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still_here
Guardian

Reged: 02/01/06
Posts: 389
the difference between a doctor & nurse....
      #201070 - 07/23/06 09:16 AM

THE DOCTOR CAN READ THE CORRECT NUMBERS OFF YOUR CHART!!!

My appt with the ID wasn't as sun shiney & rosey as I thought it might have been. Turns out my CD4 went DOWN... not up! & my VL went up also. My correct #'s are CD4 430 (down from 438) and my VL is 777 (up from UNDETECTABLE!). My % went up from 41% to 45%. The ID wasn't having a heart attack like I've been. I almost fell off the table when he told me my CD4. My CD3 is 719... whatever the hell that is. Obviously not as important as my CD4. bastards. He did tell me that I have to go to an oncologist because of the HPV situation. greeeeeeeeeat. On the upside... I was given the prescription for Atripla... the brand new fancy pants Sustiva/Truvada combination pill! ROCK ON!! Now I just have to see if AvMed will cover it. I imagine if it's less than the $1800 they pay now after my copay for the Sustiva & Truvada they jump all over it. I can't believe that my insurance pays $21,600 a year for my meds, and I pay a piddly $960. I can't believe that my meds cost $22,560 a year total. That's crazy. I guess "THE MAN" (LMAO! I just love sayin that!!) can put a price on a life. From what I'v ebeen reading, Atripla is supposed to be cheaper... so we'll see. I promise to post the outcome of that fiasco. I also read (AIDSmeds.com) that on 6/30/06 the FDA also granted approval for another combination med- Viramune, Retrovir & Epivir. GOOD STUFF PEOPLE!!

So, while I sit here brooding over my frickin frackin "BLIP" (it's Sunday morning, I'm trying not to cuss while church is on TV & stuff) I guess I'll show a little thanks & compassion, say a prayer for those who passed thinking there would never be a day that HIV/AIDS would become this managable. Thank you to the husbands, wives, lovers & partners who sat by their bedsides promising to help make tomorrow a better day for those of us who so blindly "stumbled" into HIV/AIDS. My prayers & thanks to the doctors & pharmacists & activists who never give up... even when I feel like I just can't go on. Thank you to my friends (real & online) and to my family for always helping me find my strength, and make me keep on truckin. I love you guys, and I'm thankful you are who you are. Now go give someone a hug & kiss & thank them for being there no matter what.

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Anonymous
Unregistered

Re: the difference between a doctor & nurse.... new
      #201071 - 07/23/06 09:46 AM

Add being very, extremely, thankful for your insurance and the prescription coverage you have.

Health insurance coverage in this country is a crime and many people don't have it or they can only afford limited benefits that cover maybe $1,000 a year for medications. Nor do they qualify for any type of aid in getting any of their medications. These people fall between the cracks.

For them HIV is NOT manageable. HIV is not chronic. It's just as it always has been and still is. A terminal illness. Don't ever forget how lucky you are that you have insurance to cover your medications. And fight like a wild cat to make sure you stay on a good policy.

The ability to get medications and have them work without problems with resistance, side effects, like liver failure or heart attacks, is the only thing that keeps any of us on this side of terminal.

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still_here
Guardian

Reged: 02/01/06
Posts: 389
Re: the difference between a doctor & nurse.... new
      #201082 - 07/23/06 11:36 AM

and maybe if you had read any of my previous post... i've already talked about my insurance coverage... thank you very much. choosing to give thanks & prayers to people who have gotten us to this point, i find far more important. not to mention, if i hadn't pushed myself to get to the position i'm at i wouldn't have the good job & good benefits i do have. so i can thank myself for getting me in a position to take care of myself. life is about choices. some of us may not have been born into a good situation, and before you go jumping to some other conclusions, i left home at 18 and have been on my own since then, my ex husband beat me for 7 years, i've moved 17 times in 16 years, i've lived in the "poor section of town", i sold drugs to make money working 1 dope hole after the other, i lived in my car hiding from the repo man, parked in fields hiding my car because i had no money & no where to go... all because of BAD decisions i made, bad choices. but i decided & made choices to correct the situation, and get the education i needed & the skills i needed to make a better life for myself. and by the way, HIV is chronic for me it is terminal for me also, i'm not any different than anyone else who has HIV/AIDS. i live every moment aware that today is my gift. if it weren't for the people who have these medical studies, volunteered to make it better, and educated themselves.... i wouldn't have a fighting chance. and to help those who don't have, i support ONE.org, i walked in the AIDS walk this year, i help educate people around me, i handed out ribbons on World AIDS Day to the 132 people in my department... i'm also thankful that i am not ashamed or afraid to post about my real life, not some "run of the mill" ANON poster who knows everything. so please don't tell me who, how or what to be thankful for.. i am well aware.

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AIDS2HIV
Legend

Reged: 12/19/05
Posts: 2200
Re: the difference between a doctor & nurse.... new
      #201103 - 07/23/06 06:55 PM

Amen Sister....

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still_here
Guardian

Reged: 02/01/06
Posts: 389
Re: the difference between a doctor & nurse.... new
      #201128 - 07/24/06 09:40 AM

is that the "spit & vinegar" everyone was missin? LOL!!

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alivehoping
Legend

Reged: 04/05/06
Posts: 655
Re: the difference between a doctor & nurse.... new
      #201207 - 07/24/06 11:38 PM

hellfire is right,i happen to have a lucky situation,same meds every thing no cost to me but my wife pay through her company,i too am thankul for everything i get as well,except when i spen more of the day on the thrown,dont get me wrong,it the queitest place and i figure a thrown a king.i pray we can live long enough i wont have to think about all the children who dont have medical ins.,now and as they get older and start their life of sex they are knowledgeable and healthy to do as they will.a nurse will tell you thinkgs and talk more while the docs trying to figure out the sloppy writing,or figuring out his golf hanndicap,does spit and vinegar come from salt and vinegar chips?lol,take care

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ScotCharles
Legend

Reged: 05/06/05
Posts: 924
Loc: Los Angeles
Do you know the difference between a doctor & god? new
      #201266 - 07/25/06 12:46 PM

God knows he is not a doctor.

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Carpe diem.

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AIDS2HIV
Legend

Reged: 12/19/05
Posts: 2200
Re: Do you know the difference between a doctor & god? new
      #201281 - 07/25/06 02:36 PM

LPN = low paid nurse

RN = Real Nurse (higher pay)

Doctor/specialist = Medical Politician (highest paid)

hope that shows the difference between em*.....LOL

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still_here
Guardian

Reged: 02/01/06
Posts: 389
Re: the difference between a doctor & nurse.... new
      #201288 - 07/25/06 03:01 PM

i would not buy spit & vinegar chips... that's for sure!! LMAO!!

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alivehoping
Legend

Reged: 04/05/06
Posts: 655
Re: Do you know the difference between a doctor & god? new
      #201316 - 07/25/06 05:56 PM

you may be on to something.

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Anonymous
Unregistered

Re: the difference between a doctor & nurse.... new
      #201336 - 07/25/06 07:58 PM

[quote]and maybe if you had read any of my previous post... i've already talked about my insurance coverage... thank you very much. choosing to give thanks & prayers to people who have gotten us to this point, i find far more important. not to mention, if i hadn't pushed myself to get to the position i'm at i wouldn't have the good job & good benefits i do have. so i can thank myself for getting me in a position to take care of myself. life is about choices. some of us may not have been born into a good situation, and before you go jumping to some other conclusions, i left home at 18 and have been on my own since then, my ex husband beat me for 7 years, i've moved 17 times in 16 years, i've lived in the "poor section of town", i sold drugs to make money working 1 dope hole after the other, i lived in my car hiding from the repo man, parked in fields hiding my car because i had no money & no where to go... all because of BAD decisions i made, bad choices. but i decided & made choices to correct the situation, and get the education i needed & the skills i needed to make a better life for myself. and by the way, HIV is chronic for me it is terminal for me also, i'm not any different than anyone else who has HIV/AIDS. i live every moment aware that today is my gift. if it weren't for the people who have these medical studies, volunteered to make it better, and educated themselves.... i wouldn't have a fighting chance. and to help those who don't have, i support ONE.org, i walked in the AIDS walk this year, i help educate people around me, i handed out ribbons on World AIDS Day to the 132 people in my department... i'm also thankful that i am not ashamed or afraid to post about my real life, not some "run of the mill" ANON poster who knows everything. so please don't tell me who, how or what to be thankful for.. i am well aware. [/quote]

I have great insurance also. I work and I just don't sit there and brag about it while complaining about my life. I also do a hell of a lot more than handing out a few ribbons. I do what I can to help people that don't have the benefits I have. Giving money, raising money, giving my time on my ASO as a peer educator, testing counselor, fund rasing and I sit on the Board of Director, making sure that the clients of our ASO have a voice. I get out and help political canididates that want to help people that are less fortunate. Oh yeah and my ex beat me for 12. My house AND car were repo'd. I had NO Where to sleepl And had two kids in tow. So fucking what. Never lowered myself to sell drugs or myself. You want a medal.

You make it sound like you should have some prize for the fact you have a job and insurance. It's not that big of an accomplishment....well maybe a step up from your former job of Pusher.

There are people that work DAMN hard and yet, do not qualify for the position that will give them benefits. You give the impression that they don't count and you are better than them. Geezzz, I guess it's really all about you. They probably can run circles around you in the human department.

Oh yeah I started to read your little post, but all that God and angel stuff just puts me to sleep. If you are going to go that route, then I would suggest you stop taking credit for ANYTHING YOU have. It's not from your doing. It's gods. Seriously, you can't write anything for yourself. You have to find some YAWNNNN story.

As far as posting as an ANON. I know who I am and that's all that is important. Quite frankly, with the attitude displayed on this board I for one see no reason for me to want to introduce myself. I certainly don't want to initialte a cyber relationship with any of you. I post because of other people like me. ANONs, many that don't post, but at still need some wisdom, that is lacking with the 'regulars' posts. You should be ashamed that anyone might think you are the face HIV. Most would probably think with your flippant attitudes and stupid jokes, poems and songs that you are just so shallow that you deserve it.

I will continue to put my two cents in where I want and when I want.

When you catch up to me (12 years) then come talk to me about living with HIV and what you should be thankful for. Yeah, I'm one of those you just thanked. I've been in trials. I've suffered meds you never will have to. I've fought for funding before you even knew what HIV was. You're still wet behind the ears and very naive as are most of you. You think you know all there is to know. Wait until the day you don't have insurance. Or the day you realize that you are trading your dreams of what you really want to do with your life in order to keep that insurance. Or maybe you might want to move and start a grand new adventure. Don't try it. You might not qualify for what you do now. You have a lot to learn. But I guess smart asses can only learn one way. By landing hard on their ass. Good luck with that.




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alivehoping
Legend

Reged: 04/05/06
Posts: 655
Re: the difference between a doctor & nurse.... new
      #201340 - 07/25/06 08:13 PM

well seems like that reply in and of itself is why anons arent taken so seriously here,you can rank and rave behine an anon and you think your better because you have been in trials?well life itself is a trail and error process,and to down anyone for a reason that doesnt comply with your sence of reason isnt justifyable to degrade or deny anyone their veiws,albeit weather or not you like or dislike what has been said.we are all here with one goal to support and help those who arent so fortunate to have the knowledge you claim to have,and if i may say if your the picture of knowledge you had better go back to the earlier days of your infection,because i would be a betting man you were more humble than you appear now.and you dont like it here go somewhere you feel you are the smartest then,because an ego isnt healthy,more so when your objectivity is lost to it.what if your doc treated you with the same distaine your handing out here,be right or wrong denigration is still denegration,from either way you look at it.you yourself should hold some amount of restraint my freind.to be angry with yourself and others isnt the way to go in life especially with the problems we all face together,if you agree with someone else or not.all said and done,you have a nice day.

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AIDS2HIV
Legend

Reged: 12/19/05
Posts: 2200
Re: the difference between a doctor & nurse.... new
      #201349 - 07/25/06 09:17 PM

^^^ this is the same cocksmoker, i mean anonymous, thats AFRAID to back thier mouth up with thier ass.....they are all wind, thinks they somebody, by condeming others out the left side of thier mouth, and putting themselves on a higher pedastal before the others,out of the right side of thier mouth.....

So anonymous, YOU are on the payroll i take it, cuz i KNOW you cant be a director,etc, associated with any ASO, without being on the payroll......so, before you go ripping on someone else about how better you are and how you better lives of those in need........just think, all the money people like you yourself demand, in order for your half assed efforts, eats the funding that could very well be used for someones life, thier meds, thier healthcare.....so remember that, before you go preaching the choir, of how much better you are because of where your personal GREED has lead you, you remember......all those things you hold high on your personal pedestal mean squat, because the real things of value, that these people like Hellfire, and myself, and the others posess, are the most valuable things one can have in life. They dont cost money, the dont require screwing someone to "get yours", and they certainly dont require being a pompous arrogant ass. they are the things that YOU in your pompous miserable skin, have taken for granted, they are the very things that you have made yourself "to good for"......so you remember that the next time, you steal your share of the funding, that could honestly help someone in NEED. you type a good game, but its quite clear, if you have actually been through what you typed, you CERTAINLY didnt learn nothing from it. I would guess, the silver spoon is still in your mouth, in reality, you probably havent had to "work" for anything, its probably been handed to you, or in laymans terms, you probably lied,cheated,and stole your way to the top of your own pedastal,and sucking all the dick ya can to stay atop of that pedastal. You cant buy Human Qualities, and ya dont earn them by the image you try to put off....just because you paint a pretty picture doesnt mean its genuine*

take your greed elsewhere, and put your 2 cents in someplace where they wont give you change back* because thats what YOU are worth. and by the way, just for your info.......the HUGE contribution you are providing here on these boards, you know...that WISDOM, you seem to think you have........look up "wisdom" and "stupidity" in the dictionary, because you seem to have the two confused. and you call others shallow?...read your own posts, the info you display is less than half the depth of the kiddie pool in your backyard. Lord help us if this ANON has bred, granted it could only be within thier own family tree, but Lord, still....help us, stupid people shouldnt breed, even if it is within thier own family.

and while you are busy glorifying your longevity, as if its sposed to really amount to a hill of beans......your behavior clearly displays that after 12 yrs of HIV and all the stuff i will never go through, according to you.....You surely are some kinda role model.....reminds me of the Gman and Jackie, same claims to fame, same attitude, same jealous rage.....

In closing, since you are so much better, and give so much to help others......how bout you CRY US A RIVER ...for those who never got to go white water rafting???

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alivehoping
Legend

Reged: 04/05/06
Posts: 655
Re: the difference between a doctor & nurse....
      #201363 - 07/25/06 09:48 PM

but the water would be tainted by self absorbtion,and rocky with arrogance,so i would rather walk with people on soid ground and with the understanding we are together to fight the good fight against this disease and not each other,but you put it well into words,a2h.take care

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AIDS2HIV
Legend

Reged: 12/19/05
Posts: 2200
Re: the difference between a doctor & nurse....
      #201377 - 07/25/06 10:04 PM

lol, donnie......ever get that feeling......"shhhhhhhh......we are surrounded by stupid people" ?

take care my friend, dont let these ham & eggers get ya

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