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HIV Transmission and Education >> Am I Infected?

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Brickwall
Regular

Reged: 05/08/11
Posts: 32
Severe symptoms but still tests negative
      #255536 - 05/08/11 03:32 AM

I have a uniqe and a long story.

In short high risk in Thailand, severe primary infection after 3 weeks, these symptoms has just continued and slightly changed, to other/more serious.

I did antibody test after 4 weeks, 8 weeks PCR1, Combotest all other stds negative, but doctors worried about severe symptoms (bleeding under the skin, brain? demethia etc etc), they tried to make a PCR for HIV2 and found correlation.

My CD 4 was 434-360, started med (truvada/norvir/reyataz), and got better but still very very sick.. took 16 days..

Back in Europe I directly went to the hospital and seing infectious specialists, they urged me to stop medication since they could not find any infection.

I have made more test until 18 weeks, combotests, PCR1 and PCR2 (13 weeks) all negative.

My question is could I really be hiv negative (I am not one of the people with depression), I suffer from sore throat 15 weeks, severe night sweats, bleeding under the skin (KS?), hairloss, extreme tiredness, wasting (fat belly), headache all the time, blisters, shingles all over the back and fungus incl face and scalp, other skin changes (white spots etc), stiff neck, something "growing under the scalp" etc etc..

I have been and am really sick for 16 weeks and still the doctors in Europe (since it is after 12 weeks window) says I am healthy.. (they think I have had the skin problems before)

I have in total taken approx 30 days of med, taken med for 4 days and stopped and when I was too ill took another period.. (I know that you should not, but otherwise I would have been dead, and/or my skin changes would have made me handicapped for life)

Please help, I want to live! The last combotest last week 18 weeks, CD4 340.. 42%


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JER2
Fanatic

Reged: 11/30/10
Posts: 72
Re: Severe symptoms but still tests negative new
      #255645 - 05/15/11 01:47 AM

Hi friend, i understan you, i am from El Salvador, i have been very ill for two years, i had the typical ARS, febers, dhiarreas, nodes, brain problems, . Mi risk was with a positive girl.

Today i am really ill and the doctors think that i am negative, I would like start meds but in my contry nobody will give me them.

I have serveral negative test (but one indeterminated elisa, and a quick test positive) the last test 21 months after risk is negative, but my CD4/cd8 ratio is 0.5.

I dont know what can i do.

Friend i hope that you improve soon-
Excuse my english


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Brickwall
Regular

Reged: 05/08/11
Posts: 32
Re: Severe symptoms but still tests negative new
      #255655 - 05/15/11 04:33 AM

Hi my friend!

I am so sorry to hear! I hope you can find a doctor that will look into your case with "new" eyes!

The problem is that they have been to the same medical school and been taught to trust testing 100%, they do not care about the symptoms until you have a positive test!

I am sad that there are more people like me suffering without the help from the health care.

I am in the same situation like you for almost 6 months and even in Europe they will not give you any medication before you are tested positive!

I really hope that it is something else than HIV for both of us! (but my decease respond to the HIV medication)

What is your cd4? (my ratio 1.36)

Good luck!

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JER2
Fanatic

Reged: 11/30/10
Posts: 72
Re: Severe symptoms but still tests negative new
      #255693 - 05/16/11 10:33 PM

Hi friend,
My cd4/cd8 ratio is really bad its 0.5 my last cd4 count was 779 it isnt so bad but i feel like i am in AIDS already. Today I have a severe throat infection and i have right now fever, but i am tired to go to the doctors and everyone saying me you dont have hiv but they can say me what i have. I am really concerned because 8 days ago i started with my left eye very dry and i fear for my eye it is very red it likes a eye infection.

Friend i would like try the ARV but nobody will want give them. I am sure that my problem is HIV minimun or something worse.

If you find some help i will thank you your information.
Regards

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