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AIDS2HIV
Legend

Reged: 12/19/05
Posts: 2200
about me..
      #205551 - 08/30/06 11:11 PM

well first let me thank you all for your concerns I went to my specialist yesterday to be told my disease is mutating and becoming resistant to my meds. Oral candida & hairy leukoplakia have returned, weight loss has began again, and it just keeps getting better from there. My eyesight is no good, my memory has been eaten up.

My Heart is broken, my spirit is ready, if it werent for my 5 yr old, id just give in, and let this disease run its course



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Sunny AK
Unregistered

Re: about me.. new
      #205561 - 08/31/06 12:52 AM

I am sorry to hear that...wish there was something I could say that would help mend the broken heart and tired spirit - the thing that comes to mind is love that little boy and find the strength in that...and know that the people here think of you and care.

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IzPoZ
Guardian

Reged: 01/24/05
Posts: 398
Loc: FTL, Florida
Re: about me.. new
      #205570 - 08/31/06 06:17 AM

A2H,

It's great to see you here. Sounds like a difficult time for you right now. Perhaps the memory thing is a result of stress and worry?

Try to keep your focus for your little boy and try not to worry, though I know it's difficult not to.

Work with your doctors to come up with a plan for a solution. Hopefully you will find one.

Be well, A2H.

--------------------
The reason angels can fly is that they take themselves so lightly. ~ Chesterton G. K.

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AIDS2HIV
Legend

Reged: 12/19/05
Posts: 2200
Re: about me.. new
      #205574 - 08/31/06 07:09 AM

ty Iz, the loss of memory etc, comes with HIV when it progresses and gets into the brain. My eyesight is from cmv. Im pretty good with stress and worry, the environment i live in , has me trained well.

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franfrog
Legend

Reged: 01/05/06
Posts: 1342
Loc: NJ
Re: about me.. new
      #205581 - 08/31/06 07:42 AM

Co,
I am so sorry to hear this is what is going on. I had really hoped and prayed it was just needing time away from us and these boards to spend with your family.
Where is everything going to go from here? Is there any meds they can give you? Please know you are in our thoughts and prayers everyday. Please make sure you let us know how things are going. We all miss you so much.
Good luck and be well!

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Bear60
Legend

Reged: 12/21/05
Posts: 1390
Re: about me.. new
      #205588 - 08/31/06 08:24 AM

Co......
This is not good news. I hope you will try and stay on top of things a while longer. CMV can be treated. There are new drugs for those who become resistant. Please keep us posted. I would write more but I have to go to work.

--------------------
6 ft tall poz bear in Philadelphia

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Anonymous
Unregistered

Re: about me.. new
      #205597 - 08/31/06 09:14 AM

6 years ago, my husband was about where you are. He been through all the medications and nothing was working. His viral load was over 750,000 and we'd named his 7 CD4 cells.

He spent a month in the hospital, and months more recovering at home. We battled CMV, Pnemionua, a stroke and a dozen other things. He lost the sight in one eye and a finger. One morning I walked in the hospital to have them tell me he would not live through the day.

Today, he's an active healthy man. Much changed from the man laying in that hospital bed.

The Battle isn't over A2H, and while you are discouraged, you aren't a quitter. Take a quick breather, but then it's time to pick yourself back up and get in the game. Reach deep within yourself.

I know that sometimes it just seems that there is no strength left to walk another step, but reach deep within yourself and you will find what you need to take that next step forward.

It ain't over till the fat lady sings and I hear she's got a bad case of Laryngitis.





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alivehoping
Legend

Reged: 04/05/06
Posts: 655
Re: about me.. new
      #205613 - 08/31/06 10:14 AM

stay strong my freind,fight with everything you have in your being,your not a quitter i know this much,are you going to be able to get a different regiment of meds?i really wish you the best,and its nice to get this update,take care

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AIDS2HIV
Legend

Reged: 12/19/05
Posts: 2200
Re: about me.. new
      #205625 - 08/31/06 11:01 AM

doc has added another protease inhibitor to see if it will reguvinate the regimon im on, Im on Viread, Viramune, and Epivir, now reyataz also...

Ive already been through the crap of laying in the hospital to the poster who mentioned it, i spent 3 months of 2005 confined to a bed, in and out of hospitals. When i was diagnosed i was full blown aids, with OI's, was meant for death, but just couldnt let go of what i wanted in life, since then I've done alot of what ive wanted. Doc also added prozac to my mix....so those will be some funny ass posts when those get here*


So far ive resisted trizaver,kaletra,,and a list of others, right at diagnosis. They got me on Viread and Virume & Epivir, cuz the others they first tried didnt work, after 1 1/2 yrs on it, my Tcells all time high is 212, but now my counts are fluctuating quite a bit, my viral load is steadily rising, and my percentage is dropping...Im on my way to another doctor to be checked for skin cancer this afternoon....yippy*

Im not so sure i wanna keep prolonging things, no one lives in a fairytale life, and mines no different. My house makes daiseys look like an episode of Happy Days. To thine own self be true, is one thing i believe in.


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ItsFaith
Legend

Reged: 10/17/05
Posts: 1329
Re: about me.. new
      #205628 - 08/31/06 11:29 AM

A2H, I'm so sad to hear that you are suffering so much right now....but try to put your fears and pain in the Lord's lap...he will walk with you through your tough times Be strong and have faith. i will pray for you that you will find the strength to continue to fight and beat this unwelcome invader.

Much love and prayers.

God Bless.

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Not so ANON
Unregistered

Re: about me.. new
      #205649 - 08/31/06 02:03 PM

I'm not at my home computer and cant log in so I will have to give you some frustration by posting this under ANON(you wouldnt remember me if I told you).
I am so sorry to hear about your health problems. I am a WW that has been filtering around for the past 2 months. I have posted many times and you have always helped me. I feel so badly that I cannot help you the way you helped me. I just send my love to you and hope that you will pull through.
I am emotional over my ordeal and feel so sorry for myself and I look at you and hope that I can be half the man that you have been for your friends, family and WW out there.
I miss your candor and cut to the chase responses. I wish you well A2H and I hope to see you on these boards again very soon.
Remember please that you have helped hundreds of people, educated thousands and inspired atleast me. So get well and get ur butt back soon!

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Survivor
Legend

Reged: 10/30/05
Posts: 3256
Loc: Get off the fence and live again!
Re: about me.. new
      #205699 - 08/31/06 10:01 PM

Co.. You are far from finished.. I dont like the tone of your writing.. Your not a quiter... Try and refocus your energy into you and forget about all else. If your resistance is at the levels you are saying, you are a candidate for Fuzion which can last a very long time until these newer classes of drugs become available... For Christ sake, for the kids... GOD DAM IT!

Love

Eric

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Survivor
Legend

Reged: 10/30/05
Posts: 3256
Loc: Get off the fence and live again!
Re: about me..
      #205700 - 08/31/06 10:04 PM

co give me your phone number!

Co I have taken the liberty of posting your situation with Dr. Ben as well as with the experts over at aidsmeds.. YOU AINT GONA DIE ON MY WATCH!

Eric

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alivehoping
Legend

Reged: 04/05/06
Posts: 655
Re: about me..
      #205712 - 09/01/06 12:27 AM

well dont quit,try out the new meds,it cant hurt at this point,i just hope you hold on and keep the faith,its just possible the new meds may help you with the resistance problem,if you can keep us in mind,because your in our minds,take care

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eleniel
Guru

Reged: 05/27/06
Posts: 239
Loc: Utah, USA
Re: about me..
      #205715 - 09/01/06 12:37 AM

I wish I could say something to help. I do feel for you, i just don't know how to express it...but I do care..

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6/29/2010: vl 68,000 cd4: 205

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