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Stop the worrying before it ends you...
#29085 - 03/01/02 12:19 PM
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"Get busy living or get busy dying." Great quote from The Shawshank Redemption says it best. I as many of you refuse to accept my negative status. However, slowly I have realized its important to get my !@#% together before its too late. I have been in a fog for too long and have wasted too much precious time. I was in the same boat as many of you at my 1, 3, 6, 9, and even 12 month mark. I was freaked out to the point I had lost all hope. Wierd symptoms I had never experienced before following a so-called exposure. The worst of all was the sudden onset of floaters in both eyes. I had never encountered anything of the sort, and it happened in the 4th month. I had no clue what they were, but they were eveywhere - not just one little spec but rather several in both eyes. I am an avid scuba diver and on my last get away I was so depressed I couldn't even dive. My vision was screwed - all I could focus on were the amoeba like critters dancing across my field of view. I would have recognized them before, especially after diving so much.
When I got back from my trip I immediately began scouring the net for any and all information I could find on the subject of eye floaters. I even went to 3 different Opthamologists (1 was a retina specialist) which said my eyes retinas were fine - no sign of infection. Floaters are caused by vitreous layer detachment, which is a jelly like substance pulling away from the retina.
However I didn't believe any of these so-called specialists. I continued to search for the truth - to somehow prove floaters are indeed linked to HIV infection. This despite testing negative 10 times via ELISA (and I'm talking about all types of ELISAs: HIV 1/2 3rd generation, Home Access, Orasure) and even went down the DNA PCR and RNA PCR road. I tested ELISA and PCR and both 6 months and 1 year post exposure. Oh yeah and my exposure: drunk idiot who received a blowjob from a prostitute at a buddy's bachelor party.
I fit the classic worried-well description for over a year and have paid dearly for it. Only now am I battling to gain my life back. Guilt can be devastating. I have survived only with the help of friends and family. Just wanted to share my thoughts and experience and to offer help and advice to those who find themselves where I once (and still) am. Ultimately I wish i would have listened to the experts and believed my negative result at 3 months - or at least the 6 month one! However I dreamed up every reason why I was positive instead: symptoms, rare strain of HIV, lab messed up the test or mixed up my blood sample with someone else's, one of the .00001% who is a late seroconverter, etc...I' sure you all know where I'm coming from.
Get your life back!
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http://www.thebody.com/nimh/nimhpage.html
Please contact them. They can and will help you.
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Yes, this would be really terrific if it could happened. All the normal reasoning would suggest that - worrying will not change the outcome. We all know that, and we all worry about it. My Doctor said it is very common and he sees lot of patients who are worrying. And via his practice career it was always like that - enormous amount of people worrying over some type of illness.
This time he said it is HIV that people are most worried about.
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Thanx for the advice. Yes i guess all of us here who frequent this board would really wish we didnt worry. but I guess some of us need a peice of mind by analyzing how risky our behavior was. I am sure a lot of ppl told u not to wory but I guess i didnt heed their advice. Why?..if u get the answer, maybe it applies to majority of us who frequent this board, if not all. True, there might be some who might be uncessarily worrying say if they just grinded on the dance floor with some one..but I guess majority of us...our worries are real beacuse of the symptoms that manifest within our body. I would like to not think about HIV and just do my job and laugh with my loved ones but I cant beacuse I do get the symptoms and no one can explain whats gooing on..even the docs..all i can do is wait for 2 months..the only place I find solace is here.
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Believe me I agree whole heartedly. One of the reasons I hard a hard time accepting my negative status is because I could not get a definitive diagnosis. Doctors couldn't explain my problem. Just "Thats the way you were built." or "stress"...and being from a scientific background I believe things don't just happen - there is something behind it - a real reason. Because they couldnt isolate the cause I turned to HIV, which seems it can be linked to anything.
So needless to say it has been a battle. I wish I knew this site existed 1 year ago - it would have helped. We can all pull through together.
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