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red32
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Reged: 04/10/11
Posts: 10
the unlukiest
      #255197 - 04/10/11 01:49 PM

The unluckiest man on earth
I am 32 straight man I was very healthy before 7 months, after a short breaking with my wife, I have dated a women that I don’t really know on 24 September, we had unprotected oral sex, but broken condom when vaginal intercourse, two weeks later, I started to have a high fever, then throat sore, mouth ulceration, men yeast infection, red rash all over my body, dhiaria, thrush that was confirmed by the ER physician after doing culture, I had no idea at that time what was it, in the Emergency I was asked if I had recently a sexual relationship, then they talked about HIV, I was shocked, since it was only 15 days of my encounter, they carry an HIV test which was negative, and they asked me to come back after 2 weeks, did then they carry on another ELISA DUO test which was negative, I started to have swollen painful lymph nodes in the groin, arm pit, neck, behind knee, near the ear in the face, in the feet I still have it til today and they are still so painful, then I started to have a blood in stool. In the ID clinics They carry on me some blood work, they found high lymphocyte count, neutropenia, and very low pallets. After two months of exposure I started to have a Peripheral neuropathy that was diagnosed by carrying an EMG test. So to cut shorte the story, I was tested every week up to 3 months by Elisa duo, and rapid test at the same time. All negative.
After my three month tests, the ID ordred CD4/CD8 test, cd4 was 920, cd8 was 850 with a report of 1,06, I was told by the ID despite all the persistent symptoms and low CD4/CD8 ratio, that I am in the clear,
so I returned to my wife, I told here about every things, and what the ID told me about , That I am in the clear, so we had sex, two weeks after, she had very high fever, thrush, rash all over her body, lymphes nodes..all my symptoms, and lately peripheral neuropathy.
After my wife symptoms, I was dubting the tests again. So I was madly looking for the lady who I had sex with, Finally I found here, I told her I know you are positive. Don’t deny it, she was shocked how I knew it, she told me that indeed she was POZ and under treatment, but as the report was protected, she did not want to tell me about, BUT THE CODON BROKE, YOU RUINNED THE LIFE OF TWO PEOPLE !!, I was crying like a child in the street
We still both me and my wife, suffering from the generalized swollen painful lymph nodes, yeast infection, oral thrush that resists medication. severe pain in the back of the neck, and all our lymph node still swollen and paifull all over our body.
My 7 months CD4 count is 450, ( deacresed by the half) and CD8 980, CD4/CD8 is fallen from 1 to 0.54 in 4 months.
I have tested up to 6 months and half : 20 abbot axym combo ELISA. 10 INSTI, one Rocha amplicore viral load, 1 Aptima NAAT. all negative
My wife tests : 5 abbot axym combo ELISA..all negative.

THE ID told me that he has never seen a case as mine, he said the last thing we can do is ordering DNA PCR, and if it does not show any thing, he can not do more for me, as he rouled out all other STD, LYMS deasis , lupus….

I am in black tunel...our health are deterioration rapidelly for both of us, the neureupathy os becoming more painfull but the neuro is helpless as he said we have to treat the source of it ..without fiding the verus....dispite the phisical and blood work evidence that we are both infected.
Need Your HELP

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bartlebyAdministrator
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Re: the unlukiest new
      #255210 - 04/11/11 01:47 PM

stress and worry can really take a toll on your body. while you did have an encounter with a woman who is confirmed positive, the CDC per-act risk estimates remains the same for unprotected insertive penile-vaginal intercourse, 5 out of 10,000 exposures.

furthermore, you tested negative at both 3 months and 6 months, both considered outside the window period and conclusive. the RNA test will definitely come back negative as well. you do not have HIV. don't continue to convince yourself that you do. you have negative test results. don't doubt them. no matter what symptoms you have, it's NOT HIV. got it?

also keep this mind, even if you did get HIV from this woman, it's not her fault. the sex was consensual and it's nobody's fault that the condom broke. lastly, your lives would not be "ruined" because of HIV. don't add to the stigma.

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red32
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Reged: 04/10/11
Posts: 10
Re: the unlukiest new
      #255214 - 04/11/11 03:12 PM

Thanks very much for your answer,
For the la Hiv+ lady, It would be more ethical if she informed me before to have sex that she is HIV+, then let me the choice to have or not sex with here even if it was protected, That what I do if I will found my self HIV+.
For the risk per episode, I think it is far more than the number that you wrote, as that lady has really, really heavy vaginal liquide, so it would not missed me with all the viremia present in that fluid wich were in contact with the unprotected penis when the condom broke.
I was wold befor that three months is conclusive, I believed it, despite all my heavy symptoms, I went back to my life, and had unprotected sex with my wife, then, she started to have the ARS symptoms, and anomalies in her blood work, So then honestly I lost faith in the accuracy of the tests, as both of us now evidence of infection, beyond all our clinical symptoms, our blood work are showing low pallets, low WBC, and a CD4 count that dramatically fallen by half, and the ratio CD4/CD8 also by half, the same ID who told me to move on with my life, now he is asking more tests, I am now with another ID as I lost faith on his judgment.
Now Honestly, dispite our negative (me 6 months, her 3 months negative), I am believing more our ongoing clinical symptoms which the neurologist, and the immunologist are failing to find a cause but an HIV infection. I know that you deal with a lot of well worried, but with a confirmed exposure, and clinical and biological evidence of an infection, in two separate person, to wonder if an HIV strain or delayed seroconversion is legitimate in my situation.
I have two last question, I am scheduled for DNA-PCR next week, is some one has aknowledg if the Abbot real time, has an advantage upon the qualitative APTIMA RNA ?

If I was seroconverting in the last 6 months, would the generalized swollen lymph nodes (that the haematologist said its not a cancer concern) will disappear, It is hard to support the permanent pain in every lymph nodes in my body, do I expect that pain go away, or HIV+ people leave with it life long ?

Many thanks


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bartlebyAdministrator
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Re: the unlukiest new
      #255216 - 04/11/11 03:38 PM

the issue of disclosing to partners is always a controversial one. yes, you might think it's nice to know who's positive and who's not, but you risk stigmatizing those who are positive. you also cannot infringe on their right to privacy. they do not have to disclose their status if they don't want to. on the flip side, you should always be careful whenever you engage in sexual activity. HIV is not the only STD out there. moreover, people don't always tell the truth or even know if have a STD. you can't assume people are telling you the truth.

but putting that aside, i don't think there's anything anyone can do to help you if you are going to continue believing you're positive. the proof is there, negative test results. if you are going to doubt them and are convinced you're positive, despite proof to the contrary, then you're just going to waste your time on a wild HIV chase. have seen it too many times. everyone thinks they're a special case and have an undetectable strain or delayed seroconversion. believe me, you're just tricking yourself. i hope you come to your senses and realize negative test results trump everything else. you're testing negative. your wife is going to test negative. chalk up whatever symptoms you and your wife had as coincidence.

also, those CDC numbers are accurate, even if she is positive. exposure does not automatically lead to infection, especially in your single, brief instance. some mixed-status couples, unaware of their HIV status, have had unprotected sex for years without HIV transmission.

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Beeps
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Reged: 02/24/11
Posts: 4
Re: the unlukiest new
      #255455 - 05/01/11 04:37 AM

Hi Red,

I am no expert on HIV, but reading your post reminded me my own experience. I went through the hell of HIV anxiety and had almost every single symptom typically attributed to HIV (read my post called Anxiety about HIV), I too had PN (neuropathy), fevers, night sweats, weight loss etc etc and tested negative. later on talking to a doctor about this I was amazed how much harm our thoughts can do to our bodies. When our mind is not controlled, it can strike worse than HIV. I agree with Bartleby, you do not have HIV since the tests have confirmed that several times. What you have is a severe case of anxiety, something I went through myself. All if my symptoms disappeared within one week after getting my negative results.

Do something that would take your mind off your health issues. take a trip overseas, go trekking, diving, something that you have not one before.

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justagirl72
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Reged: 04/28/11
Posts: 57
Re: the unlukiest new
      #255456 - 05/01/11 10:00 AM

here's a link you might find interesting its seems alot of people who are testing negative still find reasons the tests to be wrong this is a strong testament to psychosomatic symptoms. http://news.bbc.co.uk/2/hi/asia-pacific/8505998.stm

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red32
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Reged: 04/10/11
Posts: 10
Re: the unlukiest new
      #255459 - 05/01/11 05:34 PM

Quote:

here's a link you might find interesting its seems alot of people who are testing negative still find reasons the tests to be wrong this is a strong testament to psychosomatic symptoms. http://news.bbc.co.uk/2/hi/asia-pacific/8505998.stm




Thank you for your message,

Can anxiety make generalized swollen lymph nodes and inverted CD4, CD8 ratio, in both two poeple (me and my wife- after having sex with her) at month 6 after an unprotected sex with a confirmed HIV+ person.
Now experiencing post infection neuropathy (confirmed by neurologist)

Anyway, I can say almost certainly, regarding all the clinical evidence, that we are an HIV case, it will or will not show later in tests, but that will not change our clinic reality.
We (me and my wife) are unlucky enough to have this disease, and one of the unluckiest of the unlucky people as it is not YET showing in test, to start proper medication.


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crabmanModerator
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Reged: 03/10/11
Posts: 1159
Re: the unlukiest new
      #255461 - 05/01/11 08:03 PM

Oh please....yet another case of HIV that can't be confirmed. Give me a break. If everybody that thinks they are infected in the face of their negative tests actually was we'd all be in a world of shit. We aren't and you aren't infected.

Don't believe your negative test results? Nobody's problem but yours and certainly not something people that are infected or have had actual risks WITHOUT confirmatory negative test results, such as you have, care about.

Just a girl.....these types won't ever admit that they don't have HIV, instead when you give them alternatives they just fight all the harder to try to get people to affirm they're beliefs that they are so special as to have a disease that is now easily diagnosed.

It's a sad thing and so many times people want to help these poor souls see the light, that they are indeed dealing with mental health issues instead of HIV, but there's the rub....no talking sense to the crazy....

Save your own sanity and don't even try.



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justagirl72
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Reged: 04/28/11
Posts: 57
Re: the unlukiest new
      #255463 - 05/01/11 09:13 PM

red I'm not sure why your labs have turned the way they have but there are other diseases that present with similar symptoms maybe its a little known STI? ...if I were you continue to test per cdc recommendations,Unless both of you have an underlying immune disease or are IV drug users to cause you not to produce antibodies I'd accept the neg result. .. The people in China are dying from what who knows but its not HIV..maybe some rare microbe we never heard of before ..just think 20 years ago we didn't know of SARS 40 years ago we never heard of Ebola..do microbes mutate yes. but its not an HIV strain. yes the mind is the most powerful instrument..ever here of mass hysteria? and stress effects all the body systems including the immune and neurological ones.

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shwmeproff
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Reged: 04/11/11
Posts: 20
On your side red32 ! new
      #255467 - 05/02/11 12:49 PM

First the PRO : Trust your own feelings and symptoms , you make an impressive case for test being unable to detect , the lab tests are very supportive . Next : both Dr. Holodniy and Dr. Conway (He's a former doc ,but if you search his name he comments on a few cases of post 6 months detection ) say that in the face of suggestive symptoms further investigation and alternate testing may be warrented ---certainly they're not on the 6 month line with a sledge hammer slugging everyone who tests negative who even hints at questioning results . These people here who are blowing the 6 month horn are not in line with an open end post 6 month possibility that they're own forum doctors allow for, especially considering you've for sure been exposed to the virus at the very least . Go to the best Hiv only specialist you can find --probably in the capital city of your state, tell him your test results(When you see him ---NOT BEFORE! ) and history.
CON: In the face of everything , remember this : She tested positive ! So the virus she has cannot be some outlier or strain that's undectable --maybe go to her doctor !-? The chances that both you and your wife having the same strain and remaining undetectable when your "infector" has tested positive is compelling . There very well may be a disease in China that is a viral illness but not HIV . Lastly, I'm not even going to rip a thread at those that would defend anyone who knows they're positive and potentially exposes another . Being honest, or having to stick with one partner who knows , or going onto positive internet sites is the price to pay for being positive and moral ---and un-prosecuteable .

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bartlebyAdministrator
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Re: the unlukiest new
      #255469 - 05/02/11 03:12 PM

indeed. you do not have HIV. but if you have convinced yourself that you and your wife are positive, despite negative test results outside the window period, then there's nothing more we can say. you're just going to continue looking for a disease you don't have.

i strongly advise you accept the test results because they are accurate! do not fall into this worried-well hole of constant testing and symptom checking.

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red32
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Reged: 04/10/11
Posts: 10
Re: the unlukiest new
      #255470 - 05/02/11 03:35 PM

thanks very much for your answer,
I know that you deal with a lot of worried well. Worried after a hand shaking with HIV+,
I know too that every one think that he is an exception, I know also that writing in this forum, or in another, will not help, as the people has nothing to say about the situation, But having revealing symptoms and the laboratory abnormalities, just after unprotected sex with HIV+ person, make me looking desperately for any clues. Anywhere.
Thanks any way for your king reply .


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bartlebyAdministrator
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Posts: 660
Re: the unlukiest new
      #255471 - 05/02/11 05:50 PM

you have to realize that symptoms are just symptoms. they are simply clues that lead you to a diagnosis. but tests are the instruments that confirm the diagnosis.

so when you are using tests that detect for HIV antibodies or HIV RNA/DNA itself, and the results come back negative, that means HIV is not present in your body, no matter what "symptoms" you have.

and i know all of this worrying stems from the broken condom incident from someone who is confirmed positive. but exposure doesn't automatically lead to infection. the CDC estimates unprotected insertive penile-vaginal intercourse HIV risk to be 5 out of 10,000 exposures. the odds are tremendously in your favor. yes, in some cases, it only takes one exposure. but there are also countless examples of mixed-status couples who have unprotected sex for years (not knowing one partner has HIV) and the negative partner remains negative.

but still, multiple negative test results outside six months should be the be-all end-all to any discussion or doubts you may have. so just accept that you do not have HIV, stop stressing and take your mind off of this. see what happens then.

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red32
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Reged: 04/10/11
Posts: 10
Re: the unlukiest new
      #256742 - 07/26/11 03:36 PM

Hi, have just a question
I still have a health concerne, upon the exposure I describe above,
I tested Negative by blood rapid test last week, (10 months ) thankfully it was negative, BUT, since laste week, My ALT start to rise continually, my billurubin too start to rise, which indicate a viral inflammation of the leaver, the doctor I sow yesterday, said that my spleen and liver are both enlarged, he asked me (whitout telling him before about my exposure) if I have a risky exposure, I told him about the story, then he sent me back to the infectiology department. And ordred another HIV and Hep C, test.
Things are even more suspicious, about a possible delayed seroconversion, just to sum it up unprotected exposure to known HIV+ female + all symptoms including Maccullar popular rash and generalised lymph nodes till today + lab abnormalities + Now High ALT and High billirubin+ enlarged spleen and liver .
Strong evidence that I am late seroconverter. Due may be to hep co-infection.
I have a Question, can Hep C be transmitted sexually from female to male?


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sparklingredwine
Newbie

Reged: 01/23/14
Posts: 6
Re: the unlukiest new
      #275007 - 01/24/14 08:43 PM

Hi.
I'm afraid there are some new undetectable strain here.
Me and my wife experienced very typical not phobic symptoms. But still test negative. There are similar cases in the internet starting approximately from 2008.

People experience typical ARS HIV symptoms, CD4/CD8 ration declines. But don't test positive.

red32, I would like to know did you ruled out your situation?

Did your CD4/CD8 ration recovered, did medicine helped. Or it was psychosomatic impact?

I will describe my case later. It has many similarities with your and ruans's story.

Please keep posting. Is this hypochondria or a real HIV undetectable strain it is better to resolve this together.

Edited by sparklingredwine (01/24/14 08:44 PM)

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