed about 18 months ago and I'm pretty healthy and not on meds yet, but I also suffered from excessive fatigue. I'm pretty active and work hard, so it was really difficult to adjust my life to being tired so often. My doctor did a testosterone check about 3 months ago and discovered that I had a testosterone level below the normal range and I started testosterone replacement therapy (Testim). I put on small amount of gel every morning and it has made a huge difference. It was terrific for me to get back my energy. I recommend asking your doctor to check your testosterone levels (assuming you are male.)

Good Luck!

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