Advertisement
The Body: The Complete HIV/AIDS Resource
Follow Us Follow Us on Facebook Follow Us on Twitter Download Our App
Professionals >> Visit The Body PROThe Body en Espanol
Read Now: TheBodyPRO.com Covers AIDS 2014

HIV Life >> Living With HIV

Pages: 1
Blixer
Legend

Reged: 01/10/06
Posts: 599
Loc: Missouri
One Year Ago
      #221106 - 01/08/07 10:47 PM

One year ago tonight (actually 52 weeks to the day) I made my first post in the "I Just Tested Positive" forum. I was a basket case. I had just been diagnosed hours before. I came here for help and I found it. I've grown a lot since then and I'm so thankful for that.

Now, here I am, a year later, on meds, but doing great! My life has been turned upside down, but I'm working on getting it back. Without making this too long, here are what I think are five things I've learned this year! (Not in any particular order and maybe not even the most significant things I've learned)

1) Life does go on! There was a time early on when I wondered if this was true. There were so many unknowns. I was so unsure of my future. Do I stop planning for retirement? Will I be able to continue to work? When will I get sick? There were lots of concerns and questions. But today... life is relatively back to normal and I'm glad to say I've had a healthy year. I have a good outlook on life.

2) I'm mortal! My diagnosis brought me face to face with the fact that there are some things bigger than I am. I can't just wish away the bad stuff. I never thought it would happen to me. But it did and I now realize that no matter how strong I thought I was, there are things that I have no control over me. And yes, I won't live forever. I'm still counting on retirement and living to a ripe old age despite the HIV though.

3) The meds work! I had hoped to have a longer time before meds, but I was one of those that had to start three months after diagnosis. And it was scary! I didn't know what to expect. But they worked as they were supposed to and my system is handling things in a grand fashion. Today I saw my ID specialist and his biggest concern was "are you exercising like you should?" Everything else looks good. No lymph node swelling, lab results good, CD4% doubled, VL undetectable. As of December my CD4 was 707 and 24%.What a way to celebrate a one year diagnosis anniversary.

4) There are a lot of great people out there! Maybe I already knew this, but through my diagnosis I've had a co-worker that was so supportive that it almost brought me to tears. My family has been there for me, not judging, but open and supporting. Some of my friends have been a godsend and I've made new friends that never would have crossed my path without this diagnosis. Some of them responded to my first post a year ago.

5) I can put all those pills in the same compartment in the pill box and they get along! And I can pop them all into my mouth at once and swallow them in one gulp (a good friend taught me that one).

In this new and second year of my diagnosis I'm hoping to get a better control of my life. I want to travel more, get back into the dating scene, get over the fear of disclosure, and maybe even find someone to share some of the excitement of my life with.


--------------------
David
Sustiva, Epivir, Videx EC


Post Extras: Remind Me!   Notify Moderator  
Brandy
Guru

Reged: 01/19/06
Posts: 208
Loc: Oklahoma,USA
Re: One Year Ago new
      #221118 - 01/09/07 02:11 AM

DAVID.....
ahhh honey I was so happy to read your post Im so glad your doing well.... I never seem to able to get on much lately so when I do I always wonder where are my friends I rarely see any posts from the crew that was here a year ago...anyways it was great to hear from you take care and hopefully we each hear more from one another....

--------------------
take care and be sooooo safe love,
Brandy

Live in the Moment!!!!

Post Extras: Remind Me!   Notify Moderator  
Blixer
Legend

Reged: 01/10/06
Posts: 599
Loc: Missouri
Re: One Year Ago new
      #221217 - 01/09/07 09:04 PM

Thanks Brandy! Good to hear from you. Yes, I think most of the crew from here has moved on. A bit too much spam and getting beat up from the anonymous posters. Severeal of us have moved off to another site. But I haven't forgotten about those first days here and the great support I had when I needed it the most. And then of course, life does go one. I"m back to working way too much and not taking time for myself. Maybe that will chang this year.

Take care!


--------------------
David
Sustiva, Epivir, Videx EC


Post Extras: Remind Me!   Notify Moderator  
Anonymous
Unregistered

Re: One Year Ago new
      #221373 - 01/11/07 12:03 AM

Blixer,
You are a beautiful human being! May God bless you with all the rewards Earth has to offer fo rthe next 80 years!
Jenn

Post Extras: Remind Me!   Notify Moderator  
Anonymous
Unregistered

Re: One Year Ago new
      #221398 - 01/11/07 07:05 AM

Its amazing at how time flies when you get a positive diagnosis. I tested positive in 2004 and I thought I would die, but here I am happy than ever. My secret is prayer and believing in the finished work of Calvary. Jesus is the answer. Stay on

Post Extras: Remind Me!   Notify Moderator  
Anonymous
Unregistered

Re: One Year Ago new
      #221484 - 01/11/07 03:56 PM

That is truly inspirational, I am newly diagnosed with AIDS and basically wrote my life off. I am looking forward to be where you are now. Thanks for writing this.

Post Extras: Remind Me!   Notify Moderator  
ScotCharles
Legend

Reged: 05/06/05
Posts: 924
Loc: Los Angeles
Re: One Year Ago new
      #221642 - 01/11/07 05:58 PM

Congrats on your year.

Unfortunately, its gets harder as time goes by. I've developed resistance to the PI class of drugs, already resistant to NNRTIs, so perhaps its Fuzeon pour moi.

The HIV neuropathy has abated a bit. But I can't abide the side effects of either elavil or Neurontin, so I've learned to live with pain.

What keeps you going year after year is purpose, not a lust for survival, my friend. Once purpose dies, all hope is gone and life ceases. Find purpose friend or soon the daily regimen of pills and doctors will kill you. I don't see purpose in your post, just flowers and chirping birds. If you're not Snow White, you will need a bit more than that.

Cheers,

ScotCharles

--------------------
Life is a river.
Carpe diem.

Edited by ScotCharles (01/11/07 05:59 PM)

Post Extras: Remind Me!   Notify Moderator  
PositiveInPVD
Fanatic

Reged: 03/12/06
Posts: 55
Loc: Providence, Rhode Island
Re: One Year Ago new
      #221880 - 01/12/07 08:44 PM

Arent we just chipper? LOL The boy is happy. Is that so wrong? I think many of us understand life isnt chirping birds forever, and I am sorry you are further along with this and running out of options. We're all at some part of the process. Let each of us respond how we sit fit, be it the good or bad parts of whatever phase we are in. Most of us come here to just sound off, however we wish to. Thats what I come here for...to just put things down into words and express my feelings amongst people who know more what I am going through than anyone I have in my reallife circle. Peace.
Todd

--------------------
CD4 808 (41%), VL <75, liver still functioning great,lipids normal!!!

Post Extras: Remind Me!   Notify Moderator  
ScotCharles
Legend

Reged: 05/06/05
Posts: 924
Loc: Los Angeles
Re: One Year Ago new
      #222324 - 01/16/07 02:34 PM

Sorry, friend. As you say we are all at different points on the path. But AIDS is no picnic and those who are taking dangerous AIDS meds now will be far sicker in future than I am now as the meds slowly destroy their liver and pancreas. I am lucky perhaps that I shall not live to see my words come true.

All I was saying is to find a purpose for struggling to live year after year, absent that purpose, continued struggle is meaningless. AIDS isn't a bad cold that goes away, it is a chronic long term battle against side effects and opportunistic infections.

Be as happy as you can as long as you can; and strive to make your life mean something more than just longevity.

--------------------
Life is a river.
Carpe diem.

Edited by ScotCharles (01/16/07 02:40 PM)

Post Extras: Remind Me!   Notify Moderator  
daisey6205
Legend

Reged: 09/08/05
Posts: 1091
Loc: kansas
Re: One Year Ago new
      #222671 - 01/17/07 01:02 PM

blix-
it has been along time since i have been here also. i am glad that you are getting along. it is amazing how when we are first diagnosed it seems that the world has came to a complete stop. the good news is that it didnt and what we thought of our selves and our lives at that time, actually becomes renewed. it has been 1 year and 4 months since my diagnosis. hiv still scares the crap out of me, but i am doing good. my viral load is once again undetectable (without meds) and my cd4 count came up from 330 to 744 (without meds).
i wish you continued success and a happy heart. glad to see that you are feeling better.
love and prayers always,
daisey

Post Extras: Remind Me!   Notify Moderator  
MRoss
Newbie

Reged: 02/10/07
Posts: 9
Loc: PA. U.S.A.
Re: One Year Ago new
      #224249 - 02/10/07 11:41 PM

Hello ScottCharles,
Thank you for these words.. they are certainly without doubt so extremely powerful guy. Take-care
Be as happy as you can as long as you can; and strive to make your life mean something more than just longevity.



--------------------
M. Ross

Post Extras: Remind Me!   Notify Moderator  
Stresser
Expert

Reged: 03/29/06
Posts: 117
Re: One Year Ago new
      #226257 - 03/27/07 09:50 PM

Dude, Glad to hear you are doin well. I still remember your advice when I was worried senseless. God Bless U. BTW how is Eric (RatBoy) doing? Both of U guys gave me good advice and helped me through a bad time. Eric got to the point were he "Virtually sat me down and bitch slapped me" to put it lightly. U guys have inspired me to change people's view on this disease.. Every time I hear someone talking negatively about the people infected with this condition I try and educate them. One at a time...... At any rate glad to hear you are doing well.. Say hi to the RatBoy for me!!

Post Extras: Remind Me!   Notify Moderator  
Pages: 1


What's New at TheBody.com

Additional Information
0 registered and 1 anonymous users are browsing this forum.

Moderator:  TheBody, bogart, crabman, riverprincess 

Permissions
      You cannot start new topics
      You cannot reply to topics
      HTML is enabled
      UBBCode is enabled

Thread views: 5470

 
Jump to

Contact Us | Privacy Statement The Body

*
UBB.threads™ 6.2.3