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Anonymous
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Apathy as part of dementia????
      #188366 - 04/28/06 01:43 AM

I looked at dementia and all they say is a very clinical, characterized by apathy, slowed thinking, forgetfulness, blah, blah, blah,-----can anyone give real life examples that will describe what apathy appears like --- slowed thinking, what does that mean , how does it appear in the person with aids/dementia, forgetfulness, can a person with dementia remember how to get to the store, and not their job, what does this mean?

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ScotCharles
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Reged: 05/06/05
Posts: 924
Loc: Los Angeles
Re: Apathy as part of dementia???? new
      #188400 - 04/28/06 09:34 AM

I'm not sure if your interest is academic or personal. If personal you should ask your doctor to refer you to a specialist that can give you some tests of your cognitive ability to establish a base line, which can then be used to determine at later tests if your ability is deteriorating. Loss of cognitive function is a slow process so tests will likely need to be done at regular intervals over a period of time to determine if the loss is progressive.

Apathy can be caused by a number of factors, depression, the AIDS meds, AIDS progression, etc, only a specialist can determine the actual cause.

I have finally consented to a base line study of my cognitive functions. I have heretofore been afraid to know where my functions stood in relation to normal for a person my age. For me, I believe the loss of function is due to my increasing ferritin levels, which in the last month have increased by 23%. I have an appointment with my liver specialist to discuss more regular bleeding therapy and perhaps some drug intervention, especially since my ALT and bilirubin are significantly outside the normal range.

Whether you choose to believe this or not, I am convinced that even though I have hereditary hemachromotosis that the progression to a chronic condition has been caused by the AIDS meds I have taken since 1994. However, without those meds, I would have died years ago, so whatever.

--------------------
Life is a river.
Carpe diem.

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Anonymous
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Re: Apathy as part of dementia???? new
      #188965 - 05/02/06 12:23 AM

It is for strictly personal reasons. Being on disabillity and relying solely on Ryan White medical system, we are not referred for anything, resistance testing or any thing other than your basic aids meds and if there is severe pain, maybe some x-rays, so when I ask about apathy what does that mean in terms of everyday functioning, I really need to know what does that mean for the person with advanced stage aids with very, very low cd counts, our doc just plain doesn't get fance.

Thank you so much however I really couldn't follow much of your post it was pretty technical.

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ScotCharles
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Reged: 05/06/05
Posts: 924
Loc: Los Angeles
Re: Apathy as part of dementia???? new
      #188985 - 05/02/06 07:19 AM

If you're on disability, why is apathy a problem? Do you really NEED to do anything? And if you have dementia, you soon won't know you're apathetic anyway.

Worry about something else.

--------------------
Life is a river.
Carpe diem.

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Anonymous
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Re: Apathy as part of dementia???? new
      #189907 - 05/06/06 12:03 AM

Scott Charles, I believe you are making fun of me. I'm asking a serious question because there are times that I don't care if I live or die, if I stay straight or get rocked out of my mind. I just give up. I am wondering why Do I feel this way at times>I'm on antidepressants, and I still get like this, almost suicidal. Does this type of crap part of dementia or is that apathy crap or what is wrong with me. I'm trying to get a psychiatrist it is a two month waiting list. It's been so bad that I don't really care about living, then I'll kindof come out of it and want to live and stay out of prison and get my kid back, and other times I don't.

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ScotCharles
Legend

Reged: 05/06/05
Posts: 924
Loc: Los Angeles
Re: Apathy as part of dementia???? new
      #189937 - 05/06/06 09:09 AM

I'm just winding you up, mate.

Apathy is symptomatic of AIDS and the meds, whether you have dementia or not is a matter for your doctors to decide.

Even on medicare or medicaid you have a right to quality health care. Demand help if you need it. Get your local Aids Service Center to help you get the care you need.

Staying straight and sober is your responsibility; no one can force you to get right. NA and AA groups are free. Find a group through your local white pages and work the program, if that is what you want.

You've admitted you have a problem, which is the first step. The other eleven steps take some work, but admitting you need help and are powerless is important.

If it helps, I am very often so profoundly depressed that I have AIDS and often have to force myself to get on with the daily routine of life. I find it helps if I have a routine and a purpose to my daily activities.

Mate, I'm just a guy on the road. I have no answers just my experiences. I do care about you; but, you have to take responsibility for your life. I cannot keep your side of the street clean, but I will always offer you encouragement in your efforts.

A friend on the road,

--------------------
Life is a river.
Carpe diem.

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