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soimnotalone
Fanatic

Reged: 10/28/05
Posts: 65
you were right!!!....about SSI/SSDI
      #168579 - 01/03/06 05:22 PM

Last year I posted with tears the fact that I may not be eligible for SSI/SSDI because I was gaining weight and feeling better according to the case worker and that I may not qualify...this was b4 the final determination. Days later I called back to the case worker quite upset I may add, and advised her of all the dr appt's fatigue and loose stools I have daily and that just because I don't sound disfunctional, does not mean I don't feel like I am losing my mind. She offered to send me to a therapist, I remember some1 replying that panic attacks always works, well I did not have to really perform, sitting there talking face to face w-some1 about your aids diagnosis is way different from discussing it over the phone, yeah I broke down like a baby (which is not like me) I felt like such a whimp, I try to stay so strong even here I try to seem up beat and postitve (to some people) the therapist recommended that I get SSDI for 3 years. Last week I found out unofficially that I am going to receive the benefits. YIPPIE!!!! I am not suggesting that no one tries to commit fraud to get SSDI but if you feel that any moment you can break down and cry and stress is the last thing you need and you can live off the few $$$ the govt will give you for a short time, don't be afraid to express that to your case worker

Lots of luck
soimnotalone

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AIDS2HIV
Legend

Reged: 12/19/05
Posts: 2200
Re: you were right!!!....about SSI/SSDI new
      #168603 - 01/03/06 08:01 PM

congrats...hiv/aids is a legit disability. however the way the "system" is set up, getting it into court is a bitch. they do that so by the time ya get to court you are either well enough to perform some kind of job, or you are dead, sad but true. I was diagnosed full blown in feb of 05, confined to a bed for 3 months, OI's , side effects, the list goes on. I have 4 kids and a wife at home, of which i was sole income for the household. first week of December of 05, they notified me that they had me scheduled for a court hearing 13 months from then. So You have done a great feat!!! so far my highest cd4 count has been 211 on dec 13th. In northwest ohio, you dont even go to court in ohio..they send ya to ft wayne indiana. so i automatically get bumped to the end of the line. But i'm happy for ya. its a shame, i have a cousin that weighs 500lbs...she been on disability all her life. her only disability is Ho Ho's & bon bons, However so...I personally am elated over your recent win of the money & politics thats ruined this great world* God Bless

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antibody
Regular

Reged: 01/28/06
Posts: 27
Loc: san diego, california, usa
Re: you were right!!!....about SSI/SSDI new
      #176940 - 02/24/06 08:03 AM

i was wondering how they determine someones disability. my numbers say i'm healthy as a horse. tcells 700 and VL of 11,000.
they may be good numbers but i dont feel well EVER! i am so depressed all the time that i hope to go on disability for stress and depression not my physical state. its my mental state. i'm a fucking nut lately. i dont really feel i can work anymore. i have gone down to 5 hours a day from a normal 10 hours a day.

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