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Jackie!!! Help.... Lymph Nodes Question
      #41900 - 10/15/02 06:51 PM

Hi Jackie, All,

Can you help... Are there lymph nodes in the small of your back, just to the right side of the spine, I feel lumps that can be moved and feel irritated....

Also, I still have very prominent swellings under the jaw on both sides and below the ear.

Also, yes, there is more.... I have what feels like lymph node swelling along the collar bone (Just under it behind the bone) and a couple of hard nodules in my groin crease. I get pains there. I also have tons of hard lumps in my lips although I had 3 removed and biopsied. The doctor said they are non-specific and I have chronic inflammation of the salivary glands. Does this non-specific rule out HIV? Would glands swollen from that have had some kind of distinctive pattern or something?

I have had testing out to 17 months (5 different times) via ELISA only. All came back negative and one of those was for HIV-2.

By all accounts I am sure you think I am stupid and need not worry, but how come these lumps are all over. I have been reading a lot on the web and anything that talks about swollen glands over a long period of time points to HIV. Any other type of malignancy would have probably caused me to keel over by now and just die. :)

I have lost quite a bit of weight over the last year and now have very little fat on me at all. I have not changed my diet much, although I cut down on some beer, and I still smoke.

If you are still awake, here are my questions.

Do I need to test again? It has now been 2 years since the encounters in questions.
Do I need to take some other kind of test, every test so far has been ELISA only.
What on earth can be causing all these nodes to swell?

Thanks much, I appreciate anyone taking the time to give me advice. For those of you who wish to berate me about being obviously negative send me your address, I will mail you enough money to call someone who wants to hear it. I don't!



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Re: Jackie!!! Help.... Lymph Nodes Question new
      #41901 - 10/15/02 07:23 PM

Elisa out to 17 mos. is plenty. You don't need any other hiv tests. Go to a doctor about the nodes. It's probably nothing. Some people just have swollen or slightly swollen nodes. Do they bother you? If not, don't worry about it. To be safe, see a dr. Good luck.

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Re: Jackie!!! Help.... Lymph Nodes Question new
      #41902 - 10/15/02 07:29 PM

Thanks very much for the reply. They don't bother me as such.... I get aches in the lower back and when I rub the spot I can feel these lumps. I do have hot spells on my neck during the day where my glands are swollen and occasionally I get pains in my groin.

I guess I want to stop testing, I just have no idea what it can be and it is tough to move on without some kind of closure...

Having been worried about HIV for the first 16 months I am finding it hard to stop worrying about it now even though the window has passed long ago.

I just have no idea what else it could be!

Thanks again. I appreciate it!

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